It's so amusing to hear someone else talk about what I went through too. I didn't, and haven't, had anybody to talk to that has experienced it even though so many people get cancer. It was strange going through all of these medical procedures and treatments and not have anybody to talk to that could relate; probably because I was fairly young. And for whom it may concern, I was awake when my port was installed. I didn't feel a thing. And I recommend the numbing cream.

Getting a port made things so much easier. By my 3rd infusion, they ran out of veins. Dacarbazine actually burned as it went in my vein despite being slowed down 3x and diluted 1:2. With the port I was in and out

Thank you so much for sharing. I'm getting my port on Monday. Thanks to you I feel a little better about the whole thing. I was just diagnosed with triple negative breast cancer and it feels good to know I'm not alone in this. Thank you so much. You are truly a blessing. God bless you.

@darius2811

Жыл бұрын

Praying for you 🙏

@cmoore6895

2 ай бұрын

I pray you are doing well. Mine is the same since March 6 this year.

Thank you for this. I have to get my Port this week. Terrified but you helped me feel better about it.

@SurvivorJelena

4 жыл бұрын

I'm so glad to hear that my video helped to calm your fears a little bit. I hope your procedure goes smoothly.

@ignacioperez6064

3 жыл бұрын

I get mine on Monday

Thank you for this information, best of luck for your health!

Thank you for sharing your experience. I’m about to get a port because my vain are hard to find. It’s for chemo and lab. Your tips were great. Very happy for you that you are well. Blessings 🙏🏼💕

First off, congrats on surviving on such a journey ❤️ I will get my port placed this week. These are helpful tips to prep me for it. Thank you so much!

Get mine put in tomorrow and this was great to ease my nerves.

Thanks for this video now I feel way better I’m gonna have my port place tomorrow.

Thank you for being so brave and sharing

@SurvivorJelena

3 жыл бұрын

Thank you 💙

I need hydration therapy 2x a week and will probably need a port placed and I’ve been so scared and nervous about it but you made me feel a lot better about it. Thanks

Thank you for the tip of the press and seal. I have the same port and it's used for iron infusions. I was highly recommend by the PICC Nurse because of the poking it left scar tissue.

Thank you for helping us!

@SurvivorJelena

3 жыл бұрын

You’re very welcome! 💙

I had one put in when I was 8 yrs old and taken out when I was 10. I had aml and almost died. But God kept me alive. Back then there wasn't very many people I could relate to(I'm 45 now). I'm glad to see us all being able to support each other knowing we aren't the only ones. It can be very lonely.

@SurvivorJelena

2 жыл бұрын

Wow! That must have been so difficult and isolating for you going through a cancer diagnosis as a kid. Happy to hear you’re still here so many years after your diagnosis.

@rosewiththorns4669

Жыл бұрын

I had AML when i was 5 in 93. I had a broviac instead of a port. I don't have really anyone that i can relate to. Drs said kids don't get AML or have BMT in 1 year

@jakemakescontent2529

11 ай бұрын

Oh my god, I also got my port placed at 8 but it was taken out at 9

@wendykraf7575

5 ай бұрын

@@rosewiththorns4669 I had AML as a child. The said it usually happens in adults and the elderly. I was exposed to radiation as a baby thats how we think I got it. Bizarre things happen when exposed to it. Then oddly they treated it with radiation. This was in 1985-1988

I salute you , you are not just a survivor, you are a brave woman . Happy to see you sharing your experience with the rest of the world. I wish you a happy and long life with your beloved family

@SurvivorJelena

3 жыл бұрын

Thank you 💙

Thank you so much. What you have done is truly appreciated. Multiple Myloma.

@SurvivorJelena

Жыл бұрын

You’re welcome 💙 Hope you’re doing ok.

I was also diagnosed with Stage 3 Colon Cancer. Thankfully the doctors were able to remove the tumor. Due to Cancer spread to nearby lymph nodes. I'm scheduled to begin Chemotherapy for 5-6 months. I'm scheduled to have my Port installed next Thursday. Im extremely nervous but your video is helping to calm my anxiety. Thank you for sharing 😊

@SurvivorJelena

3 жыл бұрын

You’re welcome. Sorry about your diagnosis. Best wishes to you for getting your port placed and as you begin chemo 💙

@jcmo6454

2 жыл бұрын

How is it going seems you might be half way done, I get my port next week

@taralechner462

2 жыл бұрын

Same here autum. Just had first chemo treatment two days after port placement. The unknown is so scary but these videos took me to peace

@taralechner462

2 жыл бұрын

@@jcmo6454 I just got port and did first foldox. It wasn’t horrible but my port site is sore and chemo was mental and physical something I wasn’t expecting.

@MrLoriam35

9 ай бұрын

I got diagnosed August 4th 2023 had surgery August 24th and start chemo next Friday had port put in last week

I have stage 3 lung cancer i go for my first radiation tomorow and chemo the next day! I had a port put in to 4 days ago! God \Bless you thanks for the information.

