this is an example of how through pain, illness and suffering, to remain a kind, bright and happy soul! thank you 🙏🌼🌾

Thank GOODNESS for good anaesthetists/doctors that LISTEN!!! Those emus-oh my!! WAY TOO CUTE!! Thankyou for showing us!!!! U have an awesome partner in Tom!!! I hold out hope I will find someone special that can handle all of my issues!!

You are spot on about going in the hospital. I feel the same way. My family and friends will say, when I’m in a flare or need a procedure “YOU NEED TO GO TO THE HOSPITAL!” Ugh.... no, please, let me sort this out at home, in my own bed. Yes they are great nurses who help but.... sometimes it’s just a downer which reminds you that you do have a chronic illness. Stay strong 💜

The night sweats could be related to pain meds especially the strong ones. I find if I’m having a bad run of break through pain I get night sweats.

@virginiawheeler1494

4 жыл бұрын

I’ve noticed that too. Of course they have taken me off of the stronger pain meds.

I love how positive you always are, I can understand the hospital feeling! Love you

I wish I could give you a hug, Amy. I know that feeling of needing someone to talk to 'now' and you just can't for whatever reason. I've had gastro pain for a month and the doctors don't know why. Can hardly eat anymore and I thought that was bad enough! So sorry you're having such a rough time. Sending love and prayers xx

I'm so sorry your not getting good sleep. I know what that's like. Its 5 am and I'm watching your vlog because I feel like crap and have been up all night. I'm in the US by the way. I'm going to pray that both of us start feeling a little better and can get some sleep.

Oh sweetheart, it is so sad to see you in pain. Sending prayers and love

Amy, I get night sweats also and it's my pain meds that I take. I hope you find out what is causing your night sweats soon. I'm praying for you hun and I hope you feel better soon. Take care!!!!

Poor kiddo. So sorry that you're having a rough time of it lately. Sending you all kinds of love from Dallas, Texas. xxx

I always get so excited when I get a notification saying you posted 💕

@bluesoldierette

4 жыл бұрын

Alicia Halley me too! Haha!

I'm sorry to hear you're having a rough week Amy. I hope things smooth out in the coming week.❤

Not on TPN but my fridge gets extra cold at the back and stuff freezes there. (It’s an old fridge so the back wall regularly freezes/defrosts) but I think it’s not uncommon to get cold spots in the fridge

Stay strong Amy.I'm another multiple chronic illness person. FS is second home too. I hear you loudly and clearly, am SOOOO over it. Last time was Monday this week. Had enough,need a break. Onwards and upwards girl..not much choice atm. At least beautiful Spring is on its way. 💕

Your literally my favourite KZreadr. You live such an interesting life ❤️❤️❤️❤️

Amy you inspire me i am in toronto canada just in hospital at 61 with heart and stomache acute problems. Thank u for your strengh. God bless you.💜

Oh my goodness that pink eyeshadow look is freaking awesome!

Awe love.... this video made me tear up when you were saying that you wished we could be here now when you needed us. I feel that way so many times as well. Well I know you don’t know me and we live on different continents but if you ever want to exchange numbers or emails I’d love to be able to help talk you through the hard stuff and we can help each other keep fighting too. You are such a sweet and beautiful person inside and out and I feel so blessed by coming across to your page ❤️❤️ so lovely following your stories so thank you so much for doing this for us. You’re so strong and amazing fighter!! ❤️

Happy to see you. Sad you’re not feeling 100%. Wish I could make your pain go away. I too have my own chronic illnesses and have pain all day everyday. I know the feeling. You want to cry, but need to be strong. Sending hugs. ❤️ and much love

Amy you are so strong! i am finally getting a blood pressure moniter on friday, after so long of suffering, STAY SAFE MY LOVE 💜💜💜💜💜💜

Hi doll. I've been watching your videos for ages and just wanted to sincerely thank you for shining light on the reality we go through. I have eds type 3, lupus, gastroparesis, diabetes, necrobiosis lipoidica, etc. I'm in the US in Kentucky & am having no progress in finding help. Some of the best places have straight up told me they just cannot help me. Anyway watching your videos helps me feel not so alone and less discouraged. I need to find help asap but I just wanted to take the time to thank you. I wish I had a way to talk to you one on one in chat form or something. So many questions just to try to help myself until I can find the true help I need. Anyway this comment is way too long as it is so sorry for rambling. Just please know you're helping people across the world. I love you hun. Take care~

@batfiend

4 жыл бұрын

I hope you can find the help you need. Stay strong!

