"They don't see the preparations, they don't see the aftermath." This. This, so much. I think it might be why at least I, and others in my position that I have talked to, struggle to get proper healthcare. They don't see anything in the scans and the tests. They just see the window where I am calm, well spoken and is functioning enough to sit in a chair and explain how hard something they can't see is. They don't see how it took me days to prepare and how I the day after will lie in bed and be physically unable to lift my arms. Everyone who treat people with Long Covid should watch this.

@RUNDMC1

3 жыл бұрын

Exactly, Kat!

@Beekind799

3 жыл бұрын

you have to heal the holes in the gut first with slippery elm bark powder take a heaped tea spoon ina glass of warm water 15minutes before food it takes about ten days to heal the holes in the gut then take 18mg ivm and 50mg zinc daily for 4 days ina row then take this to address the low atp levels the reason your immune system uses cytokine storms take this 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 kelp tablets morn/eve - 1 x 1500mg caps quercetin/bromelain this is the worlds most powerful superfoods the quercetin/bromelain isa vital part of this healing protocol it mkaes sure its all fully digested and the levels rocket you regain your health faster ,covid long hauleres donot need to watch this video what they need to do is make contact with me and i will send them this protocol ,its the fastest way on earth to safely raise the atp levels ,this protocol is absolutely complete,nothing else is needed ,when the gut is healed and you take the ivm and zinc most get a wonderful result in a bout 12 hours ,

@lovesdogs8616

3 жыл бұрын

So true, the out of sight out of mind thing. Everytime I believe I am done with it, it comes back for a visit.BUT, I do feel fatigue is most prominent, unable to regulate, I have this for years, think it is Lyme. Then got Covid. Fatigue, well, you just sleep. You need help to survive. You need God. You need time. What we have here is a person that was very well and now understands chronic illness. Perhaps when he fully recovers, he will continue to help the entire community in practice. Yes, the fatigue is bone breaking. I push myself, but when you cant, you dont and we all know that impossible zone. Enter Dreamland.

@Beekind799

3 жыл бұрын

@@lovesdogs8616 your problems all started with low glutathione levels which cause the atp levels to fall,thats a weak immune system that cant expel dead virus particles from your system,its that which is keeping you stuck in sickness,if you dont have an auto immune condition caused by leaking gut syndrome,that has to be healed first with slippery elm bark powder that takes ten days,if no auto immune condition take this please 18mg ivermectin and 50mg zinc daily for 4 days in a row it will clear the dead virus particles out of your system and calm the immune system down,most post viral suffereres get a fantastic result about 12 hours after taking the ivm and zinc then they take this to address the reason the weak immune system cant expel the dead virus particles from your system take 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2kelp tablets morn/eve - 1 x 1500 mg caps quercetin/bromelain morn/eve this protocl is absolutely complete,its designed to over turn all post viral conditions safely,the quercetin/bromelain is a vital part of this healing protocol,so many are trapped in a vicious circle because they dont understand whats going on in their own bodies,the low atp levels has decreased the digestive enzyme levels they cant digest the stuff they are taking to try and recover the quercetin/bromelain breaks that vicious circle and the levels rise faster and you regain your health faster,send me a thumbs up when you are bursting with energy,it wont take long

@daisydora724

3 жыл бұрын

@@Beekind799 Can I ask what you do if you already have autoimmune condition as in Hashomotos?

Another ME/CFS symptom can be intolerance of (especially loud) sounds or music or the presence of too many people in a room. Multiple stimuli can be a nightmare causing confusion, irritability and exhaustion. Pacing involves being aware all of these things and essential for any quality of life.

@NatashaDiedricks

2 жыл бұрын

I have the same symptoms post Covid. Another similarity between the two.

@magaretmclaughlin6086

2 жыл бұрын

Yes, I experience my new low level of noise tolerance and am grateful you mentioned it. Thank you. I feel the more we share our experiences, the better we can implement data of symptoms, perhaps not yet publicly significant enough to be recognised. I found this interview extremely helpful and am so grateful for such a willingness to offer it.

@SweetiePieTweety

2 жыл бұрын

Developmental Sensory Issues. Now just imagine….IF this dynamic occurred during the very young developmental stage of a child’s life, say the first 18 months, all these symptoms would potentially present as signs and symptoms and developmental learning challenges associated with Autism. But no one wants to go THERE! But as a mom who developed this ME/CFS Mast Cell Storm at the same time her boys “developed” autism signs and symptoms and we all kinda developed autism presents together where none existed prior then I can’t help but ponder 🤷‍♀️. I can imagine the rise of autism number potentially coincide with the rise of ME/CFS in the general population. Research TILT by C. Moore. I tilted. I believe my boys diagnosed autism did they same at the same time. Post viral. Possibly a percentage are genetically pre dispositioned to this dynamic but it takes a tilt of viral/bacterial/environmental sure trigger

@gillywillybythesea

3 ай бұрын

Interesting. There's definitely a link between ME/CFS and autism/ADHD. Shall look it up. Thanks!

I just want to express my thanks for this video, especially to the two speakers who may well suffer afterwards but I hope not. I could not agree more - covid is a virus and yes it may affect some organs in some of us, maybe because it's more nasty, but it still is a virus and I see myself as a post viral fatigue sufferer and long covider. Given there are so many of us now I actually hope that we will raise awareness and thus help previous ME sufferers by gaining research and exposure. They were ignored for too long and we are in it together.

@lovesdogs8616

3 жыл бұрын

Exactly, its the body not liking something. I think its all viral.

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

I wish my GP would watch this! I was advised to do GET and engage with CBT just 2 days ago. When I mentioned my heart rate rises to 120 bpm on standing he dismissed it as anxiety. Hopefully such articulate advocacy will eventually filter down soon. And of course thanks for all your doing, a literal lifeline.

@RUNDMC1

3 жыл бұрын

Classic POTS too - this is really bad from your GP. Our next film will cover this subject in detail!

@stephenhocking9467

3 жыл бұрын

Yes was disappointed to say the least. I’m looking forward to the next one.

@tessgirl383

3 жыл бұрын

@@stephenhocking9467 mine comes & goes . It can be fine for a while is yours always like that ?

@stephenhocking9467

3 жыл бұрын

My POTS is constant but of varying severity. If I’m crashing then it’s definitely much worse.

@tessgirl383

3 жыл бұрын

@@stephenhocking9467 can I ask what your crashes are like

Well I'm very sorry that the doctor s have fallen ill, I do feel validated that my chronic fatigue, long Covid and all the rest, are finally getting medical attention. Because the doctors are credible sources, they are taken seriously.... Unlike the thousands of sufferers without a medical degree. Thank you Jez, for being the light at the end of my tunnel! I'm so happy to find out you're not a train, lol.

@HauntedHawker

2 жыл бұрын

I wish I could get everyone I know to watch this, not only my doctors. I wish I could believe it for myself.

@SweetiePieTweety

2 жыл бұрын

I have always said if the world had to live with this for a year or two then all the naysayers within positions of power (medical, legal, aid, families, workplaces) then the narrative and research would change. And along comes Covid 🤷‍♀️

@MK-gy1ug

Жыл бұрын

@ Laura Bauman How are u feeling today with long Covid fatigue?

The 72 hour cycle is what makes it so hard to establish what the triggers are on an individual level.

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

I am going through this as well and was diagnosed years ago with CFS. It is terrible because no one understands how debilitating this disorder is. I find myself with no support as I was always the caretaker of everyone else. Unfortunately, I have been abandoned by 'friends' and family (even I do not ask them for anything...it seems they do not like 'unwell' me as I am of no use to them anymore.)

@SweetiePieTweety

2 жыл бұрын

Truth! Same. I was even deemed unfit to remarry in the Catholic Church because I am unable to fulfill my wife and motherly “duties”. Unreal. So much for “In sickness and in health”🙄🙄🙄. The people within our private Catholic school tight community stepped back and away like I had the plague now that I was no longer “able” to attend mass and functions and serve the community. Couldn’t even get a meal delivered or carpool for my kids 🤷‍♀️. Needless to say, that organization holds no truths. Wishing you well ❤️

@j.a.fligor97

Жыл бұрын

@@SweetiePieTweety Should have left it long ago. Now you know.