Thankyou so much for sharing. My mom is getting her port soon. Thanks for all the information. It relieved our stress❤

@SurvivorJelena

3 ай бұрын

Glad it was helpful!

Just getting my port day before yesterday I.e 31 Sept 2021. Thank you for sharing

My son is getting one tomorrow. Thank You for the info , so we know what is going to happen to him tomorrow.

I'm glad I found this video because I am having a port placed in two days. I have Stage 4 lung cancer and received my first chemotherapy infusion 6 months ago. I still receive immunotherapy infusions every 3 weeks and that is indefinitely. Lately the nurses have been having some trouble getting good needle sticks in my arms so a port was recommended.

@SurvivorJelena

Жыл бұрын

I hope your port placement goes well 🤞🏼 Hopefully it makes your infusions much easier.

Thank you!

Thank you for making this. Im going to get my port put in next week.

@SurvivorJelena

3 жыл бұрын

Mat DeVito you’re welcome. I hope your port placement goes smoothly 💙

Thank you! This was very helpful

@SurvivorJelena

8 ай бұрын

You're welcome! Happy to help 💙

Thank you for this video I'm very afraid, just being diagnosed with rectal cancer. This video gave me some comfort and insight for my road ahead.

@SurvivorJelena

Жыл бұрын

Happy to help ease your nerves a little. It’s scary being diagnosed with cancer, but knowledge is power.

Thank you so much for your very easy to understand video. I’m getting a port put in for biologic infusions and I suffer from venous insufficiency. Hence, lots of pokes twice a month for blood draws and infusions. Sending prayers you continue to stay healthy! 😊🙏♥️

@SurvivorJelena

Жыл бұрын

You're welcome! Happy to help, and I hope the port makes life a bit easier for you.

Thankfully I'm not going through cancer at the moment but I am very chronicly ill and I'm getting a port placed in a month and this video has been really helpful

@SurvivorJelena

2 жыл бұрын

Happy to help 💙

Bless you for sharing this. I have been told multiple times that because me veins have always sucked (small and valvy) and I have kidney issues and required External jugular ivs in the past, I should consider a port. I’m educating myself on the pros and cons now.

@wendykraf7575

5 ай бұрын

Get the port. They said my veins kept collapsing so as a child I said try that one on my foot lol. I saw a big vein on top of my foot and they used it. After awhile I got the port and it was much easier! I pray for your healing!

thank you so much for this video! I'm going through the exact same thing as well. i get my port put in tomorrow and chemo 3 days later . fortunately i won't need radiation therapy. your cancer is the same exact predicament as mine and it makes me glad to know that i will get through this .thank you for helping me build the confidence that i need to get through this.

@SurvivorJelena

Жыл бұрын

You’re welcome, happy to help 💙 Wishing you the best as you get ready to have your port placed and begin chemo.

Thank you for sharing! I had a power port implanted as I’m going thru chemo again for my ovarian cancer that had a recurrence a few months ago. My onc felt it’d be easier on me rather than messing with my arm veins like I did on my first round round of chemo two years ago. Your videos are amazing and it’s so helpful to share your experiences in your cancer journey. 🤗 ❤

@SurvivorJelena

Жыл бұрын

Are you happy you got the port this time around? Sorry to hear about the recurrence - hopefully these new rounds of chemo wipe out the cancer for good 🤞🏼💜

My dad is having this tomorrow. Thank you for the valuable information! I’m a lot less worried now.

@SurvivorJelena

2 жыл бұрын

Happy to help ease the nerves a little. Hope it goes smoothly for him 💙

I have stage 4 colon cancer and my cancer doctor mentioned the port and I decided to have it done. So your video is really good information thanks

@SurvivorJelena

Жыл бұрын

You’re welcome 💙

Very informative video. I had a port put in today and was wondering how it works. I may have missed hearing the information given on my first appointment with my surgeon. So thank you so much for your video. I’m glad you are doing well. ❤️🙏🏼

@SurvivorJelena

2 жыл бұрын

Glad you found the video informative. There is so much going on during those appointments it’s totally understandable that you could have completely forgotten how the port work.

THANK YOU so much for taking the time to make this video. I go in tomorrow for my port and am secretly terrified, staying strong for my family gets hard sometimes. Been doing lots of research on these ports and out of everything I've come across not only is your video the most informative but it has also put at at ease somewhat. Thank you so much.

@SurvivorJelena

2 жыл бұрын

I hope your port placement went ok today. 💙Happy to help put you a little at ease before the procedure.

Great info thanks

@SurvivorJelena

3 жыл бұрын

Glad it was helpful!

Jelena iv been watching your videos thank you sooooo much its helping all of us to understand what happens and what to look for God bless u im getting a port in 2 weeks im scared colon cancer stage 3 I hope I'm as brave as you

@SurvivorJelena

3 жыл бұрын

Thanks for being a dedicated viewer 💙 Cancer is scary, but know you aren’t alone in this. Hopefully my videos give you some comfort in knowing a little better what to expect.

