Lili's story is a tragic one. Please help make it a happy one by sharing and commenting on the video and contributing to her cause. Thank you! GoFundMe www.gofundme.com/f/mknffa-please-help-me-get-my-life-back?+share-sheet& Instagram instagram.com/ninjacatgirl instagram.com/fundraising.friends

The smiling and laughing while explaining Lili’s devastating situation makes me feel so uncomfortable. I hope Lili gets the help she desperately needs.

@JapanExperiences

Жыл бұрын

Thanks for the support. Sometimes people might get a bit nervous talking to a camera but I can assure you the intentions are heartfelt and serious.

@cheriekat

Жыл бұрын

she seemed very nervous, I don´t think she had a bad intention at all.

@mistersir3185

8 ай бұрын

what are you talking about? She was so kind, she literally was hosting the whole event for Lili. That's just the way people are. We all have are own style of talking and interacting. Some are not nervous, and then some are actually nervous. I can only imagine how daunting it must've been for her but she decided to do it anyway. She even took her kids with her may be she felt like she'd feel more confident with them there. Don't be so quick to judge, think and try to rationalize, put yourself in the other person's shoes.

@eri7-11

3 ай бұрын

Yeah i felt the same BUT I've also laughed at times when i really want to cry so hard, human nervous system can be a little craycray sometimes, my sister thought I was nuts at the time.

This is utterly heartbreaking! I am so sorry for the medical malpractice you have experienced ... words just fail me here. (The young lady telling her story, is very well-intentioned however, the smiling and laughing as the story is narrated was disconcerting).

@alham4409

Жыл бұрын

(Sorry - something is wrong on the GoFundMe (tried to donate but it wouldn`t process).

That's heartbreaking I hope she could get better and sue the hospital

@JapanExperiences

Жыл бұрын

Thank you 🙏 please share her story if you have a chance 😊

This is horrific. Please keep us up to date!!! 😭♥♥ I'm so sorry this happened to you, Lily. I've been a similar situation, in bed and barely able to move for 15 year, virtually blind and almost mute now, no chance of recovery, getting worse every day now. I hope you are getting help finally and are able to make some sort of recovery! -Chris

@JapanExperiences

11 ай бұрын

Good luck to you!

i hope she contacted her country embassy and sue Japanese Government

@JapanExperiences

Жыл бұрын

Apparently she did but the embassy said they can only help tourists not citizens living abroad in Japan.

@axzoweewowee

Жыл бұрын

@@JapanExperiences Note that this is absolutely the opposite of what an embassy does. Another red flag.

@ELcinegatto87

Жыл бұрын

@@axzoweewowee This whole thing sounds like a grift

Can she sue for medical malpractice in Japan?

@JapanExperiences

5 ай бұрын

Technically yes, but a lot of red tape and probably even more hurdles when you’re a foreigner.

So sad of a story. Hospitals are a business first to make money.

Ugh in the Japanese countryside I feel a little nervous going to doctors here. I remember when I first moved here I kept getting heat sickness and faintish and dizzy in the Summer even with air-conditioning. One night.I had heart palpitations and felt off and Japanese hubby took me to the hospital at night and nobody was there, the doctor took my blood pressure and pulse and told me to go home it's menopause. I have no idea why in the past few years I became heat intolerant and wasn't seeing to sweat much and regulating my temperature. Then I had tinnitus in one ear, usually it happens to both ears, I also hear a hissing if I lift medium to heavy weights and I couldn't sleep at night due to the noise. The doctor (a different doctor) tested my hearing and said it was fine and that there's nothing more he can do. Only playing a white noise helps settle it down, even several month later it still happens. Then I had toenail fungus and saw who was the highest rated dermatologist in the countryside. He wanted me to take the pill that could hurt the liver, I asked if there was an option for laser surgery and he laughed and said he never heard of laser surgery for toenail fungus. Tokyo has this option but its two hours away. Lastly my dentist was drilling a cavity and the painkiller wasn't totally numbing me and I could feel the drilling, like nails scratching hard on a chalkboard uncomfortable feeling. He gave up on giving more numbing injections and just kept drilling though I raised my hand I was in pain and then he seemed to finish early and just sealed the tooth up. But my sister is in San Francisco and she has blook in stool and doctors found multiple tumors and she was already thin and lost more weight without trying and has anemia and she is almost 50 but they were reluctant to let her get a colonoscopy. Finally they agreed but put her on ow priority list and she's been waiting for almost three months now. So can't say the grass is always greener. I am half-Japanese and born in the USA.

