Erbs Palsy - Emily's story
Emily was born with a condition called Birth Brachial Plexus Palsy or Erb’s Palsy, she was unable to use her left arm. Her parents share their story.
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Пікірлер: 117
Thank you so much for sharing. We need the hope right now for our daughter.
@stayscheming4826
3 жыл бұрын
Yes hope is good ..All the best with her
@dynamyt5686
3 жыл бұрын
Thank you! She is doing so much better. We have more progress to make, but I'm amazed at where she is today.
@zazi5094
3 жыл бұрын
@@dynamyt5686 Congrats!❤
@danso_eva
2 жыл бұрын
My son suffered the same fate but getting better.. he is a year old
@violetaoana1563
2 жыл бұрын
Hello everyone! Did everyone's Child had surgery? Or only phisical exercises? Thank you
Bless her little heart ♥️ hope she is still progressing and living her best life. I am now 18 years old i have Erb’s palsy in my left arm I can put up my arm slightly I can move my pointer finger and my middle up and down and my thumb although my ring finger and pinky I don’t have full control my arm stays angled I can not straighten it nor can I not put my arm up. I can move my wrist and grab with my left hand but my bones are very fragile and because of my injury I grew to have arthritis and on and off pain more when it is cold, Since I was a baby I had physical therapy i had one of the worst case it was one of those situations where I had to get worse so I can get better and I say that because I can now except that I won’t be able to do the same activity as my friends and that okay yes I went through bullying and that’s ok yes I felt different but Its okay I grew to love myself and I was happy to be alive to be able to be independent and strong I hope she doing well and no matter what anyone says please tell her “she stronger than she thinks” 😊
Thanks for making this video!
I have erb's palsy of the right arm, Had surgery when i was 8. I am 29 years old now. Have limited rotation, A lot of pain through out it. It still doesnt bend at the elbow. Thank you for sharing, Didnt realize how many children and people have this disability like me.
My lil girl was born with it as well , I'm happy for ur lil angel she's getting better , mine on the other hand it doesn't seem we have such expertise here in Jamaica ..been two months and all that she got was one session of physiotherapy for like 20 mins
@rachelaine2164
3 жыл бұрын
Mine was with it too but we took her to some local doctor who healed her with herbs
@stayscheming4826
3 жыл бұрын
@@rachelaine2164 they healed her palsy ? U mind emailing me ? matthew.s.bandoo@gmail.com
@rachelaine2164
3 жыл бұрын
She recovered completely and she uses her right hand
@rachelaine2164
3 жыл бұрын
What's up on +256786530786
@awinoiscaroguta4812
2 жыл бұрын
@@rachelaine2164 how I wish I can get that Herb my son is safering alot
Was she able to move her hand fingers before the operation?
i have this in my left arm too. i don’t really know much about it but it was completely paralysed when i was born and i had to to have an operation at 5 months old. i’m 14 now and it still doesn’t go fully straight or work as much as my right arm
@jasminekiran6487
4 жыл бұрын
We also done an operation for our child at his 6 month now he is 2 year but there is not big results
@gissellemarquez9513
4 жыл бұрын
I have it too but I didn’t have the surgery. I went to therapy since I was 4 months up until now(I’m 19). It is still slightly bent and weaker than my right arm but I can still do many things without trouble
@iamsamysosa
4 жыл бұрын
Same
@fromisworld5444
3 жыл бұрын
WAIT SAME
@emilyabbott5269
3 жыл бұрын
I have it in my right arm which was like yours; completely paralysed until I started doing physio but it took a while for me to move it on my own, I had no operations on my arm just physio. I know quite a bit about it so if you want to know a bit more about the condition just let me know :) x
In which month they did the operation
Amazing progress.. my niece is now 4 and had the same, she was also under Dr Quick's care, he is outstanding. Unfortunately my niece's right arm is not yet fully functioning as Dr Quick said she's had the worse case he has seen however she is making progress every day and tried ever so hard to use her right arm and hand. :)
@chukwefamily7273
4 жыл бұрын
I am 10 yrs old and have Erb’s palsy. I am also under Dr Quick’s care. I think he is an amazing doctor who knows what he is doing. Even though I have had many surgeries and more to come,I trust him very much with my arm (I have more trust in him than my mum)I have Erb’s Palsy on my right arm
@jaideepvasava
2 жыл бұрын
@@chukwefamily7273 Me too, I'm 16 now but I had one surgery back when I was 5. Before that surgery I couldn't move my arm at all, years later, I can work it just fine with some limited elbow and wrist movement and a little numbness throughout some parts of my arm for which I'm getting another surgery in a month.
@Monirulislam-rq7di
Жыл бұрын
May I get the email / contact address of Dr. Quick if you have / don’t mind to give it that.
Hey my son has it and i would really need some help
I have Erb’s Palsy in my Right arm, I haven’t had any operations in my arm and I’m 20yrs old now and have movement in my arm. I’m seeing a physiotherapist and have been all my life, I manage with my arm being the way it is, I love horse riding and manage to do it perfectly. My arm doesn’t stop me doing what I want it just means I have to be careful and cheat :D Glad that Emily is managing after the operations she’s had as I know first hand how painful Erb’s Palsy can be especially in winter and cold days.
@RNOHnhs
4 жыл бұрын
Thanks for the comment Emilea.
@Jaylynnsierra
4 жыл бұрын
Hey Emilea, I’m 20 and have Erb’s Palsy in my right arm, too. Can we stay in contact in attempt to work together to strengthen our arms? I’ve been trying to strengthen my arm at home as well as straighten my elbow by just starting to do push ups (I couldn’t do any before as my right arm was hindered and my left arm would almost totally compensate).. if you’d like to talk more please respond!