@autumn2735

3 жыл бұрын

I understand how you feel since Im also currently going through treatment for Stage 3 Colon Cancer. I want to offer you some words of encouragement and support. I was diagnosed with Stage 3 Colon cancer on April 26,2021. I had a bowel resec surgery and tumor removed on May 12,2021. Now, I'm scheduled to have a port installed next Thursday so I can begin my Chemotherapy. I have went through and still.going through an array of emotions. I want you to know you can do this! My thoughts & prayers go out to you as you continue on your journey for Cancer treatment.

Gratitude!

TY for your video. Just had my port removed today.

@SurvivorJelena

Жыл бұрын

Yay!

I have small hard to find veins also, after chemo they were really fragile and would collapse so I have to get a port, glad to see how this all works, hope you're doing well

@SurvivorJelena

Жыл бұрын

I'm doing pretty well, hope you're doing ok too.

Thank you for the port video. I’m getting my port placed as soon as my resection wound heals. I was really nervous. I needed the encouragement today. It’s day three back in the hospital due to infection.

@SurvivorJelena

3 жыл бұрын

That stinks you’re in the hospital due to an infection. I hope it heals soon and that your port placement goes smoothly. 💙

@Eaghan4404

3 жыл бұрын

Thank you so much for the encouragement and the information from someone who has been there!

Jelena you are my hero! I’m going through treatment for stage 3 colon recital cancer. I’ve done my 6 weeks of chemotherapy and radiation. After the last treatment I ended up in the hospital for dehydration. And I lost 30 pounds. Now my next step is surgery. I should have had it in 3 days from now. But COVID forced my hospital to cut all unnecessary surgery’s. Mine was just delayed another 4 days. My wife will not be allowed to my room after surgery. No Visitors, due to COVID. But by watching your videos I know what’s coming in my future. I have subscribed to your channel. It’s awesome for folks like us.

@SurvivorJelena

3 жыл бұрын

You are too sweet 💙. That has to be so hard knowing you can’t have any visitors after your surgery. Hopefully you get some great nurses! Thank goodness for technology...your wife can at least video chat with you. Hope surgery goes smoothly and complication-free!

I have one now and so far no trouble. They put my chemo on on Monday and take it off on Friday

Thank you for making this video! I'm midway through 8 chemo treatments for Bile Duct Cancer and the chemo is taking a toll on my veins. The RN mentioned yesterday at my treatment about the possibility of a port. Your video eased my fears. 💚 Bless you and I pray for your continued good health!

@thomasmclaughlin135

3 жыл бұрын

Getting my port installed a week from today!

@eightiesbabybaby1433

3 жыл бұрын

God bless u Thomas I had my surgery in April 2021 tumor removal I have stage 3 cancer getting my port in 2 weeks God bless us all and yes very thankful to Jelena for these videos

God bless you!

Thanks so much for explaining your experience so thoroughly. Your story has been helpful to let me know what to expect from my situation I was diagnosed with 3rd stage rectal cancer and 3 months later I am now getting ready to start radiation and chemo in a week or so.

@SurvivorJelena

Жыл бұрын

You're welcome! 💙 This is exactly why I wanted to create this channel - to give others a place to find helpful information that can help them better understand what to expect while going through treatment.

@josalynreyes9482

Жыл бұрын

My husband is diagnosed stage 2 and he just had his port last Monday. In his situation his team will do 8 cycles of chemo first (FOFOX) then 28 days radiation. Is your like this?

I have Guillain Barre Syndrome, and I have iv therapy every 2 weeks. My veins are small and roll. When I was hospitalized, the phelbotomist had to use a special machine to find my veins for an IV. Currently, it has been difficult for my neurologist to find my vein for therapy so he wants me to get a port. Thanks to this video, I feel a bit more at ease.

Thank you. My grandnephew is getting his port this week. I can't bare to think of him being in pain.

@SurvivorJelena

6 ай бұрын

Hopefully the port will help 💙

Thanks for sharing your awesome 👌

@SurvivorJelena

2 жыл бұрын

You’re welcome!

My port was placed by an Interventional Radiologist using a fluoroscope to insure proper placement. I received conscious sedation (Versed and Fentanyl) not full anesthesia. I could feel pressure on my chest and manipulation but no pain. I never used the Lidocaine cream when I had port draws or chemo. The pain from the insertion of the needle into the port was not that high, at least for me. But certainly use the Lidocaine if you want a pain-free experience. I had chemo and radiation before surgery. The port was never used for anything but blood draws and chemo. For my surgeries a standard IV was placed in my arm. I had the port removed by an Interventional Radiologist again with conscious sedation. Not as much post-op shoulder pain for removal as experienced with the original placement. The port was removed after it was determined my radiation, chemo and surgery had yielded good results and I probably was not going to require any additional chemo. Also you do need to get a Heparin flush of the port every 4-6 weeks if it’s unused to prevent it from clotting shut.