I’ve had ME/CFS for 23 years and have found very little help within the medical profession beyond the diagnosis. My GP was supportive and sympathetic but had no practical advice. However his initial description of it as starting everything from physical exertion to illness symptoms from a position of physical bankruptcy reassured me he knew exactly what it was like. Much of my help came from a homeopath, an osteopath and my own research looking for boosts for immune systems. I was not given tests for vitamin or mineral deficiency and am grateful to COVID for the lateral thought we now see on management and treatment. Listening to this is so validating snd so familiar, thank you Dr Marsh, we need more spokesmen like you.

Thank you Ben and Asad for your time and energy in doing this, and Gez for your continued efforts.

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

I don't seem to have any PEM. My fatigue can disappear for weeks and then reappear. But honestly, it's nowhere near as bad as it was last summer. Last summers fatigue made it really hard to even try and get dressed.

@teddybearroosevelt1847

9 ай бұрын

How are you doing now?

To describe ME/CFS as only fatigue related shows an ignorance of the condition which typifies the deafness sufferers have experienced to their symptoms and problems. Thank you both for recognising that there is more too it.

@brobinson8614

2 жыл бұрын

Jan, That’s one of the best comments about the misunderstanding of ME/CFS I’ve read in a while

I have Long Covid and my remaining symptoms are the same as what this discussion covers. Thank you for sharing this.

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

@sixpackbinky

Жыл бұрын

Mine are exactly like his except the headaches but my eyes are affected, they hurt and get infected instead of headaches

Thank you to both of these doctors for giving up their time and energy in order to provide further understanding of the physiological basis of ME/CFS, and long covid, and the dangers of graded exercise therapy.

Hopefully the answers of Long Covid can help the people that have been suffering for years. We could see millions of people helped if they find out how to treat us.

@samlloyd672

3 жыл бұрын

The only way to be “treated” is to completely change your lifestyle and what you eat. There will never be some magic prescription. The long covid problem is systemic and complex rooted in inflammation and other chronic infections.

@robinhood4640

3 жыл бұрын

I have been hoping for this too. What i find concerning is the not wanting the two groups to be considered as having the same problems. Separating the two groups is not good news. Long haulers have a real problem, it's because of the virus and the other group, still don't actually have a problem, it is all in their head. Maybe the answer is to pretend to have had coronavirus to be finally taken seriously.

@Beekind799

3 жыл бұрын

you have low glutathione levels which pulled down the atp levels,thats why your immune system doesnot work,its the same for all post viral conditions,if you dont have an auto immune condition caused by leaking gut syndrome take this ,18mg ivermectin and 50mg zinc daily for 4 days in a row,most recover about 12 hours after the first dose of ivm and zinc ,now you have to address the reason your immune system spits out cytokine storms the low atp levels take this 2 x 600mg caps n.a.c. morn/eve - 1 x 1000mg caps cod liver oil - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve you take this with food,the quercetin/bromelain will make sure its all fully digested,with low atp levels it decreases digestive enzymes ,its like a vicious circle quercetin/bromelain will break that vicious cycle,i have treated recently a woman with m/e and cfs for over 30 years,she done this and fully regained her health in a week,

@Beekind799

3 жыл бұрын

@@samlloyd672 i can tell you exactly how to heal long covid ,you have low atp levels caused by low glutathione levels ,if you want the protocol message me,i have shown thousands how to very easily over come long covid,

@Beekind799

3 жыл бұрын

@@robinhood4640 all post viral conditions have a single root cause,low glutathione levels causing low atp levels,thats a weak immune system taht cant expel virus particles that can keep you stuck in sickness for all of your life,its easily healed in less than ten days,years of misery ended ,i donot like doctors

The emotional connection is vastly over looked and disregarded. I had an emotional event in January that set off a cascade of symptoms for over two months I was debellated every attempt to gain upright posture resulted in relapse. It was hard to get up enough collected fortitude to call in sick for work. I know that sounds funny and it truly is if it weren't absolutely for real I would not believe it myself so I appreciate all those who have humored me with my condition though they don't believe the litany of my complaints. My worry is the increase pull of gravity on me during fatigue episodes... this is accompanied by time delusions where it seems clocks stop and lose synchronization, run backwards as pain hits it's horrid crescendo, very inconvenient for setting a schedule when my own internal clock is out of step.

@joaitken

3 жыл бұрын

"The increase pull of gravity" - a brilliant phrase. Along with "wading through water while inhaling chloroform"

@odeszarules5125

3 жыл бұрын

Adrenal fatigue

@janswimwild

3 жыл бұрын

Such a brilliant description!

@headfullofmusic422

2 жыл бұрын

can only second this. got covid late december, just after i left my bed after two weeks with mild symptoms, i lost a brilliant friend of mine in a tragic accident. the first two months after that even i was a mixture of numb and hyper. it was only in march when the long covid symptoms aka fatigue adn dereaslisation kicked in, as well as breathing problems. i blamed the event entirely and forgot about covid mess. now at 6 months i have the worst releapse ever, bed bound and problems with blood circulation/dizziness. i will follow all the great tips, go to acupuncture, sacro caral therapy and see what happens. we will be fine, but we got to have patience

@MrDogonjon

2 жыл бұрын

@@headfullofmusic422 I learned a new phrase... Low Vagal tone...caused by chronic infection... sounds a lot like some of my symptoms... Vagal nerve stimulation ( lateral eye movement exercises) help...the gut/ brain connection I suspected goes through our eyeball sockets (conveniently explaining how our eyes can be bigger than our stomach) balances our immune responses and all internal metabolisms. Deep Fasting, gentile yoga, breathing, singing/ chanting/ gargling, light meditation... make a difference

Covid is tragic with the deaths it caused. For ME/ CFS and Dysautonomia sufferers it has made that tons of money is being distributed to medical studies. It's a game changer for us who have been suffering with this for a long time.

I'm not even 10 minutes in and I'm ready to burst into tears. I'm feeling hopeless. I don't want the rest of my life to be having to pay for any exertion. It's summertime here and I love to swim. I end up wiped out for 24-36 hours just from leaving my house. 🥺

@RUNDMC1

3 жыл бұрын

So sorry to hear that Linda :(

@IamLinda_

3 жыл бұрын

@@RUNDMC1 thank you. How have you been doing?

@Beekind799

3 жыл бұрын

if you have a auto immune condition the gut has to be healed first with slippery elm bark it takes about ten days to heal the holes in the gut,if you dont have an auto immune condition take this please 18mg ivermectin and 50mg zinc daily for 4 days in a row then take exactly this and in about ten days when you are bursting with energy send me a thumbs up,this healing protocol is absolutely complete nothing else is required take 2 x 600mg caps n.a.c.morn/eve 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve take this with food the quercetin/bromelain plays a vital part in this healing protocl,you are trappen in a vicous circle you dont understand the low atp levels has decreased the digestive enzyme levels ,people are taking this and that and cant recover they havenot got the digestive enzymes because of the low atp,the querectin/bromealin breaks the vicious circle and the energy levels will rocket ,please dont cry i have reached out to you,i have healed many athletes,they thought their diet was good,its gm food its toxic it has no glutathione levels

@tessgirl383

3 жыл бұрын

You won’t most post viral fatigue will fix it’s self . How long have you had LC

@Beekind799

3 жыл бұрын

@@tessgirl383 dont talk rubbish,i have healed post viral conditions that have been in place for over 30 years,to heal post viral conditions you have to know hat causes it,all post viral conditions are kept in place by low atp levels ,if they dont raise the atp levels they will have the post viral condition for ever,how do you heal post viral conditions,you dont speak to a doctor about post viral conditions,they are idiots,they treat the symptoms,if you realy want to know how to heal the body speak to a biological systems engineer fully trained on the 5 box immune system,you do realize post viral conditions can kill you,most post viral conditions can be healed in days if they dont have an auto immune condition taht has to be healed first ,if they dont have an auto immune condition they can take 18mg ivermectin and 50mg zinc daily for 4 days in a row,most get a fantastic result about 12 hours after taking the first dose of ivm and zinc then they have to address the reason their immune system uses cytokine storms the low atp levels take 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve this is to be taken with food the quercetin/bromelain plays a vital part in this healing protocol,people are taking this and that they dont realize the low atp levels has decreased the digestive enzyme levels they cant digest the stuff theya re taking so many are trapped in this vicious circle ,quercetin/bromelain breaks that vicious circle and the energy levels rocket ,donot take ivermectin without zinc it wont work properly

I have had long haulers since March. Ive been doing Lots and lots of research on how to get well, or atleast feel somewhat better. Acupuncture has really made a difference for me. I've been there 6 times so far and my body aches have gotten so much better, also my sleep has improved. It also helped with the brain fog! Still working on the energy and my episodes of "crashing". I've also taken 2 doses of ivermectin. I've heard that it has been effective towards getting rid of long haulers. There is a big difference between now and March in how I feel! I just thought I would share what I've been doing incase someone else is looking for suggestions.

