Worth watching 14 minutes of my live. And love all the bits you explain about the pain. I am going through this pain since I got my first period. Took me years to suffer. I am 35 now and came to know about endometriosis. I feel exactly same pains you just described. Boom in my back and rectum.

I have an appointment with my doctor this week and I’m 100% asking for an ultrasound. I have every single symptom you described including the joint pain, so sorry you had to go through this and for the medical gaslighting you endured. Thank you for this video.

Wow, so shocking that it took so many years of suffering to finally get a diagnosis! Which makes your video here SOOOO IMPORTANT for other woman who are searching for answers to their symptoms. Thank you for putting this video out there. You will surely save someone else from going through suffering as long as you unfortunately had to... I hope you are feeling a bit better now.

Clicked on your video because of your thumbnail (hooked fingers) and I just knew instinctively that you were describing the hook like pain I get too! Hope you’re feeling better :)

Thank you for sharing your story. ❤

Thank you! Very helpful.

Yep! Everything you described especially the up the bottom poker stick pain 😭 I have stage 4 was diagnosed in 2019. Hope you are keeping well x very interesting I get pain in my left shoulder when my endometriosis is in flare and it’s gradually getting worse over the years 🧐

@endochatwithshannon2749

2 жыл бұрын

Thank you! It’s at least good to know you’re not alone! I’m ok thank you. It’s under control at the moment, hope you’re ok x

@lindanorris2455

2 жыл бұрын

me too! STAGE 4 - FULL HYSTERECTOMY (1980's) still have it!

Thanks for sharing ❤️

I have pcos along with endometriosis and i felt all the symptoms in my body as you described them😣

Thanks for the vid!

The ‘flowing up the fallopian tubes’ is just a theory (retrograde menstruation) which I believe is now thought to be not true. I have stage 4, in my case there are dragging and heaviness sensations, serious pain when sitting (not shooting, just intense ache), shoulder and upper back pain from diaphragm Endo, causing migraines. I’ve been “lucky” in that I’ve never had screaming or dropping to the floor. It makes me miserable though and so tired. I had 7 ultrasounds before someone thought they might be seeing an Endometrioma. I’m having excision and total hysterectomy soon.

I had my first surgery 2 years ago, stage 4. Finally diagnosed after 25 years of suffering. Had a bowel resection and a million other things done too. Surgery number 2 is this month. I have a constant stabbing pain in my left ovary radiates down my leg to about my knee, and into my back. Days where I can’t walk. I completely skip periods because they’re debilitating and I look like I’m having a heart attack when I get them. I lost my right Fallopian tube. May lose my left ovary with this surgery. Did one round of ivf and doing another after this surgery. My pain started with just period pain when I was 10 remember being on the floor puking. Pain is chronic now, some days worse than others and I get nerve blocks every 3 months.

I have 2 cyst on my only overy left I did get hysterectomy about 8 years ago, they saw I had endometriosis, and 2 years ago pain started again, doctor disregarded it saying it may be because of cyst, and now waiting to see if they will operate and burn the leisures, they are so bad, I am on orilissa now 3 weeks in and not removing the pain I did stop drinking I'm cutting back on smoking as well, it suck

I'm feeling your Endometriosis service pain while having endomeioiss cause I have the same symptoms of Endometriosis and painful Endo flair ups physically with endometrium)

I cant figure out if it is sciatica or endometriosis i have both. But the pain is like being stabbed in the lower back. I have some joint pain lol. But i am older now. Thanks for sharing

Ive been experiencing dull, stinging pain on my lower left side for the past month. It started before my period and I thought maybe it was a cyst that has ruptured? My period was delayed for a week and a half. The dull aching feeling didn't go away after my period. I went to the ER and blood test, urine, and ultrasound found nothing. I even went to a gastroenterologist to see if it was something else, and he told me I should wait for my gyno appointment. Waiting for an answer I'm just so desperate and in so much discomfort.

@Sofierdz

4 ай бұрын

I had the same thing! I went to a women’s health clinic and nothing. They said I was fine. I ignored my pain after that. I was bloated for no reason. My lower left side felt like it wanted to rupture. I would google it and idk it could be a pelvic pain area. Until I finally saw a gynecologist. I told them my pain, what were my concern, I Told them everything! They did a Pap smear and an ultra sound. Couple days later they told me my result. I had cysts. So I went to surgery couple weeks later. After my surgery told me I have PCOS and Endometriosis. Endometriosis is only diagnosed when they perform the surgery. That’s the only way they can know if you have it. So when I recovered from my surgery that awful pain I had is gone. I do hope you get the help! Don’t ignore your pain. I recommend you to see a gynecologist! 😊

👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍 Video about your Endometriosis story)

I feel the knife pain after my surgery in my period

looks like gobs of blueberry jelly when it leaves your body.