Mad grace me to im getting a port im scared to Jelena is helping us all understand what's going on what will happen God bless us all we ate brave courage friends good luck to all of us

Thank you for this video. I do nit have a port but my arms look like the ones pictured in the video. I have stage 4 lung cancer and do chemo q3w. Each visit they where probing and missing the veins. So I started with US IV placement. Worked well for a while but everyone nit trained so they missed with the damn ultra sound in a different Dept. I’m done. I seriously thinking of getting a port. That’s how I found your video. Thank you so much.

@SurvivorJelena

3 жыл бұрын

Sorry about your diagnosis, but glad to have helped you a little with my video.

Thank you.

@SurvivorJelena

2 жыл бұрын

You’re welcome

I've had a port for over 15 years (yes! Same port! It has lasted that long! I am VERY BLESSED that it has lasted that long; they usually do not). I had mine put in for non cancer related issues,however. I am an EXTREMELY difficult stick and was having to have multiple IVs/mo due to a Migraine Disorder. My doc would call in orders either to our local ER or the Day Center. Finally, the nurses there, after having to put an IV in my neck, called my doc and told her, "This girl needs a port!"! She then referred me to a surgeon who put my port in. This port has been a God Send! Easy access and NO DAMNED PAIN FROM MULTIPLE NEEDLES! I NEVER feel the needle going in (well, unless someone tries to stick it in the wrong place. That happens sometimes since my port is lower placed than most are as it wasn't put in due to breast cancer, it doesn't happen a whole lot tho). I've never used or even needed to use lidocaine.

@SurvivorJelena

2 жыл бұрын

Wow, 15 years! That's definitely the longest I've ever heard of someone having one. Glad it's made life much easier for you.

@wyalyb

2 жыл бұрын

Did it hurt? I am getting a port and I am so afraid. Please message me if you can

@SurvivorJelena

2 жыл бұрын

It wasn’t too painful for me. It was pain similar to having done a really tough workout and the soreness you feel a day or two later.

@Cozycrossingswithkatie

2 жыл бұрын

I’m going to need one too for things that aren’t to do with chemo, I have ME, MCAS, EDS and POTS so I need lots of infusions and stuff and apparently it will help but I’m really scared

Thank you for this video. I was diagnosed with breast cancer at 32 years old now I'm 40 and was recently diagnosed with Stage 2 Her-2 positive breast cancer. I had a double mastectomy years ago but unfortunately it came back so now I'm having a port entered and will undergo chemo then radiation. I already had surgery to remove the mass since I have breast implants and that was the best way to get everything to a lab to determine what kind of breast cancer I have. I'm looking forward to beating this again. Thank you for this video and I pray that you continue be well.

@SurvivorJelena

3 жыл бұрын

So sorry about your diagnoses, that stinks. I hope you beat it again! I am well and have no evidence of cancer 😀

@princessbrie5642

Жыл бұрын

Praying for you and your fight gorgeous 💪🏾🙏🏽💜

@pearlieruffin750

Жыл бұрын

Praying, you will make again

@shanynrobbins1943

Жыл бұрын

It came back after a double mastectomy? Ugh.. I was diagnosed with the same as you last month. Port goes in tomorrow and chemo a week later. This is all new to me. I guess I thought a mastectomy prevents breast cancer from reoccurring because you're eliminating the breast tissue😢

911 call before over after port? Just got the port today. Flush in 2 days...1st chem in 5. Thank you educational comforting.

Thank you so much for this video. I have stage 3 MMMT uterine cancer. After having hysterectomy and lymph nodes removed I e received 28 rounds of radiation and so fat 3 chemo treatments. The second AE of chemotherapy was much tougher. I decided to get the port and it will be placed on June 4th. I was told I would be put to sleep. Hoping for the best

@SurvivorJelena

3 жыл бұрын

I get squeamish around blood so I can’t imagine getting the port without being put to sleep. Hopefully it’s smooth for you and makes your chemo infusions a tiny bit more tolerable. 🤞🏼💙

I’m getting a port in 2 weeks. I’m really scared bc I’m going to be sedated not fully asleep like you were. But i feel a lot better with this information thanks for sharing

@SurvivorJelena

4 жыл бұрын

I have heard from many others that weren’t fully asleep that it felt a little weird, but it wasn’t too bad.

@ignacioperez6064

3 жыл бұрын

Same.

Thank you for that information, Jelena. I have rectal cancer stage 3, and have my port placement appointment in 2 weeks. Your video made me less anxious about going through that procedure!

@SurvivorJelena

2 жыл бұрын

Happy to ease your anxiety a bit 💙 It was the easiest thing that I had done during treatment and I really appreciated having it for chemo and blood draws.

@Cufm5dc

2 жыл бұрын

Hope you doing well. Stay strong 💪

@alexvernovsky3412

2 жыл бұрын

@@Cufm5dc Thank you! I’m starting the first cycle of chemo tomorrow, a liitle nervous, hopefully it’ll go smoothly. 🙏 .