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

@boxerdogmum583

2 жыл бұрын

Well done. Keep going. You’ve got this! ❤️

@alexlee8639

2 жыл бұрын

How have you taken the ivermectin, and who prescribed it to you?

@babylovewilliams6918

2 жыл бұрын

@@alexlee8639 I took it by mouth with some peanut butter. The taste is pretty bad. I just bought it fleet farm, a store that sells animal products etc. I bought it for 3.78. Yes, it's that cheap. I took a dose for a person of 200 lbs. Watch the self sufficient momma. She has a video on how to take, and how much etc.

@alexlee8639

2 жыл бұрын

@@babylovewilliams6918 you took the ivermectin for animals?

I actually couldn’t watch this after the first 7 minutes. I feel so bad for this doctor, and it was really good of him to do this video. But i need hope. I need to see videos of people who recovered.

@FionaEm

2 жыл бұрын

The reality is that only around 5 per cent of people with ME/CFS recover. Dr Marsh isn't being negative. He's simply describing the reality of living with this condition & how best to manage it until effective treatments come along.

@boxerdogmum583

2 жыл бұрын

@@FionaEm I’ve read that statistic too but I don’t believe it. Where does it even come from? Who is keeping track of those who have recovered? I believe it’s like the 4 minute mile - once you believe it’s possible, that mindset will help you recover. Mindset alone isn’t enough, but not believing that recovery is likely will certainly hinder you. I know what a horrible illness this is. It really wears you down and tries to steal your hope. I’d like to send positive vibes to everyone with long covid / ME/CFS. I’m almost recovered now, 16 months after my initial illness and 5 months after getting an NLP coach to help with my mindset. Good luck everyone. We can do this. ❤️

I’ve been quite familiar with these symptoms over the past 20+ years.

@joannerance3817

3 жыл бұрын

Thank you, very informative. Hopefully with long covid there will be greater awareness and research into post viral conditions.

@boxerdogmum583

2 жыл бұрын

❤️

@labradormom3656

2 жыл бұрын

Me too. 14 years. I knew we’d see an explosion of post viral illness cases with Covid. A novel virus being caught by so many all at once.

Another excellent discussion and thank you again to all involved. I really don’t know how I would of survived the last 9 months of Long Covid without watching your channel Gez. The video’s have been a fantastic source of information and support to me. In fact the only information and support I’ve had!! Thank you so much for everything you have done and are continuing to do. 😊

@RUNDMC1

3 жыл бұрын

It’s a pleasure Donna!

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

@EllaSloman

2 жыл бұрын

Yes I agree , your videos are excellent.

Thank-you Ben and Asad for this interview. After 20 yers of this illness I just hope we can prevent so many others from suffering the same fate. Until we can find viable treatments, pacing is key.

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

Thank you for this...I am a 51 years old woman from Finland and I have suffered from a very severe cfs/me over 21 years and just been laying on my sofa alone trying to stay alive. My neck was broken and I also had pneumonia after a car accident in 1999...my fatigue and other symptoms started soon after that and never been okey since then. I used to be a competitive athlete before that.

@nobleargent6823

3 жыл бұрын

Have you looked at the links between craniocervical instability and M.E? Might be worth exploring with your history of neck injury. me-pedia.org/wiki/Craniocervical_instability jenbrea.medium.com/cci-tethered-cord-series-e1e098b5edf

@DanielleLegacy

3 жыл бұрын

I'm so sorry. Prayers for your full recovery and hope for that.

@lamel1781

3 жыл бұрын

May be this could help you even after 21 years. Ivermectin has been used as an-parasitic but has shown in over 100 studies to be a potent anti-viral, anti-microbial, immune-modulator and anti-inflammatory in the last 50 years. This is the only medication which helps long Covid! Don’t believe the disinformation about it in relation to Covid 19. Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

@DanielleLegacy

2 жыл бұрын

Have you tried Ultraviolet Blood Irradiation? With ozone therapy? I've been researching it and getting my first treatment soon for long Covid with ME/CFS symptoms. I just got the book Invisible Cure & I'm hopeful!

@AnitraCajander

2 жыл бұрын

@@nobleargent6823 thanks for the links. yes I am aware of that but it is very frustrating because I don't have money for private doctor and I haven't met any doctor in the public health care...not even private doctors know much about cfs over here and if they do they only speak about GET therapy . The only positive thing has been that a private doctor read about low dose naltrexone because I actually forced hime to and he finally prescribed it last year and that is very rare here in Finland. It has helped for my severe cognitive fatigue...without it I wouldn't be even writing this. If I one day meet a doctor that is willing to listen I will talk about that for sure :)

Thank you so very much for raising awareness towards these problems. Especially the mechanism of PEM and the harm which can be caused by GET need to be explained over and over again. I am so grateful you emphasized the many proofs there are that ME/CFS is real physical illness. Thanks to the three of you and best wishes to all fellow sufferers around the world of this horribly debilitating and deteriorating illness. 🙏

@RUNDMC1

2 жыл бұрын

Thanks Hummel!

Thanks for sharing! It's very shocking but instructional to see Dr Marsh sometimes struggling with the words, the message he wants to share. I don't think that he was so "slow" before long COVID.

Thank you for this interview! It is so debilitating to experience these symptoms and to have them acknowledged and understood is helpful.

@Beekind799

3 жыл бұрын

long covid is very easily healed,if you want the protocol message me,i do it for free

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

He had 12 months after the initial viral illness during which he was able to function normally at a high level. In my case I only had about 7 weeks where I was able to function, but all the while feeling that something was very wrong. My timeline as follows: End of FEB 2020: Flu-like illness, after 4 days recovered 2 Days later: Sudden insomnia, feeling unwell again Next 4-5 weeks: Lots of fatigue, malaise, other dysautonomia symptoms Following 6-7 weeks: Partly back to office, gradual improvements, but still poor sleep and other symptoms Then I crashed with severe insomnia, worse dysautonomia, PEM, the whole lot...... Now 2.5 years later I'm a little better, but far from recovered.

Hello all, am an M. E. sufferer for the last 21 years and as of April 2020 covid long hauler as well, since it was a nice afternoon I thought i'l have a little walk(nicely paced) down to the shops, I am back now, feeling nauseous, fatigued and shivering just as I was 14 months ago, given my own experiences with both for the last 2 decades, I am now firmly of the opinion that both of these diseases stem from viral persistince. PS. Thank you Gez,

@Beekind799

3 жыл бұрын

all post viral conditions have a single cause,they are easily healed,a doctor cant tell you how to heal the immune system ,i can if you message me i will tell you exactly how to regain your health

@barbarateresarhiannonsreal1756

3 жыл бұрын

@@Beekind799 email address please.

@Jablicek

3 жыл бұрын

@@Beekind799 Now, repeat after me: "This is a scam. I'm trying to sell a scam."

@Beekind799

3 жыл бұрын

@@Jablicek try telling that to the 1000s that have fully healed using the protocol i designed,are you a stupid md doctor,

@Beekind799

3 жыл бұрын

@@barbarateresarhiannonsreal1756 i dont give out my email address on you tube ,but i wll tell you exactly how to regain your health ,if you have an auto immune condition the holes in the gut have to be healed first if no auto immune condition,take this please 18mg ivm and 50mg zinc daily for 4 days in a row most geta fantasttic result about 12 hours fter taking he first dose of ivm and zinc then take this to address the reason your immune system uses cytokine storms the low atp levels take this 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 kelp tablets morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve you take this with food the quercetin/bromelain is a vital part of this healing protocol,so may are trying to raise the levels up and are taking this and that they simply dont understand that the low atp levels has caused low digestive enzyme levels they cant digest the stuff they are taking thjis is where the quercetin/bromelain absolutely shines,it makes sure its all fully digested and the levels rocket you regain the health faster ,it seems to be the missing link for so many ,the root cause of all post viral conditions is low atp levels

Get a Garmin watch. It helps you read the "body Battery" and indicate stress Level. For me a game changer as it helps me to not over do things. I have alarms on heart rate and when I achieved 3000steps I make sure I stop to not get hit with post exercsion malaise!