Looks like an elaborate scam.

@JapanExperiences

Жыл бұрын

Really, why? Medical negligence (mistakes) exist and when you’re a foreigner with less rights these things can happen.

@maxintoshify

Жыл бұрын

@@JapanExperiences I checked her website, social accounts, a few videos… First there are absolutely no details or proof given of the hospital/doctor wrong-doing or even names given, or any proof of her condition, medical reports etc. I lived in Japan as a foreigner, I can't imagine someone in her condition not finding another doctor to help her and document her situation, it's just surreal. Secondly, the pretty website with emotion-inducing video/texts has plenty of red flags and doesn't look like it belongs to someone who'd be living in such distress. The wording of the gofundme and lack of any factual information is also intriguing. Then there's also that bitcoin account you can use to help her instead of using the gofundme page… practical, even more so if she was a scammer. I'm not 100% sure that it's a scam, but it's very possible she could be posing in her video/website, and even have accomplices who are in the know or just manipulated (the girl hosting the fundraising… how not surprised I was when she says she's never met Lili. Then there's Mariel from OnTheWorldStage channel who spoke on the phone but didn't met either). I wish someone proved me wrong, otherwise I'll just be sad for people potentially getting deceived by a disgustingly manipulative scam. Also, if I'm given proof, I will help her 100%.

@JapanExperiences

Жыл бұрын

Ok, I respect your right to have an opinion and the background checks. But sometimes the craziest stories are the true ones. Let me see if I can find out more information.

@robertovolpetti1077

Жыл бұрын

it is not, so if you won't help please kindly stop bothering

@maxintoshify

Жыл бұрын

@@robertovolpetti1077 Got any information or update about Lili to share?

Lili should reach out to her embassy and any of her country’s politicians if she hasn’t already. They should be able to help with some of the costs.

Lili told me on the internet that a large amount of money is needed just for treatment costs, but she wants to hire a lawyer and file a lawsuit, but she is required to pay a huge amount of legal fees and a deposit is required. It is to say that I have come. I think one way is to talk to the director of a reliable news program in Japan. However, the Japanese press is so rotten that I don't even know which program to choose!

@JapanExperiences

Жыл бұрын

Yes, reaching out to media sources is a good idea.

I am writing this text using a translator. I started talking to her via DM on Instagram and became friends with her mom via messenger. I have no choice but to ask a lawyer specializing in medical accidents and file a lawsuit against the hospital, but she says that there is no lawyer who can speak Japanese and English. And she told me to pay a very high legal fee up front. I believe that all of you have no choice but to sue the hospital that created the cause of the outbreak.

@tonytran1054

Жыл бұрын

I messaged her on Instagram also. I am going through the same thing she is. Would you mine giving her mom messenger to me? I can give her my thoughts on the best hospitals in USA for treatment and share my story with her.

@user-el4hi4xh2z

Жыл бұрын

@@tonytran1054 okay?

@user-el4hi4xh2z

Жыл бұрын

@@tonytran1054 did you get her mom's link?

@tonytran1054

Жыл бұрын

@@user-el4hi4xh2z I did not. but I am talking to Lili now

@user-el4hi4xh2z

Жыл бұрын

@@tonytran1054 Good luck Tony. 😊

Also, the woman smiling and laughing while describing Lily's situation was really messed up. I know it is all Lily had, but she deserved a more sympathetic voice than that.

@JapanExperiences

11 ай бұрын

Yes, there’s a disconnect there but she’s the person that really made more effort than anyone else to try and help.