@Cufm5dc

2 жыл бұрын

@@alexvernovsky3412 Be positive. I started back in July 28 i have Colorectal cancer stage 3 as well . You can do it . 💪💪

Hey...your videos and amazing detail of everything that happened are great and helpful. I was diagnosed with stage 3 rectal cancer about 2 months ago. Was in hospital for almost 3 weeks where I ended up with surgery for total blockage from the rectal mass. I now have a ileostomy and mucus stoma. Been home from hospital for about 2 weeks now and been eating and getting my strength back...normal weight is 170 lbs...I'm now 120 lbs so I lost alot of weight and havent had anything to eat for about a month. The pain I also went through was horrible...about a constant 8 to 9. It was due to a perforation in my colon where the cancer was which caused an abscess that went into my hip muscle. I could not walk about a week before getting admitted into the hospital. Now pain has since gone and can walk now🙏. Getting my port this tues and in about two weeks starting chemo which I cant wait for...I just want to beat this cancer and get back to normal!!! I have many questions I could ask but most important is my little guy. My son is 2 years and 5 months and my question to you would be did you have to stay away the days you were recieving chemo due to being immunocompromised? My little guy is in day care so there is alot of germs coming from those places. Just want to thank you for posting all your videos and letting us into your life and experiences. You are a true inspiration to me and like me seem like a very positive person. Glad to see you survived and made it through this crap called cancer!! If you ever need any help or know anyone that might I will be here to help. Once I beat all this it will be my lifes mission to help anyone going through cancer and to keep them positive and strong. Live life to the fullest and enjoy every day no matter how bad it may be!! Thank you... chris from long island ny🙂

@eightiesbabybaby1433

3 жыл бұрын

God bless u Jelena for these videos Chris your a champion 🏆 we will all beat this battle and get back to normal life God bless everyone im getting a port in 2 weeks had my colon operation in April mass was taken out I have stage 3 now I need to win the battle we all are courageous friends

@SurvivorJelena

3 жыл бұрын

Hi Chris! I don’t know how I missed replying to your comment when you first posted 🤦🏻‍♀️ Man, you’ve been through the ringer already! Talk with your doctor about your son. My daughter was in kindergarten when I was going through chemo and my oncologist gave me the green light to go and volunteer in her classroom occasionally. They’ll run blood tests on you before each round of chemo and you’ll be able to see just how your immune system is responding and how weak it’s getting. Thank you for all your kind words 💙

@SurvivorJelena

3 жыл бұрын

Thanks @eighties baby baby. I hope your port surgery goes smoothly 🤞🏼💙

You give me hope, my wife is starting all of this and man am I scared. Thank you

@SurvivorJelena

Жыл бұрын

I hope things go well for her 💙

@smokum0

Жыл бұрын

@@SurvivorJelena Thank you very much, your videos will be very helpful

Thank so much!! I just found out about C….,!! All of your information was great!! Pray for me, as I pray for you!! Take care

@SurvivorJelena

3 жыл бұрын

You’re welcome 💙

I had to remain awake for my port placement due to not being allowed general anesthesia two times in one day. It felt barbaric even with numbing shots it was unbearable and they eventually gave me something to knock me out thank goodness. 💙

I liked how detail u are step by step instruction is the way to go I understand almost everything u said even the abbreviation u explain am surprise ur not a teacher I

@SurvivorJelena

4 жыл бұрын

Thanks bree! My goal has been to make everything easy to understand to take some of the mystery of the disease away and so that people unfamiliar with it can easily understand what I’m talking about 😀

Thank you, I am trying to help my sister through chemotherapy.

@SurvivorJelena

Жыл бұрын

I hope she’s doing ok 💙

Thanks for your videos. Just had the port installed. I'm wondering how the area looks after it's removed. Do you have any scars or marks?

Hi. Thank you for posting this video. I am 52 years old a mother of 4 and was just been diagnosed with stage 3 colon cancer. They removed the mass 2 weeks ago and now I am about to get chemo and get my port installed next week. I did not know what to except. So, thank you. If you don’t mind please send me links of more of your videos.

@SurvivorJelena

2 жыл бұрын

I’m sorry about your diagnosis, but happy to help you better know what to expect as you go through this. You can go to my main channel page here: kzread.info. I’ve got videos grouped together into playlists, or you can click on the video tab at the top of my main channel page and watch everything in date order (newest to oldest OR oldest to newest).

I had the same type of port installed around 6 months ago after having to endured IVs for two years of treatment. I currently have to go in once a month for blood tests and infusion. It is so much easier and less painful ... and I don't use the lidocaine. Good video of the process. I saw another one of a patient with my cancer, multiple myeloma, which convinced me to get it.

@SurvivorJelena

Жыл бұрын

Way to go for not having to use the lidocaine! I’ve heard from a few others that they didn’t use it, but I figured if I had it I might as well use it 🤷🏻‍♀️

This is the same port I recently got to help me with chemo I’ll be starting soon, I was just diagnosed earlier November 2020 with triple negative breast cancer so chemo starts dec 9 but thank you for doing these videos.