@Tired_Panda_Zzz

3 жыл бұрын

Hi. I know you wrote this a year ago, but if you have any questions then feel free to message me on IG. I don't have many of your conditions, but I have gastroparesis, spinal cord defect, peripheral neuropathy as well as many more chronic illnesses and disabilities. I'm a full time electric wheelchair user too. So yeah, I don't post often, but I'm always here if you need advice/ need someone to talk to xxx

So sorry you are feeling bad hunnie, I know what it's like not sleeping... I have three little ones 6, and a set of 15 month old twins, they sleep but my fibromyalgia wakes me up all the time, last night I slept from 8pm till 115 am and I have been up since with pain, I also go back and forth with sweating and freezing cold while i am sleeping so I totally understand. Please dont every feel like you are alone. I and many other people are with you all the time, I always send you good vibes every night! You are part of my prayers every day🤗 here is a super gentle hug for you and know we all love you Amy hopefully sleep will come soon for you..

Hello friend 👋🏾🎈🧸 I have several rare conditions also... I spend alot of time between the hospital doctors appointments or home so I totally get it... I Im glad your procedure went well and I pray you start feeling back to your normal soon! Cheers to less pain less medical drama and more fun laughter in filled days!

Yayyy so glad to see you back! Hope you are feeling better.

Watching this after literally JUST getting home from the ER less than an hour ago and wow I've never related more to anything in my life than what our sweet Amy was saying about hospitals; I'm currently lying in my bed with a heating pad trying to deal with mad exhaustion and new flare that has been caused by going to the ER to deal with the symptoms of another different flare .. fucking chronic illness .. Love and spoons to everyone who sees this

Amy, I truly wish I could do something for you, just remember it won't last forever, you're strong and will get through this. Sending all my love and positive thoughts your way. Love you so much! ♥️♥️💖💖

That pink makeup look is on point!💗

Sometimes after I have anesthesia I end up getting the sweats and have a really rough time of trying to sleep after. Usually takes me about a week or two to shake it off. 💔 esp, after period. 😞 I really hope you feel better xx you’re not alone, so never think that. As for rushing to do uploads & apologizing (I saw your msg) don’t! You come first. Your health. Your body etc. I’m still recovering from my surgery from the 5th and it’s going to take until October till I’m semi human again... but I’ve had the sleep and sweat stuff on and off as well as just feeling meh. Sending well wishes and lots of love 💕

I love your makeup in the video ☺️☺️☺️ you're always so positive, I love your videos and posts on instagram ❤❤

Hi Amy,just wanted to say that I have a lot going on physically,and mentally,I love watching your vids and I wait very impatiently for your vids every week 😁😀❤💜💙💚💖

You are not alone sweetheart. I've going thru hell of my own & I send you my love.

I was in the hospital for almost four months with a small bowel blockage. I lost 50 pounds in that time frame and 12 inches of bowel. Now I’m having elevated ACT and AST and awaiting to see if they will still do a full hip replacement on July 22. I’m not sure if my numbers constitute putting off a much needed surgery. I have right hip dysplasia and end stage osteoarthritis so I’m in constant pain and walking causes my hip to bounce in and out. I’m sure my pain is nothing compared to yours. I love watching your videos and following your story. God bless and I pray your pain has lessened.