@lucyilly428

10 ай бұрын

I do this too. The visible app is releasing a polar arm band that measures HR and HR variability all day. It will apparently tell you when to rest etc. designed for long covid ME/CFs. Have you heard of it?

@martinepeters9891

26 күн бұрын

I have a Garmin too and it's a game changer.

Thank you Dr. Marsh For your courageous presentation. Dr. Kahn, your questions were excellent, and as always thank you, Gez, For your unrelenting efforts at keeping us informed.

Being a sufferer of CFIDS I have been thinking about a pathogen or , vaccines triggering similar symptoms as long Covid. Inflammation could be the the common denominator causing other illnesses.

@jeffs9266

2 жыл бұрын

I had Covid (mild) March 2021, minor long Covid symptoms. After my employer pretty much forced me to get the jab in Aug, my long Covid symptoms exploded, extreme fatigue and brain fog. My quality of life has been extremely reduced, because of the experimental drug they are calling a vaccine

Thank you Gez....I'll forever be in debt to you....You've been here for me when my doctor wasnt. Hate to admit it, but hearing someone FEELS LIKE ME makes me feel better. I feel I will never be the same.

@RUNDMC1

2 жыл бұрын

Keep your spirits up Kelly, this really is an awful ride but we WILL all get through it!

@kellyberry4173

2 жыл бұрын

@@RUNDMC1 Thank you Gez. You are a treasure and have helped me so much ❤

Thank you fella's for your sacrifice in doing this interview (also thank you for posting this RUN-DMC/ Gez Medinger) I know how hard it can be for sure..I have MS and long covid and I too think I have developed ME/CFS I just don't have a diagnosis yet...but Lord willing soon. May we look to and trust the only one who can truly help us the Lord Jesus Christ. Blessings to you all.

thank you so much for sharing your experiences. that is so helpful. i am dealing with CFS for years alone . not connnected to others with my situation. sharing your experiences helps me feel safer and more confident to share my own experinces and raise awareness/ thank you so much !!!

This is a long interview! Bless them.

Thanks Gez. I haven’t wanted to think about this possibility as it seems so long term but I think after 15 months there’s a lot of us that are realizing whether we like it or not we are there. And I needed to be reassured about the PEM as I just watched a medical expert panel online conference from a college lecturing how to help long haulers and the physical therapist greatly encouraged movement/exercise as soon as possible! Didn’t know whether to laugh or cry. And this was just a couple weeks ago.... sigh...

@francescachristy8761

3 жыл бұрын

It's so upsetting to see damaging advice like that. Keep resting and pacing. By doing this early and not trying to push through, you're still in with a chance. You are still within the first two years. Best of luck to you

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

@SweetiePieTweety

2 жыл бұрын

The ability to laugh 😂 and cry 😢 simultaneously in the presence of a medical professional is a maladaptive side effect of this condition. Cheers!

As a covid long hauler since last November, I was actually quite happy when my doctor immediately diagnosed me with chronic fatigue syndrome because of my post-exertional malaise. It gave me something that I could research while they were looking for covid specific treatments. I'm lucky enough that I think I have figured out my post exertional malaise triggers. For me it is definitely heart rate and anything that requires an increase beyond standard oxygen levels into the cells. For example, I can go for a 3-hour walk if I walk slowly, but a 20 minute walk at a fast pace will cause weeks or months of PEM.

@murielh7678

2 жыл бұрын

Months? How can you tell when one stops and the other starts?

@michaelday5605

2 жыл бұрын

@@murielh7678 I would describe it as waves stacked on top of each other. A fast walk might cause a medium wave that lasts 3 weeks, carrying a heavy object might cause a large wave that lasts 6 weeks, and trying to hold my breath would cause a small wave that lasts 2 weeks. At any given point, my current feeling was the sum total of all current in progress waves. I stopped experiencing PEM waves after about 6 months, but then went on to develop histamine intolerance which causes its own set of waves, but those are much smaller and more manageable as they just lead to mental confusion and memory issues, not complete multi-day collapses into bed. The major thing I attribute to the end of the PEM waves was figuring out that I had intestinal candida overgrowth, and going 100% gluten and sugar free, and getting stool microbiome testing through a naturopath until the candida came back negative (no candida growth observed).

@clairerobinson7658

2 жыл бұрын

@@michaelday5605 Thank you for your detailed descriptions especially concerning “waves”. I’m happy that you’ve gotten some relief .

Dr marsh, I can’t thank you enough for sharing your story and experience managing post viral CFS. I am 14 mos post Covid and struggling still with too many symptoms to list but the worst is the fatigue and PEM. I am working on pacing and learned so much today from your story. I’m very emotional even writing this because the validation that the PEM is real helps me so much. I’m surrounded by well-meaning friends and family that think I’m still sick because I’m not getting out enough and exercising. I have to work and I save my energy for that which even remote (which I’m grateful for) still depletes my reserves. I wish you continued strength. I appreciate the energy this video took to make and know that it will help so many. 🙏 many thanks.

@MK-gy1ug

Жыл бұрын

How u feeling today? Hopefully better!

@lisaromano8979

Жыл бұрын

@@MK-gy1ug wish I could say better. Im still struggling. I've gotten better at managing it tho - planning for the PEM and saying no to activities that I know will be put me out of commission in the days following. Its a complete life changer - I use to travel 3 out of 4 weeks for work and now I struggle even working remote. I'm trying to stay positive but there are some days it feels overwhelming. I started crafting as therapy :) when the covid insomnia hits I get out my craft supplies - reserve computer for work effort - day by day. I stopped trying to explain long haul to people and just smile when they say I should get out more that exercise will help :) Thank you for asking about my health. I hope you are feeling better. Wishing you all good things in the days ahead, Lisa.

@MK-gy1ug

Жыл бұрын

@@lisaromano8979 So sorry you are still dealing with this. I understand you because I’m going through it too. The only symptom I have left 13 weeks post infection is horrific fatigue. I get days where I feel I’m getting better just to crash the next few days. It’s very discouraging. I’m staying positive and hopeful….I think we will both get better in time. This virus is so unlike any other virus and they’re still learning so much about it, and from the looks of it Hopefully they will have LC meds out in the near future with more answers!Wishing you the best of luck, and a full recovery soon! You don’t owe it to anybody to explain anything it’s really none of their business because they’re not going through it they will never understand!! I get people telling me Oh you’re tired. Yeah OK. Tired. I wish I was tired!! They don’t know!! Be well. Stay well. Take good care of yourself and you will get through this! 💜

@lisaromano8979

Жыл бұрын

@@MK-gy1ug Thank you. I appreciate the encouraging words. If you are 13 weeks post infection, the most important thing is rest. Honestly, I got COVID in Oct 2020 when there was no vaccine and no treatments. There was little to no understanding of recovery after severe infection. I was critically il for 30 days and ran a 103 fever for 12 of those days. After 6 weeks I returned to work (remote) but I was still so sick. By Christmas of that year, I was losing my hair and developed a whole new host of symptoms. I was so sick but still be scheduled to present at conferences virtually. The people I worked with were supportive but thought because it was remote work that it wasn't taxing. The brain fog really kicked in around month 3 and the fatigue was just debilitating. I kept pushing it through it but one day I fell asleep during a web meeting. Completely out. I tried to slow down but there were so many people sick with acute COVID and I felt guilty saying no to meetings. I'm a nurse - we just keep going till we fall over. My days morphed into 12 hours then 16. By the following summer, I was so sick I just couldn't do it anymore. My employer told me to take the time I needed only to have everything waiting for me when I got back. I couldn't sleep. I couldn't eat. The joint pain was debilitating. I finally made the heart wrenching decision to resign in Sept 2021. Only a year before I was named one of the top 25 female executives in healthcare IT and now I was resigning. I took 3 months off and it really helped. My hair grew back :) I gained some of the weight I had lost. I was able to sleep a little better. Since then, I've learned how to better manage the energy I have and plan for the post exertion malaise. I started a new job in january that was less demanding. That said I'm struggling even with 8 hour days. I take things day by day and hoping they will find something to help us, but I do believe that if I would have let myself recover fully in the months following my acute infection that I would not be this bad. I had no preexisting conditions. Healthy 55yo until COVID. So please MK - give yourself time to recover. Rest, hydrate, eat and clear your mind to focus on healing. Keep me posted on how you are doing. Wishing you strength and continued healing, Lisa.