@thangarajv2985
3 жыл бұрын
Pls i need your help which physiotherapy. You given for afected arm. My baby 10 days old pls hell me
@thangarajv2985
3 жыл бұрын
@@Jaylynnsierra Mam please. Tell me how you treat this condition my baby 10days old newborn. how can i treat please. Help me. I want. Your contect number or email pls mam
@thangarajv2985
3 жыл бұрын
Hi please. Share which exercise. You following. Pls tell me. I am follow that method of my baby left arm
So sad my 8 months old also has this problem 😪it's heart breaking
@dynamyt5686
3 жыл бұрын
I hope your little one is getting better. I know how you feel!
@AbhishekJain1992
2 жыл бұрын
When did you found this? How is he/she doing now? Need to know for my 6 days old.
@shanustuffs5766
2 жыл бұрын
@@AbhishekJain1992 have you got help brother? If not yet, May be i can help you with some informations. I'm from kerala.
@simoneovermeyer5560
2 жыл бұрын
@@AbhishekJain1992 my son is two years old and his had a operation.however still doesn't have full function in his right hand or arm,I got so much emotions towards this doctor I don't know how to just accept it.im jobless have to see to my boy and my life will never be the same again.
@shyamsrk7200
Жыл бұрын
@@shanustuffs5766 Bro pls help me im also same situvation
Thank you so much for sharing 😌 My seven years old son has palsy but we don't have such resources in our country. Sometimes we feel helpless because we don't know what to do next
@kumswu5709
2 жыл бұрын
How's is your baby now after 7 years? My daughter is suffering the same
@MakeupByShafqAsim
Жыл бұрын
@@kumswu5709 He have no sense in lower of his arm. And also he doesn't have hand movement.
@kumswu5709
Жыл бұрын
@@MakeupByShafqAsim which country are you from? I think surgery is good option. My daughter is 10 months old, she's recovering slowly 🙏 I hope and pray same goes to your son..
@MakeupByShafqAsim
Жыл бұрын
@@kumswu5709 I'm from Pakistan. Where you from???
@kumswu5709
Жыл бұрын
@@MakeupByShafqAsim I'm from India...
How old emili getting surgery?
Is your baby's affected hand is shorter than other hand??
We couldn’t figure out what was wrong. My son’s arm was weirdly stiff and his pediatrician said he’s just doing that out of habit. Just did some research and he has all the symptoms of erbs palsy. He’s 5 now. Hope there’s something that can be done now that he’s older. Will call his pediatrician in the morning
@ZenitsuKunn
6 ай бұрын
Update? I'm 17 now and my parents stopped my treatments as s baby. It still affects my life to this day..
Too late for me!I am 45 years old!
Sir, How many days we should stay at London for Surgery. Because we need to plan as a overseas patient, before we proceed. Thanks
@RNOHnhs
7 жыл бұрын
If you contact www.rnohppu.com/ they will advise you on staying
How is emily now..? My daughter is also suffering from erb palsy She is 10 months old now
@kierstenpeters3220
2 жыл бұрын
What’s signs did you notice ? My ten month old is showing signs but hasn’t had a diagnosis yet…
Sir, could you give the contact detail of the doctor... I would like to go to London for treatment. Thank you
@RNOHnhs
7 жыл бұрын
For overseas patients, we advise you contact our Private Patient Unit: www.rnohppu.com/
@binnirai4013
6 жыл бұрын
Same case with my daughter pls help me
@pregerbspalsy1744
4 жыл бұрын
@@binnirai4013 #preg&erbspalsy Hopefully this channel will help
@pregerbspalsy1744
4 жыл бұрын
@Madhuri Bahkar #preg&erbspalsy Share your knowledge about Erbspalsy to increase the awareness..
@thangarajv2985
3 жыл бұрын
Brother ippo unga. Child eppudi irukkanga. Ennaku unga help vendum pls My baby also having this problem pls help me ennala antha baby ah pakka pakkah rompa kastamma irukku unga baby fully curable ah sir. Contect number venum sir pls
Hello there, May I hear something from you about this Erb’s pulsy? My new born baby affected with this during his birth maybe. Now he is 23 days boy. I wanted to know when did you undergo for the surgery? On top that did Dr. say it is curable completely? Our therapists said it’s not curable but manageable. Looking forward to hearing from you something.
🙏🏿🙏🏿
i also chave erbs palsy on my right hand and my friends are always making fun of me for looking like a dinosaur
@cristobalbrown-salinas9548
4 жыл бұрын
everyone is different in one way or another!!
@FSfamilysweetlifeblogs
Жыл бұрын
Fight my daughter have the same problem
@assantuadouglas5101
Ай бұрын
These people are not your friends...
My baby also has the same issue as Emily, is there any hospital recommended nearby India or Singapore for surgery? Kindly treat this message is urgent.
@shaiknagurbasha3921
6 жыл бұрын
in India ganga hospital, Coimbatore.
@asiyasyed9992
5 жыл бұрын
Hii siva how is your baby now??
@kavithas676
4 жыл бұрын
Sir ru in coimbatore. My baby also has erbs palsy
@kavithas676
4 жыл бұрын
Siva how is ur baby now
@kavithas676
4 жыл бұрын
Mathlap. I dont know hindi Madhuri
Hi hi guys
Me
😍😘😘😘😘😘😘😘😘😘😘
Hey my son has it and i would really need some help