I will pass this information onto a dear friend who is struggling with AMD and getting not much joy from NHS treatments. In fact his treatment was stopped and he has had to go private, which obviously is prohibitvely expensive and cannot be continued after not having such great results. Thank you for this. God Bless.

Thank you for this , i now better understand my treatment for wet macular in both eyes , and what the future may hold for me at present time of 76 years old . From Brackendale B.C. Canada

My wife developed AMD in her early 70's. She has von Willebrand Disease. I would appreciate all advise/information you have on this. I have subscribed. Thanks!

Thank you for a very good explanation on the new treatment I am very excited about it❤

@satishdeshmukh2927

Жыл бұрын

what is treatment ?

Very well explained. I’m a FF with coats that was becoming non-responsive to eyelea and then ozurdex. I have switched to Vabysmo with some success.

SO so mamy thx for your holiday time and a so so clean presentation of hope for manu xxxxx n

This sounds really great. Boots chemist got me in to Eye hospital Hull Royal within the week. Now had 14 injections still driving hope to do so for a years more

@MacularSociety

Жыл бұрын

Hi Marian, if you ever have any questions or would like further advice please do call us on 0300 3030 111 and our team would be happy to help.

Gloucester opthalmology provide a very good treatment service. I go for an eylea injection every month so this drug will be a big benefit.

Very helpful 👍. Thanks 🙏 much appreciated

We keep getting such good talks about AMD and this was exceptionally good for me because I rather fancy I am one of the folk who a)was seen late....the GP Surgery didn't refer me when asked to do so for 3 months and b) I respond but quickly accumulate fluid after injection. I find it tricky trying to talk to the people who see me in clinic, my age and general appearance

@MacularSociety

Жыл бұрын

Hi, if you'd like some further advice on this and how to speak to your consultant please do call us on 0300 3030 111 and we'd be happy to help.

@satishdeshmukh2927

Жыл бұрын

@@MacularSociety its treatment can work for macular degeneration dry type ?

I was just diagnosed following cataract surgery. Paid an extra $2000 for a fancy lens and never got to see out of it. Had 2 shots now. Terrifying. Especially with Essential Tremor.

@KoolT

Жыл бұрын

Don't smoke any tobacco

@heatheral-hammadi3046

Жыл бұрын

As an ophthalmology nurse I can tell you that we have more than a couple patients with tremors or Parkinson’s. If you feel like you need an extra set of nurse hands to hold your head still your clinic should be happy to do that for you

I understand basically what the existing 'arm' of Vabysmo does but what does the new component /arm of the new treatment do please ?

Thank u so much for such great explanation of what is happening inside the eye. I have macular in one eye n I quit injections because I saw no improvement . I retired n have no insurance . Will not be able to renew drivers license.

@MacularSociety

10 ай бұрын

Hi Virginia, we are really sorry to hear this. Please know you don't have to go through this alone, we are here to support and help you wherever we can. Our Advice and Information team are contactable via email help@macularsociety.org or via phone 0300 3030 111 (Monday - Friday 9am - 5pm)

Is this drug available now to the USA? If I ask my doctor about this new drug in US is it still a study here or is it now widely available in the US to my physician? Thank you.

@frann166

Жыл бұрын

I have had 5 Vabysmo injections. So far no fluid. I am in NC.

@MacularSociety

Жыл бұрын

Hi Martha, this has been approved by the FDA for use in the US.

Thank you for the great presentation. Is faricimab already available in the UK? I know that it's approved and reimbursed, but from what I've seen and heard, the company has not launched it. Manufacturing problems apparently. When will patients finally have access?

@MacularSociety

Жыл бұрын

Hi, as far as we were aware clinicians have access to the drug now. This would be something it would be best to speak to your ophthalmologist about.

@donaseveri236

Жыл бұрын

Good if you can get to see an opthamologist now.

What are the affects of Vabysmo on a heart murmur on a 74 yr old

This is not available in Pakistan can you help me in getting it can it be gift from yourself. We are not allowed to import it individually.

Ive had 4 injections with Vabysmo but still had fluid and was told I need another one in 4 weeks, I was hoping for a longer time before next injection. Also read less letters on the eye test compared with when I was on Eylea. Could it be the new drug is not suited to everyone?

@MacularSociety

9 ай бұрын

We would recommend that your chat to your ophthalmologist about this - they will be the best person to advise which treatment is best suited to your eyes and why - it may be that you're being given this specific drug for a specific reason, but the answer would lie with your ophthalmologist.

@gretawharton4670

9 ай бұрын

@@MacularSociety Thank you I will discuss with the ophthalmologist at my next appointment

Would faricimab be useful in scarring from a retinal bleed? I have been treated for 5 years with Eyelea injections every 6 weeks. I have wet Md symptoms in one eye but both eyes are treated. The bleed was identified but injection didn’t occur for 48 hrs. The scarring from the bleed has caused central vision problem. Norma from U.S.