Someone help this poor girl, this is so sad. 😢

Please keep helping Lili all of you guys who are in Japan and can help her in ways we can't from abroad. I keep donating when I can (I am not a person with a lot of money) and keep praying to God every day. What she is suffering goes beyond what any human deserves. Please keep helping her!

This is truly heartbreaking..!!! Please don't give up Lily, keep fighting you can do anything. I pray and believe in you..!! ❤❤❤

@JapanExperiences

6 ай бұрын

Thank you!

@B.Grant207

6 ай бұрын

@@JapanExperiences of course..!!

hey there, i'm from the US -- i'm really sorry to hear this is happening! i had a nasty spill once and it resulted in me having a brain injury. this stuff is no joke and the effects are life-long, so i understand a little bit the physical pain she's going through. where are you trying to get her treated? US doctors could treat this definitely. anywho, i'll hop on over to the donation page. hang in there, sug!

@JapanExperiences

Жыл бұрын

Hello, thank you for your comments. She is trying to get treatment in the US or Switzerland. Please take care!

Hello! I'm very sorry about her circumstances. I can't put into words the pain and frustration. I've had several very painful back problems myself. I hope she can find more affordable medical treatment in a nonprofit country like Cuba. I hear they have great doctors. Proper medical treatment should be a right not a commodity to be available only to the wealthy elite.

She should be contacting the swedish embassy and get her the hell out of there!! And while they are at it sue the doctors and hospitals for all funds for the travel and surgery plus a another 30 million for suffering

She should give more details like hospital and doctors names. Sorry to be blunt but we live in a cruel world and there are a lot of fundraiser scams out there. The lack of information will not help her. How much worse can it be if she mentions names?? Also, it doesn't help talking about this case with a constant smile on the face.

@JapanExperiences

Жыл бұрын

I understand your skepticism 😊

@joanngoettig6168

8 ай бұрын

To much laughing and smiling.

We are not receiving news about Lily and no one wants to tell the community what's going on. Even Erica, the girl who talk in the video is not saying anything...

@JapanExperiences

3 ай бұрын

Not sure myself to be honest. Hopefully she is ok.

Does all the Japanese Medical System refuse to help her? If this is true, why she still is in japan after almost a year? Why she hasn't traveled to her country or USA for treatment? she has in her founding much more of what she needs to travel now. Is she going to proceed legally?

@JapanExperiences

Жыл бұрын

As the video mentioned she is unable to move without extreme pain. She cannot sit or lay on her back. She needs a medical evacuation which is very expensive and the reason for the fundraising. The hospital that did an unnecessary procedure on her which caused all these problems is one of the biggest hospitals in Japan. It would be a long and expensive court case. They don’t have the money to fight a court case. The first concern is getting medical treatment. Her present medical condition is complicated and I’m guessing other doctors are scared to step on the toes of the negligence of the doctors that messed her up.

ありがとうございます！

@JapanExperiences

Жыл бұрын

Thank you very much for your support.

Yes, umm very smiley, the woman. That’s a bit odd. I’ve donated to this cause. But I do have my doubts.

What Lilly needs is an attorney. What are the rules there? Someone needs to be accountable I mean as long as she has money to pay or has insurance to cover, it should not have been a problem at least I would think so. I don’t live there so I don’t know, but they ought to be ashamed of themselves. I wonder if somebody is willing to be her voice and fight for her attorney wives I hope that word gets around and somebody that sees her story can definitely help her because this is not only so unethical for any doctor from anywhere in the whole world, but it’s just absolutely disgusting and the Japanese medical care system should be so embarrassed of themselves to allow this situation to go as far as it has

Idk if she has mentioned it but does she still have swedish citizenship ? If so could it be possible to contact the embassy to get help getting to Sweden ? Idk if the treatment for her conditions are good here but sounds like anywhere but Japan is better. 😬

@JapanExperiences

Жыл бұрын

It’s seems the Swedish embassy only offers emergency assistance to Swedish travelers but not residents in Japan. It’s confusing but yes you are right she needs to get out of Japan because the medical system cannot help with her current problem which ironically their negligence caused. Thanks for your comment. Please share the story if have a chance.

