I first spoke a week ago with Preetham and Gayathri in India about their 10-month-old baby daughter Hitaishi who has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 - the most severe type of the condition, meaning she cannot swallow or crawl as her muscles are weakened and progressively deteriorating.
Today we follow up to see what's happened since then. If you are a national media journalist interested in this story please contact me:
hildakalap@yahoo.co.uk
Funds for the gene therapy drug Zolgensma must be raised by 15th August to save Hitaishi's life. Please donate and spread awareness:
www.impactguru.com/fundraiser...
More information about Ishkama Global Change CIC and its founder Abhnash Bains:
ishkama.co.uk/