Gabby's Story: A Kleefstra Syndrome Documentary
The Khoury Family from Sydney, Australia shares their story with the help of Dr. Elma Palmer and others from Sydney Children's Hospital
The Khoury Family from Sydney, Australia shares their story with the help of Dr. Elma Palmer and others from Sydney Children's Hospital
Пікірлер: 31
Right at the beginning when Mum is describing Gabby's personality Watch Dad’s smile. No matter what challenges a little one faces, a proud loving parent is a proud loving parent.
I have worked with a young woman with Kleefstra syndrome, an incredible, person who lights up the room. We all love her so much and she has many many capabilities and can be sharp as a tack.
My daughter was just diagnosed with Kleefstra syndrome yesterday thank you for this video.
Loving family .. beautiful daughter!!
What a truly beautiful girl. God bless you and protect you and your beautiful family with love.
God bless this loving family ❤❤❤
hermoso testimonio. yo tengo una niña con SK y puedo decir que a ella le afecto muchísimo pero con la perseverancia y amor de la familia la hemos podido sacar adelante, ella fue diagnosticada a los 9 años pero ya habíamos hecho mucho trabajo con ella, ahora tiene 14 y va al colegio ,es independiente y hasta tiene un emprendimiento de repostería. somos de Colombia, sur américa.
She's such a cutie pie.
What an amazing family ❤
⭐️🩵🙏🏼🙂 wonderful care ‼️
My daughter is 3 years old and also has Kleefstra syndrome. She started walking just over 2 without any therapy just at home we are working on her speech now their amazing xxz
@WooWoo-co4jf
Жыл бұрын
Well done, that's lovely to read :)
Gorgeous family ❤
Beautiful!!!
She's very cute. Cheers!
❤❤❤❤🙌
💜meine Tochter hat auch KS wir kommen aus Deutschland 🇩🇪
great doc
💜💜💜
❤
My baby boy was just diagnosed with Kleefstra Syndrome and I am trying to reach out to anyone who can give me some guidance please. He will be 2 on August 25th and his name is Dayce
@lmnopgr
11 ай бұрын
@tiffanytyson983 do you live in the U.S.? have you connected with resources?
@glendafield9797
11 ай бұрын
Keep searching and knocking on doors. Soon enough the right door will open. All the best to you.
@tiffanytyson983
11 ай бұрын
Yes I am in the U.S
@tiffanytyson983
11 ай бұрын
Have not been able to connect to any resources
@flenzy
11 ай бұрын
You might be able to contact St. Jude's Children's Hospital. They are amazing. They could certainly point you in the right direction if they couldn't themselves help your sweet boy.
I’m wondering if FMT (fecal microbiota transplant) could help!
@isabellecoeur1829
Ай бұрын
Could you elaborate on this further? That’d be amazing 😇😊
👍