@hollyhummel9774

Жыл бұрын

@@JapanExperiences worth her asking again. Many embassies will help citizens of their countries, even if they are long term residents.

Strange young woman, why are you laughing, while talking about the pain from Lily?!

@JapanExperiences

Жыл бұрын

She was shy being on camera. This woman who you are referring to as strange is a busy mom and has done more for Lili than anyone.

@CicoinTokyo777

Жыл бұрын

@@JapanExperiences this has nothing to do with being shy..

I know it wouldn’t be ideal but instead of a Medical Transport, I still think that she should contact the Swedish government about that, but what about simply buying a set of three seats a row and bringing like some kind of mattress and getting some seatbelt extenders that way she could lay on her side and put foam down on either side so that it would be padded so against the back and the bottom so that way she would have a bed Then she could use seatbelt extenders to go around her to strap her in on her side as I said it wouldn’t be as deal as Medical Transport but she had to lay on her side and that anyway I would try that and because she could do that immediately and get back to Sweden and then have an ambulance meet her maybe have somebody have a few people with her who can help her in In most international flights, they have chairs that can turn into bed, so same kind of idea get her strapped in on her side on one of those bed chairs and then they can flip her during the flight a couple times again not ideal, but it’s something that could be done immediately to get her back

@JapanExperiences

5 ай бұрын

Thanks for your comments. It’s a confusing and frustrating situation. To be honest I’m not sure of her present situation.

Any updates?

@JapanExperiences

5 ай бұрын

Still in Japan without treatment I believe.

@syfman6

5 ай бұрын

@@JapanExperiences very sad situation. 😔

I am so angry right now. Unforgivable what those doctors did to her! Just unbelievable 😢

@JapanExperiences

6 ай бұрын

Yes, I agree ☝️

I hope she gets better and finds the help she needs! In my experience, Japanese healthcare is not so good compared to countries like the US. I see it glamorized sometimes by Americans since we have NHI, but I don't think the quality is on par with the US. I have read that people in Japan are four times more likely to die in hospital from a heart attack than the US, e.g. I had this rash around my ankles and elbows and sometimes hips for several years as a boy and bounced between over 10 doctors in Japan, and none of them prescribed anything that worked. One diagnosed it as metal allergy and that made zero sense to me and avoiding contact with metals made no difference along with the medication. Others diagnosed as eczema or psoriasis and prescribed medication on top of suggesting I moisturize the areas, but I noticed moisturizing made the condition much worse. In fact, deliberately trying to keep the skin dry offered much more relief than trying to keep it moist. Then my parents took me to US on a summer vacation and a doctor there, and he diagnosed it as a type of dermatitis caused by bacterial infection and gave me antibiotics and a Cortizone injection. Then in spite of giving up hope on treatment and thinking I will have to have this rash for the rest of my life, it practically cleared overnight with his diagnosis and prescription in ways I had lost hope of ever seeing. So maybe I might have just gotten lucky but it seems like amazing luck when 10 Japanese doctors could not cure what the very first American doctor I went could cure so easily. Downside is that it cost a fortune: my parents had to pay like $500 USD for the American doctor when the other doctors only charged like $20 USD with NHI including the prescription. So I think Japanese healthcare is rather backwards, and I notice it in the general nature of the clinics and hospitals and doctors. It's cheap but not so great, and I think many people come to Japan with mistaken assumption thinking it is so cutting-edge place when it's not so much. Japanese dentists, for example, still use drill for cavity and generally refrain from anesthetic unless patient can't tolerate the pain, while I look at modern American dentists using lasers focusing on minimally-invasive and pain-free dental care with admiration while my dentist is drilling into my tooth painfully and asking me when I wince if I can stand the pain (only to leave me with a dilemma of admitting it hurts too much vs. looking like a total wimp; usually the masculine pride kicks in and I just try to tough it out).