@MK-gy1ug

Жыл бұрын

@@lisaromano8979 Lisa, So sorry to hear this. I want to thank you for being a fabulous and caring nurse and taking care of us patients!That is so much work and I know with the pandemic It has been so overwhelming for you professionals in the medical field. God bless you all and thank you for your services.! I also wanted to ask you if the fatigue and PEM improved at all? I also have really horrific joint pain and weakness specifically in my arms. It comes and goes but it’s really horrible when I do have it. I feel like my arms are going to fall off from pain and weakness. I see some sites telling me that I should build my strength slowly by walking a little bit each day, just so I don’t sit in bed all day And get atrophy. Then there’s other sites that say I should be resting all the time so I can avoid PEM. Not sure what the right thing to do is. I have kids which means resting can be close to impossible sometimes. But I do the best I could do!

Thank you both, great interview.

Thank you to you both. Dr Marsh you described my symptoms to a tee. I felt for you as you began to struggle speaking. I wish you all the best.

Thank you all for sharing information, even for that in your comments! I feel we are almost a comunity here, on your channel, Gez ! And we are not alone...

@RUNDMC1

3 жыл бұрын

We most certainly are a community!

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

Great interview that reflects very well the relationship between the illness and the medical community. And yes, gradually increase you to your triggers has now been proved to not work. Go for about 50% of your capacity so you have some margin. Pacing as mentioned is the way to go

Thank you for these long hauler videos!!! The ones about POTS and MCAS really helped me get on a path to feeling better. I’m not 100%, but able to function and feeling so much better. Learning about Mast Cell Activation has taught me how to tackle this. Hopefully I won’t have to be on antihistamines forever, but they have been a lifesaver. Keep doing these videos. Hope everyone finds some relief

Thanks so much to those who made this video, for spending their precious energy on it. As someone with long Covid it is so much appreciated and so helpful. Thank you!

@RUNDMC1

2 жыл бұрын

It’s a pleasure Philly!

Thank you doctors for your input 😁👍

Thank you Ben Marsh! Very helpful!

Thanks for sharing and to Dr Ben Marsh for the interview. Very insightful and chimes with some of my experience

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

Thank you both, and especially Dr. Ben Marsh, for your efforts. This has been, probably, the most helpful conversation of all I've viewed in the past several years, in giving me encouragement to actively pace myself, and in giving me a presentation that I can share with family and friends to help them understand the parameters and dynamics of my life. There is nothing like credible personal testimony, and this is of the highest quality. Again, thank you.

@RUNDMC1

2 жыл бұрын

Thanks Betty - and best of luck for the future.

Thank you, Gez. Thank you for sharing this information in this format. A clear discussion with medical professionals who both experience and apply clinical theory for others to understand this condition. I would love for insurance companies as well as MDs and employers and family members and friends etc to view this video and develop a better understanding of the suffering involved in those who have this condition. The impact of their dismissiveness and demands vs their compassion and support can be life changing.

@Beekind799

3 жыл бұрын

all post viral conditions have a single cause,low glutathione levels pulling down the atp levels,if a virus comes the macrophages and tcells wont work they will spit out cytokine storms,they can kill you,no research is needed ,its already done,all that died from the coronaviruus died because they had low atp levels,what kind of science lets vulnerable people die because they had low atp levels caused through eating shit food , thats not science its culling ,18mg ivermectin and 50mg zinc taken daily for 4 days in a row would have saved over 90 percent of covid patients dying an awful death,if you are a covid long hauler and you want to heal message me i will gladly send the protocol what 1000s all over the world are using,i designed it

@lamel1781

3 жыл бұрын

The only medication which helps is this! Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

What a lovely human, taking on pain to help us. Thank you a lot for sharing your experience, it has been very enlightening. I'm dealing with long Covid now and with some sort of fatigue issue for probably half of my life. I wonder if I was predispositioned to develop this. It's nice to get a permission to rest as much as needed. Thank you again

This is an incredibly insightful video especially with that interview of the paediatrician. I have learnt so much more about long covid is, not just a condition with a name, but, that it is DEVASTATING for the individual’ s life, and living; as well as for his or her family and friends. This brought tears and terrible emotions of sympathy I have not felt since the pandemic struck. I am grateful for this insightful education. Thank you.

@RUNDMC1

2 жыл бұрын

Thanks Chewyeen!

Thanks to Asad and Ben for this. Thanks as ever Gez. Hope you are doing OK

@RUNDMC1

3 жыл бұрын

Thanks Edward :)

We can only wish this doctor well with all our hearts. He is much more ill than me, and I am so grateful for his agreeing to be interviewed at what must have been a large cost to himself. Many thanks also to Dr Khan and Jez and we wish them well too.

Your symptoms reflect mine so closely. I have tried and thought I had found a way to manage it but not. I have 2 - 2 1/2 hours window to do my work. If I go over that I am unable to function for the next day and sometimes longer. Nobody understands this. They think I have given up or have become lazy. The harder I fight it the harder it fights back. It is now mentally destroying me. I have been a self employed engineer for many years and have carried out many demanding projects and tasks alone and love a challenge. This is a challenge that is beating me. It is destroying my life. Given your condition iam surprised that you can talk so articulately for so long. I find my speech starts to slur and my confusion stops me completing sentences after around 45 mins. Having been unaffected by the covid infection I struggle to accept how it has now ruined my life.

Thankyou Dr Ben Harris ! So much clearer !

Thank you both for sharing. At age 79 I can relate to this discussion. For Decades I have faced Lyme symptoms,, which sound exactly like this discussion. Having to rise above the fatigue, malaise etc for so very many years, I have been able to work and survive. Only family knows about my pain. We need help in our world and answers.

@lamel1781

3 жыл бұрын

May be this could help you. Ivermectin has been used as an-parasitic but has shown in over 100 studies to be a potent anti-viral, anti-microbial, immune-modulator and anti-inflammatory in the last 50 years. This is the only medication which helps long Covid! Don’t believe the disinformation about it in relation to Covid 19. Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

Thank you Dr Asad Khan and Dr Ben Marsh for sharing this interview. I am 14 months post covid (a very mild case) and have struggled with the exact same cycle of 'activity' (physical/emotional/mental) induced relapses as you describe (+ a number of other symptoms). It has been of comfort to hear that what I am now experiencing is most likely post viral ME/CFS with PEM. I did not have a clear understanding of PEM before seeing the interview and I have struggled to describe it to my GP. I was extremely active before all of this and my fear now is that I may never return to my 'old self'. I live in hope that there will be a treatment found soon to help us with these life altering symptoms. At least until them I can now pursue support for ME/CFS + PEM.

Chest pain - comes and goes, in different places, like muscle or bones pain in the chest area.

@Beekind799

3 жыл бұрын

long covid is very easily healed ,message me and i will type out the protocol ,it takes about ten days

@tessgirl383

3 жыл бұрын

@@Beekind799 where

@Beekind799

3 жыл бұрын

@@tessgirl383 do you have long covid , do you have an auto immune condition the leaking gut yndrome has to be healed first, if just long covid take 18mg ivermectin and 50mg zinc daily for 4 days in arow then take this to adderess the reason your immune system uses cytokine storms this protocol is complete take 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve you have low atp levels thats why your immune system spat out cytokine storms this protocol i the worlds most powerful superfoods, so many are taking this and that and not getting any better,the low atp levels has decreased digestive enzyme levels they are not digesting stuuff the quercetin/bromelain will break that vicious cycle and the levels will rocket most havea result about 12 hours after taking the first dose of ivm and zinc,the doctors cannot tell you any of this if they could there wounot be covid long haulers all over the place,the doctors are leaving these patients to suffer just like cfs patients left for over 30 years ,this protocol will heal all post viral conditions

@tessgirl383

3 жыл бұрын

@@Beekind799 thank you what’s the clove not garlic type . I don’t have auto immune I think . I do have IBS i think .. how long do you take the others for after ivermectin

@tessgirl383

3 жыл бұрын

@@Beekind799 why are you not selling the stuff & make some money if people get success with it

My symptoms are getting worse as time goes by, I also developed lower and upper back pain suddenly with this with most of the symptoms this Dr has. The fatigue is crippling .