@SurvivorJelena

3 жыл бұрын

Wishing you the best of luck as you get ready to start chemo this week 💙

@oneofakind715

3 жыл бұрын

I wish you the best in your recovery, God Bless you.♥️

@eightiesbabybaby1433

3 жыл бұрын

God bless u friend im getting a port in 2 weeks I have stage 3 colon cancer had my surgery in April 2021 removal of my tumor God blesscus all

@susanhouser3676

2 жыл бұрын

I too was diagnosed with triple negative breast cancer in August 2121 and had my port put in 9/22/21…chemo starts soon too. It’s been an emotional roller coaster but my faith in the Lord has always been my strength thru trials in my life. I have family and great friends praying and supporting me. I pray that you have been strong and are better by this time. ❤️🙏🏼

I became a survivor in 2015 (I was 4-5),and now I have/had cancer again ( I'm 13 now). When I got my chemo port in, I could not move for 2 weeks, and now it got infected, but I think it's good now

@zatomlzxzanamolzy1253

9 ай бұрын

That's a lot to deal with for anyone at any age. I wish you all the best, and by the power of God, you will beat this and live a long, fulfilling life. Never give up or lose hope.

I been watching a few videos about port insert. No one is talking about clogging and flushing. I have to have one. But I'm worried it will clog. Due to the chemo sessions being x3 weeks apart. Do you have to flush the port at home ?

Omg great info. How long was the surgery?

@SurvivorJelena

Жыл бұрын

I don’t remember how long exactly it was, but it wasn’t more than an hour.

This is really interesting! I saw someone in another video recieving chemo through a device in their chest area and wondered what it was.. Now I know!! I didn't even know that this was a thing. Once you finished chemo, do they remove the port with surgery again?

@SurvivorJelena

3 жыл бұрын

So happy to hear you learned this from my videos 😃💙. The port does eventually come back out if you finish treatment. I had mine taken out when I was in for my ileostomy reversal surgery (which I’m talking about in this Friday’s video 😉), but others leave them in for a while.

Which lidocaine cream do you recommend? Do you rub it in around the port?

God bless 🙏

Thank you! My stage IV colon cancer was diagnosed two weeks ago, and port will be placed in a few days. Your videos are a godsend. Question, does it seem to matter what side of the chest your port goes on? My oncologist said I could pick a side because I have scoliosis and my ribs on my left side protrude but my ribs on my right side are sunken in somewhat.

@SurvivorJelena

Жыл бұрын

I'm glad my videos have been so helpful for you so far! As far as where the port is placed, if the surgeon is fine with putting it on either side it shouldn't matter. Whichever side you think will be more comfortable.

@larafletcher8141

Жыл бұрын

Thank you so much!

My husband is undergoing chemo and his veins are getting hard. They said it had nothing to do with the meds but I read a medical journal that it can cause superficial thrombophlebitis. He’s got 4 more treatments and I’m wondering if it’s to late to mention. I’m so happy your getting great care. They didn’t do or say a lot of what you’ve described. Insurance I think has something to do with that.

@SurvivorJelena

3 жыл бұрын

If he’s getting FOLFOX, then it most certainly can damage veins. It doesn’t hurt to ask, especially if it’s getting tough to access them.

@joebaby1975

3 жыл бұрын

@@SurvivorJelena Thank you so much. He’s getting gemacitabine and cisplatin. But they cut out the cisplatin and replaced it with something else I can’t remember off hand, but we went to his oncologist this morning and they said he only had 4 more treatments left (two cycles, day one of three starts tomorrow) and so a port really isn’t needed. But they suggested a different type maybe if he has issues tomorrow, like a catheter that is inserted and removed after the infusion. They said that the VTP isn’t life threatening or anything so we shouldn’t worry. Thank you so much for your reply!!! Hope you and yours is well.

I'm scheduled to get a chemo port on 7/28 under conscious sedation & an freaking out. Will you please share pics of your chemo port scar? I ask because I'm going to try to prevent the Interventional Radiologist from butchering me the way the surgeon did during my 5/29 total hysterectomy. 8 weeks later & the 6.5" vertical scar is uncomfortable - bordering on painful. Further, some portions of the incision have become keloid type scars while others are hypertrophic but trying to achieve keloid status.

@SurvivorJelena

3 жыл бұрын

I can’t share pictures in the comments here, but I show a close up of the scar in my ileostomy reversal video (kzread.info/dash/bejne/k55pm7KQqci_lcY.html). 8:06 is when you can see it.

Its a badge we wear proudly

@SurvivorJelena

2 жыл бұрын

It sure is.

I got to get this on October 7,2021

@SurvivorJelena

2 жыл бұрын

I hope it goes as smoothly as mine did 🤞🏼💜

I have Lymphoma and getting my port installed on Friday.