Sorry things are rough right now. Sending love!💙💙💙

I know it’s a little late since I’m just seeing this vlog but sending much love from the USA! I know how hard it is to sleep sometimes especially when your body doesn’t cooperate. Post on Instagram next time you need some love from your virtual fam! We got your back 💕💕💕

Loved the pink outfit and make-up combo!👌

Hope you’re feeling tons better beautiful! Sending you loads of love 💕❤️💕❤️ xxxx

Oh Amy, I hope you start to feel better. Those night sweats are terrible, I've had them before. You're doing your best & that's all you can do. I've often felt like you do about back and forth to the doctor or hospital or surgery...it wears you out. I know you're not big on the whole "God" concept, but I am and I'll be praying for you to feel better & stronger. I hate to see you feeling poorly. So glad you've got Tom and he has you. What a blessing ✨💕

Great things went as well as could be. So happy your home

Sending you a big virtual hug, hope you feel better really soon. Xxx

Just saw your video and your latest update. Will continue to follow you. You're a living story and I always hope for a happy ending. Stay strong.

Thank you for posting and I’m so glad you are doing better. Get lots of rest to get those blood numbers back up. You do look great and pink is a pretty color on you. Love, love, love to you 💜❤️💜❤️ And Happy Birthday to your sister 😊

If it’s a mini fridge the back part of the fridge will freeze if there not a lot of things in there. I do get some freezing when I don’t have a lot in the fridge at once. I just turn the freeze down one unit

Sorry you’re feeling so bad. May God Bless you

Much love sweetie sorry u r havin a hard time hope u start feeling better soon ♥

💖💖💖 was fridge high my fridge has frozen things and it was when temp was to high feel better soon you are a beautiful strong young woman we are here for you to talk to and you focus on you i know it cant be easy to vlog when feeling bad take it easy sending hugs from uk

Take it easy and recoup from the surgery. If you are having issues you may want to talk to the dr and see if they can help you. I have been thinking about you lately and been praying that things are good. Please take care.

You are so brave and so interesting to watch! Love your videos! Sending you love from Queensland and hope your feeling better 🤗

Girl you go through so much god bless and Tom is a sweetheart you are lucky you have him

One day the universe is gonna bless me so that I'm able to bless you... I've been watching your journey for a while and I can see how expensive it is. One day.

You're an amazing inspiration, I'm just wondering about your piercings and how you went with healing when you got them done, especially with your condition, could you do a tattoos and piercings video please?

Pleased to hear that you are feeling better xx

wishing you all the best and sending lots of love :)

Xoxoxo sweetie! Worried that you're not feeling well. Praying for you and sending loads of hugs! ❤️Rest!!

I think I can speak for most of your subscribers but if you ever need to talk to someone like you said that you did I’m sure anyone on here would be honoured to help!! ( stay strong girly your the best! ) ❤️

You are so strong. I get sweats I hate them and sleeping can be so hard.

Sending love and hugs.. Im sorry your going threw this..

i hope you're doing a it better by now. you deserve a break

Always sending my thoughts and prayers sweetheart❣

I liked your Tuesday makeup w/ the pink sweater...cute😍

Hey Amy, I am on the same pain patch as you but I am on 35mg and I get really bad night sweats with them so it may be just your body reacting to that, just thought I would let you know that could be why. X

@virginiawheeler1494

4 жыл бұрын

What pain patch? I’m on Buprenorphine 20 mcg/hour.

You are excellent at explaining medical problems

Hope you are feeling better! Night sweats without an associated fever can be from excess fluid. It happens to me often and my doctor said it is likely due to the fluid I retain. Hope that helps!