@MacularSociety

8 ай бұрын

Hi Norma. You would need to check this with your ophthalmologist to see whether you'd be a suitable candidate for faricimab.

is it to late if theres already a hole and fluid how long is to long my eye distortion happened about 5 years ago when i was told i had a wrinkle in the back of my eye and now theres a hole

@MacularSociety

Жыл бұрын

Hi Terry, this treatment is for macular degeneration, which is different to a macular hole. We would advise you speak to your optometrist if you have any concerns about your vision. Macular holes are usually treated with surgery. If you'd like any more info and are based in the UK, you can always call us on 0300 3030 111 or email help@macularsociety.org.

@maryshades8336

Жыл бұрын

This is very interesting and helpful. I've had six injections and my eye is worse so going for another three.

Can Faricimab treat Idiopathic CNVI in young female if some scar developed already

@heatheral-hammadi3046

7 ай бұрын

In the US the only diagnosis approved to use vabysmo is diabetic macular edema and AMD.

Hi, Is this helpful for 14 years old child. He has macular destropy. Please reply

@MacularSociety

Жыл бұрын

Hi there is currently no treatment for inherited forms of macular disease such as macular dystrophies but lots of ongoing research

I live in New Zealand tand have macular Avastin I habeen left 9 months 1 month to long 1 wet 1 dry eye .y left eye hasnt come right in 1 injection each month for 3 months I am on the verge of losing my car licence can you suggest something

@MacularSociety

10 ай бұрын

We are so sorry to hear this. Where you are based in New Zealand, the best thing we can recommend is you keep in touch with your ophthalmologist. You are welcome to contact our team and we can try and help you where we can, but please keep in mind we are a UK based charity so the help we provide may be limited in some areas. Our email is help@macularsociety.org

My mum has this condition and her eyes have become worse. Supposed to have injections every 6 weeks, but its generally every 10 weeks. Never any eye consultants to see her since covid. Last year she had sepsis, and due to infection wasnt allowed a few injections, so we think that has caused eyes to become worse which is really causing her to worry. I hope she can try this new drug.

@MacularSociety

Жыл бұрын

Hi Dona, if you are based in the UK please give us a call on 0300 3030 111 and our team would be happy to help with nay advice or support you may need.

@econrith

Жыл бұрын

How did she end up with Sepsis? That must have been caused by sloppy treatment and you may have a case against them for this, at the least you can use that as a suggestion that this is a route you may choose IF you don't get proper treatment immediately. These people are paid out of public funds, even where they are so called privatised. The privatisation is just the middle man getting some of the rake off the public funding that there must be.

I have wet AMD at the age of 29. I don't understand why i can get it at such a young age. I did not smoke or drink too.

@MacularSociety

Жыл бұрын

Hi, while you may have been told this is what you have it is unlikely that you have an age-related condition at 29. Often genetic conditions or conditions such as myopic macular degeneration can appear similar to wet AMD. We would recommend getting further tests to determine what your condition is. If you'd like more info and you are in the UK you can call us on 0300 3030 111, alternatively you can email help@macularsociety.org

@heatheral-hammadi3046

7 ай бұрын

There are many diseases that can mimic amd. Are you diabetic? Could your diagnosis be a vein occlusion? CNVM?

I HAVE ONE WET AMD WITH HOLE AND ONE DRY AMD I WAS TOLD 3 MONTHS AGO NOW IM WAIUTING TO BE SEEN FOR CASTARACTS BEFORE SURGERY WICH IS IN A DIFFERENT PLACE CAUSE MY SURGEON DOESNT DOI CATERACT SURGRY THATS NOT TILL FEBURARY AND MY VISION IS BECOMEING MORE BLURRY I FEEL THE LONGER IT TAKES THE WORSE OFF ILL BE IS THAT TRUE OR IS IT ALREADY TO LATE

What are symtoms for wed macular disease..... also the symtoms for dry macular disease .... thank you .

@MacularSociety

10 ай бұрын

Symptoms of both wet and dry macular disease are the same, and can include: - Gaps or dark spots in your vision - Objects in front of you might change shape, size of colour, or seem to move or disappear - Straight lines, such as door frames and lampposts may appear distorted or bent Words might disappear when you are reading If you notice any changes in your vision, please visit your local optometrist to check. If your optometrist suspects you have wet AMD, you should be referred to a retinal specialist at a hospital and if applicable you will be treated within 2 weeks after initial detection.

please dont use beovu like i did--i am now blind in my left eye

@peterhester8801

Жыл бұрын

What is the time factor in early catchment?