I’ve had CFS for 25 years and have also had long covid for the past 15 months - safe to say I’m feeling rather fatigued 🤣😞

@pausegarra5138

3 жыл бұрын

Hi Andrew I've had CFS for the last 12 years and Long Covid for the last 13 months! So I wouls say the same too 🤣

@malaika2940

3 жыл бұрын

Andrew, sorry to hear about your CFS. I’ve actually had Fibromyalgia (FMS) and CF for the same duration. I’m only in my 8th month of the joys Long Covid. No two days are the same regarding the reactions/symptoms. Variety is said to be the “Spice of Life”, but I’m not convinced in this case! 🤗😉😉😂 Although no help to you, I can completely sympathise with you regarding the fatigue and brain fog. Good luck. I hope you see light at the end of the tunnel.

@turistomer3702

3 жыл бұрын

🙄

@Beekind799

3 жыл бұрын

@@malaika2940 the single cause of your health problems all began with low glutathione levels which pulled down the atp levels your immune system hasnot got the fuel to work if a virus comes it will spit out cytokine storms they can kill you,if you want to regain your health safely message me i will gladly type out the protocol ,these post viral conditions are easily healed ,its just the weak immune system cant expel dead virus particles from the system,they will keep you stuck in sickness for the rest of your life,easily healed in ten days twenty days if you have a damaged gut that has to be healed first thats easy too

@hebejeebee

3 жыл бұрын

@@Beekind799 yes it's really that easy! Why not just publish your methods for all to see and try?

Thank you for this. I can do relate to this.

Very touching story.. As he said, "fatigue" is really a misleading word to prescribe this illness. However, I wish he had talked about some of the available medications to manage PEM (niacin - monolauric ..etc), and his opinion about their efficacy. Thanks for sharing this interview!

@sixpackbinky

Жыл бұрын

What about NAC ?

I take a collapsable chair for my short slow walks. I pull it out often during the walk, and sit down for a longer time than I walk. That rest is so important. I also drink more around the time I exert, so I piss out anything the cells are excreting after metabolising. As I believe the immune system is attacking these molecule. So pissing it out early I think helps. Although not enough

Excellent video, thank you both so much. It is really important to understand that exertion is *not* just physical. My sister has been bedridden with Long Covid for months and we've done a lot of learning - absolutely key is that emotional stress, cognitive load and social interaction can have an even greater impact than physical movement, as these actually use a lot of energy. Even positive social interaction can have a detrimental effect on your energy, which is really hard to come to terms with...you have to trade-off, because no social interaction will of course make you more lonely which is bloody horrible! Another crucial thing we learnt was understanding that the 'baseline' activity that doesn't cause PEM doesn't mean the level of activity that makes you symptom-free. We kept thinking that what my sister was doing couldn't be in her baseline because she was still so ill but once we realised that we should be looking out for that flare up of flu-like symptoms it became clearer. So it's about finding what you can consistently do each day without getting significantly worse 1-3 days later, but also realising that there are things outside of your control that will use up some of your energy (e.g. a heat wave, menstruation, a call with your Dr you have to do) and so when these things happen you might need to ensure you're resting more and doing less in other areas than you usually do.

@RUNDMC1

2 жыл бұрын

Thanks for the great comment Meg!

I look forward to when you bring out a new video for me to watch and listen to thank you

@RUNDMC1

3 жыл бұрын

Thanks Lorna!

A million Thanks

So we’ll said Dr Marsh. It’s not just fatigue, and people don’t see our down sides after concentration and physical activity. They just don’t understand.😇

Excellent video again! I relate to Dr Marsh as I too am housebound 99%. The point I would make is that GPs are still in the dark with ME CFS and I think they choose that. Any help I have received has been at personal expense, GPs simply are not interested! I think treatments for Long covid may come along, but those with ME CFS will not receive or benefit. I've battled just to get antihistamines prescribed and paid a private doctor. The NHS have only one concern, minimising costs.

I have had cfs for 20+ years. NOt even diagnosed officially, let alone helped or supported by my country's equiv of NHS.. I was looked at by some Dr's as a hypochondriac, 'hysterical', 'just' depressed late 30's/early 40's woman. I used to be a Reg Nurse. My hubs kept telling me until a Dr gets CFS ( or now Long Covid) they will not care abt it .My hubs had open heart surgery last year and within a few weeks of the op, had more energy than I did. he was back at work after a few months. I have not been able to work for over 10 years.

thank you for this content

Anyone who has tried pacing will know why psychological support is so valuable. It's really difficult to do.

Thank you 🙏

I will get 2/3s into a 'normal day' and it will start. I will feel it behind my eyes first. If I don't lie down and sleep, I feel like I'm going to die. Sometimes I will wake up wondering what day it is. It is often like 12-14 hours later! For much of the pandemic, all I did was work (while feeling badly) and sleep. It feels like I have lost 3 years of my life. Ironically I had to work harder often, because I had to teach both online and in classes. But I had nothing for teaching online. I would spend many hours creating materials for online. All I did was work and sleep. I don't remember enjoying much of life at all.

This is utterly my experience - I tick all the ME.CFS boxes and now loads of LC !

@Beekind799

3 жыл бұрын

,you have low atp levels thats why you have post viral conditions,as anyone ever told you that,probably not , a doctor has no training on nutrition or the immune system they cant help you i can i can tell you exactly how to regain your health,get rid of them low energy levels once and for all,mesage me and i will tell you exactly how to regain your health,i designed a healing protocol used by thousands all over the world,it takes about ten days to end all post viral conditions ,itsa nutritional problem

@denisegaur

3 жыл бұрын

@@Beekind799 hate to say it but you're actually on to something here as I had a urine chemistry test just as I was getting sick last year and it showed EXACTLY this. Thankfully I also know atp methylation mechanisms and barely get fatigue with my thankfully now nearly resolved residual lh, especially since also treating with a course of Ivermectin and daily full mcas protocol medications and supplements.

@Beekind799

3 жыл бұрын

@@denisegaur why do you hate to say it,i am trained in biological systems engineering on the 5 box immune system,i have healed tens of 1000s all over the world its easy for me to see whats going on

@lamel1781

3 жыл бұрын

May be this could help you even after 21 years. Ivermectin has been used as an-parasitic but has shown in over 100 studies to be a potent anti-viral, anti-microbial, immune-modulator and anti-inflammatory in the last 50 years. This is the only medication which helps long Covid! Don’t believe the disinformation about it in relation to Covid 19. Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

Thank you so much.

@RUNDMC1

2 жыл бұрын

No worries Paul!

Really good series Gez, guess I’m not the only one who took up Duolingo and learning Chess online then, and even got a slack line with my kids to begin some form of exercise. Still got the chronic fatigue, brain fog and exercise intolerance but the recurring bouts of flu have subsided somewhat when I have a relapse. Been referred to the CFS/ME clinic, overlap of symptoms are very close, just wonder that the pathogenesis of long Covid is maybe different for us.

@RUNDMC1

3 жыл бұрын

Haha, you’re definitely not the only one to mention taking up the new stuff - as for me, I’ve got 9 weeks of paramedic placement on ambulances starting tomorrow… 😱

@ianseaweed

3 жыл бұрын

@@RUNDMC1 that’s absolutely fantastic! Good on ya

@deniseh32033

3 жыл бұрын

@@RUNDMC1 you mean you are doing stand in work for paramedics? What happened to pacing? You do so much anyway. I think you should give yourself a break and get stuck in to dealing with Gupta's Achiever and Helper profiles to be able to allow your system to recover. Whatever you are doing I wish you well and thanks for all the incredible information you have put together. It is life enhancing and life improving for this Long Covid victim!

@Beekind799

3 жыл бұрын

all post viral conditions have a single cause,and they are easily healed,a doctor cant heal you they have no training on the immune system,message me and i will tell you exactly how to regain your health it takes about ten days

@tessgirl383

3 жыл бұрын

@@Beekind799 tell us then

The survey mentioned was a questionnaire done by the ME Association, given to people with severe ME, about their experiences of treatment. You point out that the draft guidelines were supposed to be finalised in April, but that this ‘has been delayed’. I would think it likely that the powerful psychiatric lobby in the UK are making a last ditch effort to have CBT and GET reinstated. There is the threat of reputational damage and possible even of legal action taken against them, especially if it were shown that they knew of the harms and still prescribed GET. They will be doing everything they can to block these proposed changes to the Guideline.

