Thank you Laura. This World of MS is so unpredictable and mind boggling. I was diagnosed with MS in 2007. I"ve dealt with a few relapses and am now recovering from a recent relapse. Because of Covid 19 my neurologist was not comfortable with sending me to the hospital for steroid treatment. this caused me to have to take 25 steroid pills per day.This has been the worst relapse yet for me, it seems to be getting worse instead of improving. When i think I'm much better my body says I'm not. Sometimes my family doesn't understand because i don't look sick, but it's such a chore to do simple things. My body feels like lead which is so difficult to explain. This is so frustrating and i"m finding myself falling into depression at times. Thank you for sharing you similar story. It lets me know i'm not alone and that there is hope.

@lauraironstalksms

4 жыл бұрын

Hi Freshun, I really felt for you so much when I was reading your post. Covid has unfortunately changed the way that we would normally be seen - well under 'normal circumstances' if we were to be going through a relapse. I don't understand about us not going to the hospitals as I received a letter from my neurology team stating that I was no more at risk from covid with having MS than anyone else, it annoys me that you couldn't get your treatment in the normal way but I suppose they are looking out for us. I totally sympathise with you, since October last year I've had a problem with my arm, after numerous MRI's, and ultrasound scans they are finally putting it down to a relapse. Like you mine wasn't getting better only worse but you just have to believe that it will. We've been here before with our relapses where we never thought they would end, but they did and this will you just have to try and be patient as you're already being brave. It's difficult when others don't understand, but that's what we're all here for. Please let me know how things go ❤️

@paprikafafaron57

3 жыл бұрын

How are you?

Thank you so much for your honesty and openness about such an important topic. You are helping more people than you’ll ever know. Please continue making videos if you’re able to and thanks again! You are phenomenal! 🌺

New MSer here waiting on my 'official' diagnosis. Just want to say thank you so so much for sharing this and for your channel. Cheers, B.

@lauraironstalksms

3 жыл бұрын

Oh hey! You are very welcome and good luck with everything and your diagnosis stage I hope that it all goes smoothly for you. If you have any questions, or just want to pull an ear just shout out 😊

Thanks Laura. I am going through my first relapse, well maybe my second really. I was diagnosed Sept 2022 so this is all kinda new to me. Didn't even understand what has been happening until a couple of days ago, just didn't know what a relapse was or is to even realize I was going through it. So thank you for expressing that there is light at the end of the tunnel.

@lauraironstalksms

Жыл бұрын

Hi Jessica, yes it can all be a little daunting and confusing, especially when you haven't been told how to prepare. It is sometimes difficult to differentiate between what is and what isn't a relapse, especially when some symptoms can start of feeling exactly like something normal, I.e a pulled muscle. Generally over time you get used to the MS symptoms. I believe any symptoms that lasts longer than 24 hours can be classed as a relapse and not a 'flare up' Yes there is always light at the end of the tunnel, try to stay positive. I wish you speedy recovery 🧡

@JessicaWilliams986

Жыл бұрын

@@lauraironstalksms Thanks Laura. I have just posted my own video about the relapse to try and make sense of things. Thanks.

@lauraironstalksms

Жыл бұрын

Oh great, I'm sure you'll find it cathartic and will also help others on your journey

I am so glad you tube brought you over my path today.you are beautiful and thanx for sharing.i was diagnosed 6years ago and so far still have alot to be thankfull for

@lauraironstalksms

2 жыл бұрын

Thank you so much for your kind words ❤️ I really appreciate it

this one, I'm replaying for the umpteen time ⚓🎬🎬🙏. the beginning part of being diagnosed is like, whoooooaaaaa. It's like I tell everyone I know, "I'm getting used to a 'new body'... we learn to 'listen' to our bodies, simply b/c it's not a choice anymore. Your videos do help, thank you!! 💪📌

