Emily is a dear friend of mine, and we both were expecting our first child, both daughters, at the same time. Hearing about her losing her daughter when I was days away from hopefully bringing my own daughter home, was something I will never forget. Each year that my daughter has a birthday, it is a painful reminder of how hers isn't here to celebrate one too. I'm grateful for the knowledge Emily has now and the courage she has to share her story! We will never forget Addison 💜

I noticed itchiness at 33 weeks pregnant and I thought "it's gotta be either bacterial or something wrong with my blood" (it was so insatiable!!). So I told my doc and they got me tested and diagnosed. I am so glad that I got diagnosed early. My OB has my back and we made a plan today to induce labor at 37 weeks. I'm so glad that we didn't go with a midwife. My OB is so on top of things- incredibly capable. I'm new to this community but I am so glad that it exists because its so few of us who experience it. Stillbirth is so scary. Thanks Emily for sharing your story. It means a lot to me.

Thank you for sharing with us! I'm so sorry that you lost your baby girl. My daughter just developed this condition. We are praying for God to protect our first grandchild. I'm glad God blessed you with more children. God bless you!

I was recently diagnosed at 30 weeks and I got my test results within one day after the labs

Omg...I'm so sorry for your loss. I'm currently pregnant 36 weeks and they are monitoring me for this..

@icpcare

5 ай бұрын

Thank you for sharing.

@Neutrallover08

5 ай бұрын

@@icpcareI ended up getting preemclamsia and cholestesis. They induced me with the balloon. They gave me pitocin and magnesium and then did an emergency C-section. The baby also pooped inside me.

@Random-gw1sk

5 ай бұрын

@@Neutrallover08how many weeks are you? And they did not try to do epidural to deliver the baby normally? Please let me know your experience

@Neutrallover08

5 ай бұрын

@@Random-gw1sk​​⁠On Dec 13, I went to a routine and was told I had to be induced due to preemclamsia. They did the balloon to induce me. No epidural until 30 minutes before emergency csection. They gave me magnesium.

I’ve been itching like crazy this weekend. Waiting to hear back from my midwife tomorrow. I’m so nervous.

I live in Georgia as well not too far from loganville and I have ICP but I got diagnosed at 20 weeks

I had icp soooo bad, worst case Dr's had ever seen,so bad they blew it off as not being cholestasis because it was head to toe,face to bottoms of my feet, I was covered. It was horrible! They ended up not actually catching it until I was 39 weeks even though I had gone in at 37 weeks to be seen for this and when they did my Labs at 39 weeks as soon as they got my labs back they set me up to be induced the next day. I am so thankful my daughter was born healthy . I tried getting them to test me multiple times and they didn't believe me. When I went back a 3rd time my husband came with me, he told them this is not normal and that I was awake all night ripping my skin apart and that it wasn't just stretching skin. With my first pregnancy I had PUPPP rash, also head to toe itchy, only not harmful to baby. I haven't met anyone else who had cholestasis as bad as I did. Many just have it on hands and feet and sometimes their belly. I feel like cholestasis is not talked about enough, I didn't see any videos about it back when I had it 8 years ago. I was terrified of a still birth the whole time and I was so angry at the doctors for not believing me when I told them what I had wasn't normal. Your story is so sad, I'm sorry this happened! I was soo scared I would get it again with my 3rd pregnancy and I was seeing a high risk doctor as well to keep an eye on me and baby to be sure I didn't get it again because it's actually more likely once youve had it before and knowing I had PUPPP the first time I felt like I was doomed to get some sort of dash or itching disease with every pregnancy. But I absolutely agree, so many doctors just don't know what ICP is, I stumped a lot of doctors before they figured it out and it took them weeks. I could of easily been in the same situation. I consider myself lucky everyday to of had a healthy baby.

I’m so sorry for your loss! I was diagnosed with icp at 9weeks and I’ve been trying to find someone who has had a similar experience but still haven’t found anyone who had icp this early. If anyone has any insight for me I would love to hear it! This is also my first pregnancy.

@icpcare

5 ай бұрын

Thank you for sharing. You are not alone. Please join our support group to connect with other Cholestasis of Pregnancy Moms and members of our community. icpcare.org/icp-community/support-groups/

@kateamundsen8758

3 ай бұрын

Hey, what's the update? How are you doing? What is happening with your bile acid levels? Sorry if this is um.... invasive.

@pranali17

2 ай бұрын

I am diagnosed this at 16 week..I am really scared now.

I’m over 35 and I’m 32 weeks pregnant. I just started noticing a lot of itching of my hands and feet today so hoping it’s nothing but wanting to get tested to be sure. This is my third. Last one was a homebirth and have been planning another.