@SurvivorJelena

2 жыл бұрын

I hope it goes smoothly for you 🤞🏼💙

@conn7900

2 жыл бұрын

@@SurvivorJelena thank you. This video definitely helped me understand what to expect.

excellent video- im still not sure if I suffer with burning viens or port surgery🥺 - im doing 5 or 6 chemos 1 week apart- any suggestions?

@SurvivorJelena

3 жыл бұрын

The port placement surgery was super easy and isn’t long. My veins are small, so it was a no-brainer for me to get the port. Even with the port, it took paramedics a long time to find a vein in my arm to start an IV on me after I finished my last round of chemo. If your doctor is recommending it I would get the port.

@rainadegraaf273

3 жыл бұрын

@@SurvivorJelena thank you so much for your help- its scary but your lively spirit is so inspirational and your the fact you shared details was sooo helpful! Thank you- Port it is

I had blood clots when they put my port, my left side neck and face swollen and a lots of pain. When I went to the emergency after doing x-ray they said I don’t have nothing it could be my wisdom tooth who cause all this pain so they just sent me home. The swollen got bigger and the pain worsens more and more so I had to call the doctor who put the port guest what he said that he never had kind of problem and suggested that I go to the emergency. So since my next appointment with my oncologist were the next day I just hold in the pain and wait. When I appeared to the appointment the nurse rush me to do chemotherapy which i refused until I see the doctor. She told me that I can’t see the doctor because I’m not scheduled. I refused chemotherapy and I asked the doctor because I had port complications. When the doc came she looked at my port she said that I’m fine and no need to worry. I was choked for her response and she just let me went home with the swollen and the pain that I never had before. The same day my friends visited me and see how I’m suffering they suggested that I go different hospital. My husband took me the same day, when I explained my condition they took me inside right a way. Nurse called the doctor and they gave me a bad. After all test they found that I had blood clots and my blood is contaminated they have to put me in medications in the IV. And doctors said if I waited a day it can be worse. They told me god I had to follow my gut when I explained to them all what happened to me. I’m telling my story to let you know don’t wait if you feel something wrong each of us know their body more than anybody else’s. I’m not kind of person who like hospital but the same day I had the port I felt something wrong I had a lots of pain. When I asked the nurse he said that normal and just take pain killers and you will be fine.

@SurvivorJelena

Жыл бұрын

I’m glad you kept trying to get help until someone finally listened and took you seriously. We definitely have to be strong advocates for our own health.

I have my pout about a 4 days ago iam doing ok

You know ...they never put my husband out when they put his port in his chest and a biopsi for his lung! He,s saying you want to talk about pain! I,m gonna raise he'll with these people!

@SurvivorJelena

2 жыл бұрын

I have heard of a few people that are awake for the port placement, but it’s definitely not the norm. I would not have wanted to be awake for it for sure! I do know for lung procedures many times they want you awake so you can control your breathing.

My name is donna I have have go to the hospital for my surgery on Friday morning I have to get the prot I am loning more but it very day ❤

I Got diagnosed with cancer right after summer vacation last year( i was 14 ) i were so afraid of having a port put under my skin and also getting a needle put in it everytime i had an appointment but thank god i were so lucky not to get a cancer that were too bad. I just had last chemo last month and i got a PET/CT Scan Yesterday and Im waiting for the results from the hospital. TBH the worst side effect i’ve had was hair loss, any tips on How to make my hair grow faster or maybe to make it easier to live with until my hair grows back?

@SurvivorJelena

6 ай бұрын

I didn’t lose all of my hair so I don’t really have any tips on what to do while it grows back, but make sure you’re eating a balanced diet so your body has the nutrients to heal and can start growing your hair back.

The port was way better than the IVs in my opinion.

@SurvivorJelena

2 жыл бұрын

I am so glad that I was given the option to have a port. It made anything with needles SO much easier.

I'd be interested in knowing when you were diagnosis as stage 3? Did they see cancer in the lymph nodes before the surgery or was that only found after the surgery? I was told your cancer cannot be officially staged until surgery is complete and all the other tests done.

@SurvivorJelena

2 жыл бұрын

I was diagnosed stage 3 within 2 weeks of my colonoscopy that found the mass. They did a rectal ultrasound after my diagnosis and could see the lymph node involvement during that test. Since I was diagnosed with rectal I did chemo/rad first so that has the potential to eliminate the cancer and your staging would be different from diagnosis to surgery.

I'm getting a port next Wednesday and have my first chemo session for Thursday (pancreatic cancer) This was really helpful, thanks

@SurvivorJelena

Жыл бұрын

I hope the port placement goes smoothly and round one isn’t too a rough 💙

@maryschaefer3980

Жыл бұрын

Christine hope you are doing ok .. my mom will have this put in next week for pancreatic cancer

My name is Donna mills I may first chome yesterday

I just got this exact port a few days ago. They told be how to care for the port itself but I'm confused on the part attached to your neck. I have a big guaze on it, do I leave the guaze alone or replace it? I don't have the kind of tape they used to secure the guaze. Can I use a larger bandaid pad instead or leave it alone till my next chemo in 2 weeks? Anyone have any answers? I'm afraid of pulling off the tape because I might pull something out.

