Listening from South East Cornwall.

After 2 years of tingling in my feet, which began to occur when I pressed anywhere on my back. Fatigue after sleep, cold feet and legs, dry skin, stomach cramps that felt like I was being clawed from the inside and now upper back pain that doesn’t go away- I was diagnosed with this. I had already seen orthopaedic surgeon and neurologist finally saw a rheumatologist and within 20 minutes he told me this what I have. I don’t have any primary conditions. However my childhood was extremely traumatic.

@TheRheumatologyPhysio

3 ай бұрын

I hope everything can move forwards for you now!

Thank you, I’m watching from Australia, I can hear you load and clear 🇦🇺🐨 I’ve recently been diagnosed with fibromyalgia. I believe I’ve had fibromyalgia for years, I’ve had a number of injuries,and when my fibromyalgia flares up, the pain goes to those areas. Sleep is bad, fatigue is the worse . It’s a frustrating condition because, I look well, even when my pain is really bad. Thanks again, I appreciate your talk on fibromyalgia, Its very helpful.

@TheRheumatologyPhysio

7 ай бұрын

Thank you, I hope things improve for you soon!

Very informative 👏, thx for sharing

@TheRheumatologyPhysio

7 ай бұрын

Glad it was helpful!

Ontario Canada 🇨🇦

Yes from Napoleon Ohio

As you are UK based I leave a comment - I am 63 this year have had Pneumonia in Aug. 2018 after having been going to my GP for over a year (usually about every 3 month) with chest infections - given antibiotics and send on my Way! The infection kept returning. August 2018 I took myself to the A&E - to be told that I have 104 fever, both lungs were 3/4 infected and I have had pneumonia for quite some time. And have to stay in Hospital for at least a week - intravenous and oral antibiotics. And am left with COPD now. Up until lockdown I was doing ok after scaling down to part time work. April 2020 I had a flare up and have never been the same since !!!! My Pilates Coach noticed that I now often cancel sessions at short notice and asked me what was up. She has been a coach for over 2 decades and after I rolled of the long list of what up with me for the past 2.5 years she said it sounds like Fybro. Again I have been seeing the GP's for 2 years have had every test twice over and they all come back fine. But I am not fine, I am a former shadow of myself but the GP's seem to think I am making this all up!!! One even said - Well, we have no Idea were your pain comes from. FYI; My Pilates Coach had only mention Fybro to me just recently but I am not sure if I can say this to these GP's they are already making me fell like a hypochondriac. Even though I keep saying this is physical and not just in my Head !!!

@TheRheumatologyPhysio

6 ай бұрын

I offer appointments if needed. More information here: chewshealth.co.uk/Rheumatology Unfortunately your experience is not uncommon 😞

Australia

So you get it RA is from fibromyalgia

@TheRheumatologyPhysio

8 ай бұрын

I dont understand the question sorry