@lauraironstalksms

4 жыл бұрын

The beginning part of diagnosis is scary, and can be a continuation of scary as we go through relapses. But it's learning how to live differently and adapt to our changing bodies. Thank you for your kind words. Stay strong, be positive and be bold 💪🙏😊

ThNk you ❤️

How long did this last for you because I’ve done the steroids and it’s still been months and I am only a little better and I have to go back to work 😢

@lauraironstalksms

Жыл бұрын

Hi, this particular relapse lasted about 8 months in total until I was recovered enough to go back to work.

you here now, is how i feel, i going through some very simuler shit,going back in my cave, sorry to have wasted ur time

@lauraironstalksms

3 жыл бұрын

Hi Kit, you never waste my time. If you want to share what you're going through you can I'm here to listen. Also, I know it seems so hard when you are going through the things but you and your body will get through it with time I promise

@kitshrapnel8548

3 жыл бұрын

@@lauraironstalksms Thanks. This isnt your fight, you have enough to deal with, If i told you the first 20 years of my life you will cry, and thats just the ms side of things

@lauraironstalksms

3 жыл бұрын

@@kitshrapnel8548 I have enough fight in me for others too, my Mum told me I'm a tough cookie. I'm sorry to hear you've had such a rough time with your MS. This disease can take away everything normal that we know it's a horrible thing to have to deal with. Just don't feel alone with it because you're not

@kitshrapnel8548

3 жыл бұрын

Thanks. I know deep down inside your right, been hear before, to many times, but for different reasons, hard not to feel alone when your sitting on the floor crying, when your the old fart, other people come to for advice, my own family don't want any thing to do with you, all because of an uncompromising ex, who wont even communicate in any shape or form, it wouldn't be a problem, but for the fact my autistic adult son lives with her, and i haven't seen him in 8 years. single for over 6 years, the dog is my support not that she knows it, but it dose help when she comes over to make shore i'm ok. i am very dyslexic, (who thought it was a good idea to spell it like that) got to laugh, so this is a challenge, yey google

@lauraironstalksms

3 жыл бұрын

@@kitshrapnel8548 My sister is dyslexic (I also had to Google that!) and she is one of the most amazing people I know just in terms of how she thinks and the way she does things. People thought she was stupid, she's most definitely not. People don't understand what they don't understand. It's difficult when family don't or won't support you, do you have good friends that you can talk to about stuff? I talk to my dogs all day long, not that they understand but it helps and I know they feel when I'm down, just like piggy will with you. You said you're the one that people go to for advice, it must be because you're good at it and they trust you 😊. Try putting yourself first, it's important. We can't control the bad actions that other people decide to take, in time maybe they will come around to wanting to help and support and your son will in time be able to make a decision for himself. It's a lot of things to weigh you down I can understand especially on top of the MS. Can I ask when you were diagnosed?

sorry your not talking to a novice here, iv been living with ms from the age of 5, other people come to me for help not the other way round, and i know what ur going to say next. please dont you only insult my intelligence, but you can be an ear, and i'll tell you of my big plan to bring awareness to as many peps as pos, sorry to be blunt, as a biker we do tend to be direct

@lauraironstalksms

3 жыл бұрын

Don't apologise for being blunt, I prefer people just say what's on their mind! Easier that way :-)

@kitshrapnel8548

3 жыл бұрын

@@lauraironstalksms you are a biker, morning from Cornwall ; )

@lauraironstalksms

3 жыл бұрын

Good morning from Wales to Cornwall

@kitshrapnel8548

3 жыл бұрын

@@lauraironstalksms Hi to all M S warriors. I had an awakening last night, thankS in part to you L, i WANT TO TELL THE WORLD OF MY PLAN. but I dont want anyone to nick my idea, I would love it if you where part of it, everyone will get the chance to be part of it. I would like to private message you but dont know how, technophobe me, Kicking and screaming into the 21st century.

@kitshrapnel8548

3 жыл бұрын

@@lauraironstalksms Thanks your a star