@annettewilford9726

2 жыл бұрын

Appalling

Having aleays excercied , unable to for one year now. geting out of shape, putting on wieight... horrible situation. I wonder if any new developments to trat POM and fatigue have come to light yet

Thanks for this conversation about PEM and GET. I'd love to know if any longcovid experts might have insights into taking targeted longevity supplements to address specific longcovid symptoms (such as neuropathies). I'm in the pacing and rest group, for sure, and am feeling better when shopping the imaginary longevity supplement shelves to address, for example, GI issues (butyrate & IGG), or neuropathies (alpha lipoic acid and hyaluronic acid). In addition to targeting my specific issues with supplements, I'm also feeling better now that I've backed way off on all exercise beyond daily house and garden work. I've heard some athletes with longcovid were instructed by their coaches to take 90 days off all exercise, so I'm giving that a go, and so far feeling the best I've felt in the last 16 months of my longcovid journey.

@Beekind799

3 жыл бұрын

allll post viral conditions have a single root cause low glutathione levels causing low atp levels ,if you have an auto immune condition caused by leaking gut syndrome that has to be healed first it takes about ten days to heal the holes in the gut then you take 18mg ivm and 50mg zinc daily for 4 days in a row then you take this to address the low atp levels caused by low glutathione take this 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve you take this with food the quercetin/bromelain seems to be the missing link ,with low atp levels hey have decreased digestive enzymes so what ever they take it wasnot being digested,the quer/brom is the missing link your energy levels will quickly rise ,with an auto immune condition it takes ten days to heal the holes in the gut then ten days for the ivm and zinc and the protocol ,these are not experts ,i am

@CynthiaSueLarson

3 жыл бұрын

@@Beekind799 Thanks for sharing your info on this. I've been taking Glutathione and Quercetin and Zinc as well as many others... the recent add-ons are those that are giving me noticeable huge improvement to my GI and neuropathy issues that seemed to hang around and worsen on relapse. I haven't worked with the other aspects you mention, but I'm so relieved to see such positive improvements in my GI/gut issues by simply adding to the usual MCAS and NAD+ stack with a few personalized supplements. I'm still not recovered from longcovid (still can't exercise as before), so for that I'm backing further off all activities. I am learning that left to my own devices, I tend to be an overachiever, and that is not helpful when it comes to pacing and rest. I love to keep learning, thinking, doing, and have to teach myself "this too is a sick day--take it easy."

@Beekind799

3 жыл бұрын

@@CynthiaSueLarson take a heaped tea spoon of slippery elm bark powder in a glass of warm water 15minutes before food it takes about ten days to heal the holes in the gut and thats the end of auto immune problems like mcas,then you take 18mg ivm and 50mg zinc daily for 4 days in a row this will clear the dead virus particles out of the system and calm the immune system down then take this 2 x 600mg caps n.a.c. morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve i designed this protocol ,you have low atp levels that casues low digestive enzyme levels ,thats why so may cant regain their health they are taking stuff but they cant digest it this is where the quercetin/bromelain breaks that vicious circle if you take exactly whats here in ten days your gut will be healed in another ten days you will fully regain your health your energy levels will rise its the quer/brom that seems to be the missing link for so many,how long have you been taking the stuff you are taking,its not working is it,no doctor can tell you this info they are a real joke

@monkeybrainsmediauk

3 жыл бұрын

I've messed around with numerous supplements. Mostly unsuccessfully. The notable exception was gut bacteria. It didn't really make me feel any different but my poo became way better and normal again. So it kind of helped alleviate just one symptom. However none of it really made me feel much better in terms of energy, concentration etc. Just better poo.

@Beekind799

3 жыл бұрын

@@monkeybrainsmediauk take a heaped tea spoon of slippery elm bark powder ina glass of warm water 15minutes before food ,it takes about ten days to heal the holes in the gut ,then take 18mg ivm and 50 mg zinc daily for 4 days in a row,most get a result after 12 hours ,then take this,i see you are taking this and that,its not helping because you dont understand what low atp levels are causing,low digestive enzyme levels,you can take what you like you are not fully digesting it take this 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve this protocol is designed by me,1000s all over the world are regaining their health with this protocol ,i cannot vouch for any other protocol but this if you take it in the order here you will fully regain your health in less that 20 days ,the quercetin/bromelain makes sure that its all fully digested,it breaks the vicious circle,the levels rocket,this protocol is absolutely complete

Thank you for this discussion. I like others have tried to describe my symptoms to a my cardiologist and to the nurse practitioner of a covid cardiology specialist no one seems to be listening I had post covid pericarditis was prescribed beta blockers but the made my tachycardia go from tachycardia to bradycardia to say drop my pulse to 43 which made me lightheaded and feel like I was going to pass out. Now they want to try calcium Chanel blockers i dont know whether to try this or not. They want me to do the exercise program I walk at least 5 miles a day as a nurse the fatigue is very disabiliting the nurse practicer said this exercising of walking at work does not count

@RUNDMC1

Жыл бұрын

Exercise programme sounds like a terrible idea.

There were hints in the video, but I don't want to infer something that is incorrect. Is the PEM in ME/CFS related to the disruption of of the NAD+ pathway? Thanks

@RUNDMC1

2 жыл бұрын

We don’t know for sure, but it’s certainly implicated.

I ended up so ill again after attempting CBT that was recommended.

I have been struggling with all this 5ys but being female,nurse, over 50 was laughed at then muscle biopsy said IBM, which doesn't have these sx. I pressed for mestinon despite being double sero neg. In one day eye pain, diff focusing, pain from muscles collapsing, difficulty breathing all eased. Neuro still not convince can have 2 rare diseases but keeps writing mestion which has more than doubled single breath count. I did have covid last yr in March when all was chaos and luckily treated myself at home with ordered bipap and sl inc FiO2 to stay above 91. 5 mos later could get dressed and go out if someone else drove and used neck pillow, cane. I am just wondering if Mestinon might... did see it is used sometimes in dysautonomia which surprised me. Neuro isn't upset my HR goes from 49 to 104 for no apparent reason, or that mental stress can wipe me out as well as walking and a cell phone is too heavy at times.

Any luck with higher Magnesium intake? or any other dietary substances involved in energy metabolism? CoQ10, B vitamins?

@michaelday5605

2 жыл бұрын

I am taking Nadh, coenzyme q10, b50 complex, melatonin, magnesium, zinc, selenium, quercetin, cod liver oil, omegas, and some other stuff. It's all helped with my baseline energy and mental state, but nothing is preventing post exertional malaise at this point.

I have all his symptoms. I sleep through every weekend. Going on 12 weekends in a row where all I do is sleep. Maybe 5 or 6 hours awake Sat and sun

This information along with Dr. Bruce Patterson’s discussion of how viral fragments ingested by monocytes in the blood stimulate an immune response (inflammation) wherever they go, and that this harm is increased when exercise stimulates these monocytes to go further into the system is an absolutely clear justification for dismissing Graded Exercise from the revised Guideline. The doctors, especially paediatricians who are currently having publication of the revised Guideline are insisting on retaining the power to impose severe medical harm on patients, including children.

@RUNDMC1

2 жыл бұрын

Thanks Nancy :)

Thanks to both of you for this moving helpful film. I have a question - with POTs the recommendations seem to suggest that recumbent movement is helpful to start and then a slow gentle progression to more upright movement and exercise will ultimately help reduce symptoms but........when POTs is a secondary dysfunction like in long covid or other viral illnesses it seems that exercise can be damaging so.......when like me and many others I have POTs and clearly post viral exhaustion from long covid it seems to me that the deconditioning due to having to rest loads to help with the long covid is not helping the POTs at all - would welcome any thoughts but is this maybe why the POTs is not improving in those of us stuck in this position I wonder?

@RUNDMC1

2 жыл бұрын

Hi Patricia - the hope would be you can do recumbent exercises that keep you inside your energy envelope and don’t induce PEM.

@patriciabryant8892

2 жыл бұрын

@@RUNDMC1 Cheers Gez - so appreciate your response - that's reassuring as in line with what I'd figured out for myself - I'd love to hear of some recovery stories for post covid POTS? How are u doing?