@JapanExperiences

Жыл бұрын

I think you are right Japan is good and bad in regards to medical. I feel it`s in between the Canadian and American health system in regards to price and quality. Health care is less expensive than the US but more than in Canada. But Canada is terribly ineffecient these days. You could wait months before getting an MRI but in Japan I got one the same day my first time at a walk-in clinic.

@zakwanarif

Жыл бұрын

Lmao stop talking based of assumption. Just look up on credible statistics and you would see Japan ranks high in the healthcare. In fact, always rank in top 10 for many years straight. I mean just look at Japan life expentancy, which is the highest in the world fyi. People there dont live long for no reason. Plus, the US also have many similar incident like this just look it up. There is even a case where doctor in America amputate wrong leg of a patient

@darkengine5931

Жыл бұрын

@@zakwanarif Might some of it be based on diet and lifestyle though? I generally consider it a plus that average Japanese in their 60s don't have to sort out 11 pills to take a day in their medicine cabinets. It is difficult to tell from the stats but I think overall American healthcare is better, but wayyyyy too expensive! Medical malpractice exists across the world but I look at basic statistics like chances to die of heart attack in a hospital (4x higher in Japan). Of course people who can't even be bothered to walk to their mailbox (having to get in car, drive to mailbox, get mail, park car), are generally less healthy than people who walk or cycle 1-2 hours a day. But Japanese are behind on healthcare, no? Is this contentious? What of news reports here where four hundred Japanese people died in 2010 from a prescribed drug which US FDA banned in the 1980s? I do not understand why people in the West glamorize Japanese healthcare so much except that it's free, and free is totally awesome, but free doesn't mean top-shelf.

I was reading the sign on the little door that the little boy was playing with is a dog pooch here does that mean there’s a dog in there? I’ve never seen that wording together..

Can’t the Sweden Drs. earth the Sweden government sorry pay Transport because I am at most. I think Sweden has a good medical system where I think everybody looks more like a national medical system, so why isn’t the Swedish government just paying for her to come back on Medical Transport if she’s a Swedish citizen because I believe that they do a lot more than other countries, so I’m kind of confused here.

too bad its all a scam

@JapanExperiences

10 ай бұрын

You figure, why?

You need to get out of Joann and go back to your home country to see US they have laws that basically they won’t give you any pain medication unless you’re dying of cancer then, as far as I know, they were only used proof of fall to literally sedate patients and put them unconscious, but still not giving them high doses of pain medication even in the US because of the laws changed . They do have air medical teams that can come and get you on like a bed and fly you back to the US. Of course I don’t know about insurance and all that but you need to get out of Japan because you’re not going to get any kind of Palletive Care pain management treatment there really at all ‘. Depending on how bad your condition is which it sounds like it’s really bad I would highly suggest that whichever state you end up living in that you immediately contact your local hospice palliative care team, so just so you know, hospice is obviously for people that are dying palliative care for people that have long-term painful medical conditions you would qualify I believe palliative care. Please give them a call because the White laws are written now in the US they can actually treat you a little better than a regular pain management team..

@ilovemyservicedog8862

5 ай бұрын

Sorry, I posted right after hearing the girl talk and I didn’t listen to the whole video saying she was from Sweden I don’t I’m talking about the US I’m not talking about Sweden so I have no idea what the pain management teams are like or anything but I’m assuming they also have palliative care in Sweden so and I believe they have made me slightly better so definitely do the same things but yeah sorry about that. I have a bad Posting without listening through the whole video

Maybe she is nervous or whatever.. but I couldn’t never have a non serious face while talking about a serious stuff like that..

@JapanExperiences

Жыл бұрын

I think holding her child and getting ready for the event she planned and put together led to that, but her sincerity is with question.

Honorable japanaino

@JapanExperiences

Жыл бұрын

What do you mean?

U can ask ur parents for help

@JapanExperiences

Жыл бұрын

Yes, but maybe she doesn’t have parents or maybe they don’t have money to help.

@Agnesgeim44444

Жыл бұрын

Not everyone has that kind of money….

@einc8571

Жыл бұрын

What an ignorant remark

ありがとうございます！

@JapanExperiences

Жыл бұрын

Thank you!