Dear Beautiful Amy, I can relate to what you are saying about the horrible night sweats and the malaise they cause!!! Please get more REST for your body to recover from these times!!! That is my main concern for you...that you are not resting enough!!! Your body is GOING THROUGH SO SO SO MUCH WITH THE HEALING FROM THE HIP SURGURY AND ALL THE ONGOING ASSALTS THAT COME WITH YOUR ILLNESSES!!! Those night seeats are like taking a bath in your own "bodie's water" and PJs and bed sheets...so draining of energy and FLUIDS!!! I WORRY FOR YOU, as i do about myself when this happens to me, about a viral or bacterial infection or an imbalance of nutients (???) that the body is trying to flush out?!?! I FEEL AND KNOW YOUR MENTAL FATIGUE FROM THIS STRESS OF NOT KNOWING WHY along with EBERYTHING ELSE!!! I feel your pain and gripping confusion about this exhosting night body storms, drenching "bathes"! Have you BEGGED your DOCTORS for a REASON for this? Have you told them how draining, exhosting and worrisome they are? My body goes through this at times. I have severe gastroparisis and illnesses very similar...the formulas kerping me alive etc. and SO JUST WANT TO EAT NORMAL HEALTHY FOOD AGAIN!!! But my body would do this at times even befor the extreme gastroparisis began... I wish i could give you more comfort in dealing with this!!!♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡ Please know I'm sending LOVE to YOU DEAR LOVELY ONE!!!♡♡♡♡♡♡♡♡♡♡♡♡ I PRAY THIS ALL GETS BETTER SOON!!! BUT FOR NOW, GIVE YOUR BODY THE REST YES REST THAT IT NEEDS! ! ! ! AND DO NOT FEEL GUILT OR SHAME FOR ALLOWINH YOUR BODY THIS VERY E S S E N T I AL MEDICINE CALLED R E S T! ! ! ! ! ! ! I'm 60 years old now....have gone through so so so much and regret not allowing my body the rest it truly needed. I pushed myself too hard and became much worse because i didn't give my body the healing time ...the cleansing tecovery time it needed to right itself to its best potential after times of great body stress like the hip surgery!!! That was such a major MAJOR CRISIS for your already struggling body!!! So, i love and respect you so much for pushing for the best & fastest recovery, but my intuition tells me, AMY NEEDS TO SLOW DOWN AND REST AND ALLOW HER BODY THE ENERGY TO FOCUS ON HEALING RATHER THAN FEARING POOR GRADES FROM THE HARSH SCHOOL OF LIFE!!! You are allowed to have radical vacation of recuperation!!! Too much is going on at once for you to rest and recover properly, is what I truly feel. With the GREATEST LOVE and RESPECT for YOU!!!♡♡♡♡♡♡♡ YOU MUST NOT FEEL DEFEAT FOR ALLOWING AS MUCH REST AS YOUR BODY IS BEGGING FOR!!! LOVE LOVE LOVE TO YOU!!! I hope I've said helpful things for you !!!♡♡♡♡♡♡♡♡♡♡♡♡♡ LOVE YOU!!!♡♡♡♡♡♡♡♡♡ (Sorry for repeating myself so much, but i really do love you and hope and pray you feel no guilt for getting some extreme REST NOW! YOU have inspired and helped so many....time for a bit of JUST YOU HEALING from major surgury!!!)

some of my TPN froze when i got a new fridge and accidentally set it to way too low of a temperature haha and i was told not to use it! i can’t remember exactly what they said, but they were worried about something to do with the filter, what to do if an icy chunk were to get in the tubing, and they weren’t sure if/how the formulation of the TPN would change after freezing, if that makes sense? sending you loads of love!💛

Amy, I understand and don't blame you Hospitals are not fun.🙏 for you and hospital princess, Mary Frey and all who are chronically ill. You amaze me all of you who can be sick and still find it to be kind. I didn’t start to get sick until I was 50 and had colon cancer now I have chronic pain and a number of autoimmune diseases, I’m 70 years old and wheelchair-bound but you guys keep me going You don’t complain your informative and your beautiful I pray for you and Thomas to. have a long happy life together. I’ve been married to my husband my soulmate for 53 years, he’s is insulin-requiring juvenile diabetic, And I’m low blood sugars and high blood sugars like as high as 900 to low as under 20. Now he takes care of me and it’s hard because I was always was the caregiver and it’s hard to accept that I need help, he’s wonderful but it’s hard to accept help for me. 🙏💙💫

One crutch is also sensible when out of the house for safety as well.

Get well soon girl I will pray for you Amy 🙏🤞🥺

I hope you feeling better !!!

The best thing I did for night sweats was to keep a cold pack and ice water in a lunch box cooler next to my bed. That way when I woke up sweating I had something to help instantly cool me down. I hope this helps.💗

@kecrn4132

4 жыл бұрын

Betty Armontrout - that’s interesting.... I am freezing when I get the night sweats!! I can’t imagine ice!!!