If you haven't read "Plague of Corruption" by Dr. Judy Mikovits and & Kent Hechenlively, JD, you should. While it gives no solutions, it does expose the lack of progress due to systemic corruption in this field. I too have been suffering with ME/CFS now in tandem with post covid fatigue. The Lord Jesus is our healer. Keep praying.

It seems a problem for some that this diagnosis is 100% excluded if it starts in childhood (or even adulthood) and without diagnosis because it is no longer possible to "never occurred" previously. What designation can describe ongoing episodes?

I'd be curious to know if the community has any experience in the following: For me (along with the usual symptoms described here) it's as though my circadian rhythm is now broken. If I change my productive period to 1am to 7am and sleep till 3pm, I have so many better, productive, almost normal "days", compared to trying to be awake and functioning at the same time as the rest of my time zone and suffering the debilitating effects of this.

@RUNDMC1

2 жыл бұрын

Extremely common - a consequence of seratonin dysregulation and overactive sympathetic nervous system

@michaelday5605

2 жыл бұрын

This has definitely been my experience too. To get myself back into a regular sleeping schedule I've been taking melatonin, magnesium, gaba, and Valerian root. I need to take about five valerian root pills with that combination for it to work.

Sir I had recently covind and was home isolation now month has passed I feel fatigue when I wakeup especially m lower legs what should I do

@juliettailor1616

2 жыл бұрын

Go to the FLCCC alliance on the internet for a treatment protocol.

High Blood Lactic acid can be higher in pts with Psychological stress . A sign some use to call PEM

Hi gez what you think about cbti and sleep restriction for sleep disturbances during covid ?

@RUNDMC1

3 жыл бұрын

I don’t know much about it unfortunately - sorry!

@francescachristy8761

3 жыл бұрын

My experience of ME is to sleep as and when you need to. If you cannot sleep, meditate and do deep body relaxation instead. It may help during the day to try and keep more to deep body and mind relaxation if you can as that may help you sleep at night. If you have to be up at a certain time, allow an hour of deep relaxation and diaphragmatic breathing beforehand and drink two large glasses of cold water to help with orthostatic intolerance. One of these preferably being a rehydration drink. During the day it may also help to lie down frequently with pillow under knees to secure blood flow and oxygen supply to brain. I combine this with relaxation exercise and slow diaphragmatic breathing for emergency recovery

@lamel1781

3 жыл бұрын

May be this could help you even after 21 years. Ivermectin has been used as an-parasitic but has shown in over 100 studies to be a potent anti-viral, anti-microbial, immune-modulator and anti-inflammatory in the last 50 years. This is the only medication which helps long Covid! Don’t believe the disinformation about it in relation to Covid 19. Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

I’ve had the same symptoms since my second Pfizer . Glad to learn more about it. Poor Dr Marsh … you could see him getting fatigued and brain fog about half way through.

Also, is MCAS a part of ME/CFS, as well?

@RUNDMC1

2 жыл бұрын

Honestly I’m not sure about this. Good question.

I hope you talk about IST and POTS after corona

@RUNDMC1

3 жыл бұрын

In the next film!

@ayamohammed229

3 жыл бұрын

@@RUNDMC1 thanks so much! ❤

Have disabling CFS-ME/FMS since 2003/2005 around the time of SARS. There are so many more options for recovery now. 🙏

@Beekind799

3 жыл бұрын

i can tell you how to regain your health because i understand why your immune system couldnot expel virus particles from your system many years ago,thats whats keeping you sick ,the root cause of your problems started with low glutathione levels which caused low atp levels,thats a weak immune system,if you have an auto immune condition that has to be healed first,leaking gut syndrome destroys health you have to heal in this order to regain health safely take a heaped tea spoon of slippery elm bark powdr in a glass of warm water 15minutes before food it heals the holes in the gut and that ends the auto immune condition,if you dont have an auto immune condition take this please 18mg ivermectin and 50mg zinc daily for 4 days in a row then take this to safely raise the critical glutathione levels which will raise the atp levels,thats why you are sick take this 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 cloves not the garlic type morn/eve - 1 x 1500mg caps quercetin/bromelain morn/eve this protocol is absolutely complete its to be taken with food,the quercetin/bromelain breaks a vicious circle,so many are taking this and that its not working because they dont understand whats going on in their own body,the low atp levels has decreased the digestive enzyme levels,they cant digest it thats why they cant get better this is where the quercetin/bromelain plays a vital role in this protocol it makes sure its fully digested,most get a fantastic result with the ivm and zinc about 12 hours after taking the first dose,of course none of the info here is known by your doctor thats why they have left you suffering,please read this message very slowly i am quite certain you have enouggh of low energy,message me when you are bursting with energy ,donot take the ivm without the zinc it wont work properly ,all post viral conditions are firmly kept in place by low glutathione levels pulling down the atp levels resulting in a weak immune system,this protocol heals all post viral conditions including aids

@lamel1781

3 жыл бұрын

May be this could help you even after 21 years. Ivermectin has been used as an-parasitic but has shown in over 100 studies to be a potent anti-viral, anti-microbial, immune-modulator and anti-inflammatory in the last 50 years. This is the only medication which helps long Covid! Don’t believe the disinformation about it in relation to Covid 19. Read and scroll down to tables with protocols www.researchgate.net/publication/343683169_INCLUSION_OF_IVERMECTIN_IN_THE_FIRST_LINE_OF_THERAPEUTIC_ACTION_FOR_COVID-19_A_very_significant_decrease_in_the_Mortality_Rate_is_reported_with_its_use Studies statistics table C19 ivm c19ivermectin.com Dr. Tess Lawrie to Boris Johnston kzread.info/dash/bejne/f2yGr6SaYbjMo6g.html and to doctors kzread.info/dash/bejne/ZWijxdOwpdueoJc.html Doctors testaments, e.g: 7 min. Florida pulmonologist Dr. Jean-Jaques Rajter at US senate kzread.info/dash/bejne/eqJ6pq6TZtvTlbw.html 29 min. FLCCC Critical Care Alliance Dr. Pierre Kory at US senate kzread.info/dash/bejne/ZGyNuJqNlrfPlag.html Nursing homes, Dr. David Chesler - covexit.com/a-protocol-for-the-prevention-and-early-treatment-of-covid-19-in-nursing-homes/ Scroll down to statistics table, See comprehensive info - FLCCC covid19criticalcare.com/ivermectin-in-covid-19/ Also, see info bird-group.org Prophylaxis. E.g. covexit.com/covid-19-prevention-in-the-workplace-a-real-world-experience-out-of-brazil/ journals.plos.org/plosone/article?id=10.1371/journal.pone.0247163 .covexit.com/could-scabies-save-you-from-covid-

Oh my! This ia an alarming condition 😟

I read that this virus appears to thrive (and replicate) with exercise-induced oxidative stress, is this true? If so, should you not exercise. I get out of breath very easily during exercise but feel fine when I finish.

@RUNDMC1

3 жыл бұрын

I would avoid strenuous activity till your symptoms have resolved for at least a few weeks

@Beekind799

3 жыл бұрын

take 18mg ivm and 50mg zinc daily for 4 days in a row

@samjarea

3 жыл бұрын

@@Beekind799 I'm already doing that, tomorrow will be day 6, thanks anyway.

@samjarea

3 жыл бұрын

@@RUNDMC1 But if the virus lays dormant I could avoid exercise for 4 months then go back and be exactly where I was 4 months ago. Do you not think our bodies will deal with the virus regardless of exercise or not.

@Beekind799

3 жыл бұрын

@@samjarea do you have an auto immune condition,if you do stop taking the ivm and zinc immediately,somethings wrong here,i have healed thousands i have never heard of anyone taking ivm and zinc for 6 days ,please say i dont want you to harm yourself

IAM a qigong & taiji instructor and a retired nurse and midwife. I am wondering if, in the area of rehabilitative exercise, researchers have looked into the science of qigong & taiji, that may benefit people living with long covid ?

@RUNDMC1

2 жыл бұрын

Not to my knowledge!

@chewyeenlawes3215

2 жыл бұрын

@@RUNDMC1 I will look into it. And see iff there is any research into the practice of Qigong and taiji for CV 19 patients in hospital.

@lucyilly428

10 ай бұрын

I was looking for a Qi gong class and wondering if this could be a way of moving and improving balance without to much exertion.