Health Update: My Syrinx Check-up

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Пікірлер: 40

  • @deirdrejonker1046
    @deirdrejonker10462 ай бұрын

    Hi Brittany, I’m so glad I came across your KZread page. You are amazing! I just got diagnosed after suffering chronic pain and got misdiagnosed for 9 years and now I have a syrinx between my L1-3. I have two shredded vertebrae’s in my L8-9, where I got two different diagnoses from two different neurologists. You are an inspiration to me. When I got the syrinx diagnosis I was so shocked and horrified after reading all of the symptoms and what the future might look like, but your videos have given me such comfort and inspiration. Thank you!!! Cheers! Deirdre

  • @VulcanOnWheels
    @VulcanOnWheels7 ай бұрын

    Thanks for the video, and happy birthday to your 15-year-old.

  • @Romans1118
    @Romans11187 ай бұрын

    Thank you for the update, I have been wanting to know an update when you were open to sharing it.

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    I'll keep you guys posted whenever I get a check up!

  • @pascalehaller-jahn5513
    @pascalehaller-jahn55137 ай бұрын

    Dear Brittney, I'm so happy for these news and the human, professional neurologist you discovered for the first time ! My injury is quite at the same place than yours (but no syrinx, in French it's called "cavernom"). I also have one above in my spinal cord, and it is like your syrinx : stable. I hope together with you that it will remain stable so long as possible, and this is the opportunity for us to live each day intensely, gratefully and with the highest quality as possible. Worrying for tomorrow seems to me loss of energy, so I concentrate myself on today as good as I can ! I wish you much blessings an joy in your life and love.

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Thank you! Healing vibes for you as well!

  • @joyc8684
    @joyc86847 ай бұрын

    Thank you so much for sharing and your transparency. I was recently diagnosed with a syrinx and am grateful for the community you have helped to build. And… happy for your good news!!! Happy birthday to your son. 🎉

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Stay tuned for my video all about syringomyelia! I've got lots of good resources to share! Would love you to share more about your syrinx journey if you're willing! How were you diagnosed? What were your symptoms? What has been your treatment?

  • @samanthatremellen7640
    @samanthatremellen76407 ай бұрын

    You have been a big help to us.

  • @1stCavReg
    @1stCavReg7 ай бұрын

    Happy birthday to your now 15yr old. A wonderful age. Wow, I have never heard of a Syrinx. I don't believe I have one but I do have a herniated disk that lets me know it is there every so often. Had it from an accident that happened a decade before I became paralyzed. Your video is giving me the push to find a new neurologist. My last neurologist was very good but unfortnately he didn't survive covid that a patient brought in. That was two years ago. Tough being a doc. Thank you for the much needed push.

  • @CinkSVideo
    @CinkSVideo7 ай бұрын

    No bad news is good news! Happy birthday to your 15 year old.

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Right!? Thank you!

  • @fooddog45
    @fooddog457 ай бұрын

    So happy to hear the good news!! I have 3 syrinx in my spinal cord (base of skull/spine, mid spine, and lower spine (L4-L5) that are thankfully stable at the last check.

  • @susietopspin
    @susietopspin7 ай бұрын

    Good news indeed and happy birthday to your girl. ❤

  • @charles_wipman
    @charles_wipman7 ай бұрын

    I'm glad to hear that you're as well as you're; have a great day and happy birthday to your kid, enjoy the day!.

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Thanks! Back at ya!

  • @stephenmaher2265
    @stephenmaher22657 ай бұрын

    Wishing you many more good visits and birthday 🎂’s with kids

  • @vickenator
    @vickenator7 ай бұрын

    Fantastic news! Thanks for sharing it with us all, I was curious how things were going with it.

  • @benjohnson3022
    @benjohnson30227 ай бұрын

    So nice to hear good news!!! Hope the birthday was fun too :)

  • @rogersawyer70
    @rogersawyer707 ай бұрын

    Happy Birthday to you youngsters 🎊🎂🎉🥳

  • @gtrguyinaz
    @gtrguyinaz7 ай бұрын

    ❤❤Good news… happy for you..

  • @philcarter3789
    @philcarter37897 ай бұрын

    Go girl you are one of a kind

  • @ahmedelkmisi5814
    @ahmedelkmisi58144 ай бұрын

    I wish you a good health and happiness!!

  • @westiepower2020
    @westiepower20207 ай бұрын

    Happy birthday to your son! Hope he got a big cake and great gifts! Perhaps when you do your Syrinx video, could you explain what a “shunt” is? My cousin had Spina Bifida and unfortunately he never got the chance to explain his shunt to me. And I don’t know if these 2 shunts are the same or not.

  • @samanthatremellen7640
    @samanthatremellen76407 ай бұрын

    Totally agree about surgery

  • @om617yota7
    @om617yota77 ай бұрын

    Best of luck, ma'am. That "what if" really is the killer. My girlfriend has a tumor on her brain stem, we're in "wait and see" mode to see if radiation treatment worked. Definitely get where you're coming from. Thankful for every day.

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Oh man, that's rough. I recommend the book Radical Remission. It's a good book to read to stay out of the fear headspace! Sending love and healing vibes your way!

  • @johnvelas70
    @johnvelas706 ай бұрын

    My friend's niece (15yo paraplegic) and her 16yo quadriplegic friend were so mad I DIDN'T need stitches. I fell off a high wheel antique bike & cut open my leg. I loaded both of them in a car, & drove them to the hospital so they can watch.

  • @afsanarosebd
    @afsanarosebd7 ай бұрын

    I was just recently diagnosed with several syrinx and other problems with my spinal cord. I’ve been searching for answers as to why I have so much pain in my legs and other health issues. I will be seeing my first neurologist December 5.

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Good luck! I have a video with a lot more detail about syringomyelia coming out next week! Stay tuned for that:)

  • @GAINZonWHEELS
    @GAINZonWHEELS7 ай бұрын

    ❤🙏🏻❤️

  • @sunilsheoran31
    @sunilsheoran317 ай бұрын

    Hello please make a video on which exercise you do in a day?

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    I haven't been doing daily exercises so it wouldn't be super authentic to do a video about what I do in a day. When I get a routine down with my exercise then I'll post something. I have a few exercise videos already up if you want to check those out! kzread.info/dash/bejne/aa1m1MaJYMayedo.htmlsi=Bb2jM83Wf3U1etyK kzread.info/dash/bejne/aa1m1MaJYMayedo.htmlsi=Bb2jM83Wf3U1etyK

  • @brianlowther5929
    @brianlowther59297 ай бұрын

    so pleased every thing is still ok, sorry for the 4 day later comment. lol

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Thanks! No worries!

  • @TimothyZhu
    @TimothyZhu7 ай бұрын

    You look like Conan O’Brien’s wife Liza. Could be sisters!

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Yeah totally! I just looked up her picture! Very similar features!

  • @GAINZonWHEELS
    @GAINZonWHEELS7 ай бұрын

    No your not a Barbie, you’re a realistic women thal looks good, with a husband where many women a murder for do… you’re great …

  • @caz3895
    @caz38957 ай бұрын

    Great to hear you had good news. Hope you have a lovely day with your Birthday girl.

  • @EmpoweredPara

    @EmpoweredPara

    7 ай бұрын

    Thanks!