Dystonia: Lori Marble's Story

Пікірлер: 6

  • @FullTimePatient37
    @FullTimePatient37 Жыл бұрын

    You are so beautiful ❤️ I have a general Dystonia..I know how it feels 😢

  • @keedybaby9243
    @keedybaby92433 жыл бұрын

    Amen

  • @henoktibebu74
    @henoktibebu7410 ай бұрын

    Thank you for sharing Lori I just started researching on Dystonia for my one year old son. Can anybody please help? I don't even know where to start

  • @snshnaub1

    @snshnaub1

    7 ай бұрын

    Find a neurologist, I had to go to 7 different doctors to finally get diagnosed properly.

  • @snshnaub1

    @snshnaub1

    7 ай бұрын

    It’s a very painful movement disorder. I’m on Sinemet a medication for people with Parkinson’s it’s called Sinemet it’s the best thing that ever happened to me. I take two three times a day. If I forget one does I’ll get an outbreak of it. It’s very exhausting