I don't know why but when she said, "My husband" it made me feel all warm & cosy inside. I guess it's because I know their both happy❤️ Love you Mary!

I am an infusion nurse and you are an expert! You are an inspiration! I plan on sharing your video with my staff. xoxo

Yesterday 4•17•2017, I accessed my port for the first time from start to finish with the help of my nurse. Two of the major problems I had were 1) wearing the sterile gloves and 2) accessing the port. I do have elbow and shoulder problems (limited movement) which made it harder. After coming up with ideas and using mirror (which was difficult Because the nurse and I had different angles that we were seeing. I thought i was going in straight and at the right spot and she said I was not in the correct spot. It was difficult because my hand kept getting in the way. She finally said to do it my way so I can practice. I got it in but she had to adjust the angle of the needle a little bit when I was in. Hopefully next week it will be smoother.

my cousin had cf and she could not gain the courage to stab a needle into her chest as she said it sadly she passed away at the age of 18 on December 3rd 2015 i think she would have lasted longer if she did as much as you did if she would have found your channel before passing away i think it would have helped. thank you so much for putting yourself out there to help others have a better time understanding how cf works (I LOVE YOU GUYS thank you so much)

AMAZING job! I'm a nurse, and WISH patients were as conscientious as you are about taking care of themselves!

Tremendous respect for you and other people who take care of their ports. You have a very calming and reassuring manner. Very detailed and thorough instructions!! I enjoy "how to" videos with you Mary!!

I’m going tomorrow for my consultation and to schedule my port procedure In Sept.! I’m so glad I’ve watched your videos for almost 6-7 years but never dreamed I would ever need one. So I’m scared but I’m also relieved knowing you two have done so many advocating videos and information about the before I ever realized I would have to use this information for myself. Big sigh! TY Peter and Mary.. also Elijah ❤️🥰

My name is trinity Greenwood. I am 12 years old. I have cystic fibrosis. and I have a feeding tube. soon to get port. THANK you so much for showing me how to access a port. I am soon getting sugary. you guys make me believe I can be strong.. I love you so much. thanks.

You are so aware of the people that watch you, making us all feel comfortable with what ever we are challenged. You make living with a other abled body seem like such a natural thing. Taking away all the uncomfortable feelings we have about our bodies. You are so much old souls. Thank you for comforting us every day. Peace, Love and Light!

I don't have CF or a port but I found this very interesting Mary!

I got my first port placed a few weeks ago for my mitochondrial disease and lyme disease. I love having a port so much! It makes everything so much easier!

Nice video. I don't have CF but I had a PICC line for seven weeks to treat a staph infection. Although I wasn't inserting a needle, the rest of the process was essentially the same. It's a good thing for anyone to watch because you never know when you might have to do something like this.

You're so amazing Mary! I'm an RN and part of my job is going to patients homes to access ports and had always wondered if there were people who were able to access their own. Praying for you and your husband that 2017 will be a great year for you both.

My mom had one of these ports so she could administer a week long chemotherapy treatment at home. I used to do this all the time for her and I found it interesting and it really inspired me to go into the medical field 😊

Hi Mary,

I use the same tegaderm! I also do the same thing you do with the tubing, and I agree! I have been through 3 different tegaderms because of allergic reactions. I also do the samething with tape. But, I am also allergic to the tubing because it has latex in it, and that is why I started pinching the tubing. But, it definitely does help when the tubing gets pulled!

Hi Freys-

you are the bravest ray of sunshine. Honestly i have no idea how i stumbled onto your videos but i have been binge watching your vlogs for 3 days now. You and your family are seriously so inspirational!

Great video! I'm a nurse with the IV team and deal mostly with PICC lines. I had to do a teach for a client on how to access their chest PORT and your video was a fantastic help. I instructed my client to go view it as a resource if they should have a question when they are home.

Thank you so much for sharing. Though I am not apart of the CF world, nor do I know anyone, I love learning more about it.