GNE myopathy - Valenee Gosine's story

Valenee Gosine has GNE myopathy. Watch the video to hear her story and find out how MDUK helps her to stay active, independent and connected. #EveryDayCounts

Пікірлер: 5

  • @Sharms5
    @Sharms53 жыл бұрын

    Such an inspiration and a true fighter - saluting you and sending love from all of us in Trinidad, cuz!

  • @sonisuruchi6769
    @sonisuruchi67693 жыл бұрын

    Hello Valenee.... This is Suruchi from INDIA. I also face the same condition like you. Really it is very difficult to accept this. But Life goes on .... I also accept this different life and live my life in a different Style. Love your video because it gives me courage to do more things which gives me Happiness. God bless you.

  • @jaydee4353
    @jaydee43535 жыл бұрын

    Amazing video, what an inspirational person. Well done Valenee!

  • @nisargpatel1494
    @nisargpatel14942 жыл бұрын

    Y'day I was diagnosed with this. Physical therapy is all suggestions from Dr. Where can I see more info on this such as clinical trial/exercise/diet/work life etc.

  • @tarun611990
    @tarun6119907 ай бұрын

    Hi one of my cousin also got same issue. Is there any treatment cure which doctor to visit we have met Neuro Ortho spine rhumeto etc. also saw a video where people with such condition get to worst in few years is it correct? How to prevent that