@SurvivorJelena

3 жыл бұрын

Do you have a bandage over the port too? I would follow the same instructions for that for your neck. The wound your neck bandage is covering should be stitched or glued shut so hopefully nothing would come out.

@fastmoneyflow

3 жыл бұрын

@@SurvivorJelena I no longer have a Guaze on the port, the nurse at Chemo said they liked to air it out, but I was still a little out of it from the port surgery I forgot what they said about the neck Guaze.

Had mine placed this morning ugh the pain is horrible sore and I dont want to move at all. Does anyone gave advice to manage pain I'm on oxycodone 5 mg.Other than ibuprofen does anyone know what I can take for sleep??? I've got the bard power port in my chest I've got a rectal tumor at the exit area so I believe we both have the same thing. Did you do radiation??? I believe they're going to put me on radiation sessions as well

@SurvivorJelena

Жыл бұрын

Yes, I did 28 rounds of radiation. I did oral chemo at the same time too. Hope your pain has improved💙

I'm scared to death I have just been diagnosed with 3rd stage invasive ductal carcinoma and they said after all the tests I had done now the port for kemo then a massectomy then radiation and then to have a pill for estrogen can you tell me how you made out so I'm not so scared to death!!!

@SurvivorJelena

Жыл бұрын

Just take it a day at a time. It’s definitely a scary thing you’re about to go through, but plenty of others have been in your shoes and survived, so you can too! Don’t be afraid to reach out for mental health help too, if you need it.

Hi my name is Christina, a year ago I was diagnosed with stage 2 colon cancer, I had surgery and 6months of chemo. I'm in remission now but theirs not a day goes by I don't think about the cancer coming back, do you worry about the cancer coming back and how do you get through it

@SurvivorJelena

4 жыл бұрын

Christina Bogue I’m glad to hear you’re in remission now! I do worry about mine coming back, but not every day. I used to try and just bottle up my worries, but that led to a catastrophic release of those feelings in the form of panic attacks. Now I try to acknowledge the fear and the root of it, allow myself to feel it, tell myself it’s perfectly normal to feel that way, and remind myself that I’m doing what I can to keep myself healthy but I can’t control if the cancer decides to return. It took some therapy to get to this point though. 😀

@christinabogue9114

4 жыл бұрын

@@SurvivorJelena thank you Jelena for replying back, I too experience panic attacks , I eat healthy and exercise so that makes me feel better, I'm gonna try what you do and see if it helps, I'm glad I have some one to talk to that has went through the same things 🤗

@SurvivorJelena

4 жыл бұрын

Christina Bogue I do my best to eat healthy and exercise too. Getting outside for some fresh air helps a lot, but doesn’t completely get rid of the anxiety. Although it sucks that we’re going through this, it is helpful having others to talk to that are dealing with similar issues. 💙

My pathology came back negative for spread to lymph nodes after LAR, but they still want to give me chemo. Anyone have any experience with this same issue. I really don’t want to do it.

@SurvivorJelena

6 ай бұрын

It’s ultimately your body and your choice if you want to do chemo. The doctors want to give you the best option to try to ensure the cancer doesn’t return, especially if you’re under 50. If you choose not to make sure you go in regularly for monitoring so they can catch anything early if it does try to come back.

I am getting a port placement within the next week.

@SurvivorJelena

3 жыл бұрын

Best wishes to you. I hope it isn’t too painful.

@onlyhereonce7290

3 жыл бұрын

@@SurvivorJelena I’ll be fine. I just want the cancer gone.

I forgot my ladicain on my first port access and still didn't feel a thing.

@SurvivorJelena

Жыл бұрын

That's great you didn't feel anything. I was too nervous to try having it accessed without the cream. 😅

@chrismerwin3114

Жыл бұрын

@SurvivorJelena lol I literally just had my second access, this time I felt it, but was no worse then getting poked in the arm.

Im getting my port next week I’m afraid but positive 🙁

@SurvivorJelena

3 жыл бұрын

For me, getting the port was the easiest part of all of my treatment. I hope it goes smoothly for you 💙

@Cufm5dc

3 жыл бұрын

@@SurvivorJelena thanks . I just need to be positive and move forward. 👍

@SurvivorJelena

3 жыл бұрын

Cancer treatment is tough (and sometimes scary), so don’t pressure yourself to be positive 100% of the time. Try to think of it as a marathon and each step gets you a little closer to the finish.

@Cufm5dc

3 жыл бұрын

@@SurvivorJelena thank you 🙏

@valeriecarroll7243

3 жыл бұрын

You will do fine, I just got mine out! God bless you!

Did you lose your hair during chemo?

@SurvivorJelena

3 жыл бұрын

My hair thinned out (even my eyebrows and eyelashes), but I didn't lose it all.