Get well soon

I hope you feel better miss lady!

Not doing well today either. Hope you start to feel better hun.

Hey beautiful, you’ve probably been asked before but what editing program do you use? I’m a army veteran with ptsd who just bought a house and about to get a dog to get train trained as a service dog so I have a lot of exciting things going on and I think I’m going to blog about them. I’m going to blog about decorating, the puppy, ptsd, army life, my mental health struggles, my eating disorder past and now post traumatic growth and university next year. I find you very inspiring keep up the great work.

I pray you start feeling better.

Big hugs💕

Amy, you look wonderful in that shade of pink. I'm so sorry you're on The struggle bus right now and i really do hope everything gets better.

@karamason7605

4 жыл бұрын

Amy always looks so beautiful and I have to admit that I really look forward to how and what colours she be wearing today. A few months ago Amy talked abot a banana mask/conditioner.....well the next day I went on the hunt for it. And it truly is amazing and smells good enough to eat.

I'm glad everything went okay foryou

you are an angel. get well soon! xo

You're such an amazing person

Makeup on fleek

Girly, just post on your insta story if you need some love

Love you amy feel better

Can you make a video about how you’re able to keep the jewelry in your piercings for procedures and imaging? I can’t take mine out either but no one understands that, so I always end up having to take them out and then repiercing them and starting the healing process over and dealing with the complications that come along with that. I wasn’t even aware there was a way I could keep them in for these things

Hope your doing better ❤️

I don't have gastroparesis, but I have type 1 diabetes so i totally understand your view on going into the hospital! Like yes, you are technically better when you leave, but it's not a "one and done" deal and you're not "cured", since it's a chronic illness.

I LOVE your nails!

I sometimes find things freeze in the fridge if the fridge is set a little too low and then things are against the side or back.

You are a warrior!❤️

Hospital is the worst place to get well mentally in my opinion I was there for asthma with nebs every 3 hours including over night another bed on a different time every 4 hours plus observations every 4 hours or so. So have had no sleep for days and I'm so tired

I just had food that froze in our fridge and our freezer is a completely separate door just adjust the temp and maybe keep a few thermometers in there to monitor the temps

Tall like a beanstalk 😂 wasn't expecting to laugh out loud

I love your videos 💕💕

Night sweats are worsened by Duloxetin.I’ve been taking that for quite a few years now and this is the only side effect I have :(

Not TPN but the fridge in my garage always freezes any liquid in there. Whether that be water, soda’s etc. I’ve literally tried everything to fix it but nothing worked. But the fridge settings might be to low and that’s what causing your TPN to start slightly freezing. Hope this helps! Also hoping your hip is doing better, I see from the vlogs your starting to walk around your house! Also about the night sweats, I 100% know what you mean when you say it’s not like sweat from working out. I’m on pretty high pain meds (chronic pain disorder) and ever since I started them I get super hot at night and even when it’s 64 degree I still get night sweats. I sometimes sleep with an ice pack behind my neck cause it helps cool me down! Anyways hope some of these help! Love from California 💜💜💜💜

Good luck!

Hi Amy,me again just wanted to ask for tips. Cause I've been recently diagnosed with a digestion disorder,and I'm going to start treatment cause my spleen isn't working and my whole digestive system isn't normal. And I wanted to ask for any tips cause I'm nervous for treatment,the doctor said it will get worse before it gets better

Ligit wanna be come a doctor so I can somehow cure everything it breaks my heart when I see anyone suffering and am so sorry for the bad things you go through my love is with you 24/7 💜

Hi! I just found your channels and I've been binging your videos and I just love your content 💕 For some reason KZread recommend your channels after I've been watching a lot of Harry Potter videos :D I hope you are doing well ☺️

"You're so tall..like a beanstalk!" LOL

Great video! I was watching one of your older videos and you said you were on duloxine? Are you still on it? If you feel comfortable I would love if you talked about your meds bc so many of us are on the same ones. I would love to hear your opinion.