Thank you for your honesty! Maybe hard for some to hear, but I’m a realist and like to know what I’m dealing with!

@theadaptivefamily

11 ай бұрын

Thank you, and I'm sorry to hear you have it as well

This is honestly one of the best things that has happened to me on my TM journey. While you're better off than me (being able to walk/move without crutches/wheelchair) everything else was so relatable and I really needed to hear this and relate to somebody. I'm gonna pay even more attention to my diet. One thing I guess may be unique to me is bladder pain if I don't drink a lot of water. First thing in the morning and all through the day, otherwise the burning is unbearable.

@theadaptivefamily

Жыл бұрын

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I'm 1year 6 months in with tm and these is exactly what I'm going through ..thanks alot for sharing your experience 👍

@podcastguru8

3 жыл бұрын

It'll great if you can share your workout routine and the exercises you do😄

@theadaptivefamily

Жыл бұрын

Will do. I apologize for the delay in responding

Thank you for sharing. I am so glad you are so honest. I have experienced all of these same issues with bowel and bladder. The numbness is crazy for sure. And each day is definitely different.

@theadaptivefamily

Жыл бұрын

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Your determination to take care of yourself and your family with a positive mindset is very encouraging! I don’t have many noticeable residual effects from my TM, and I honestly don’t take care of myself as well as I should. Your story reminds me of the Apostle Paul, because in a very real way, you’re finding your strength because of your weakness. (2 Corinthians 12:10)

@theadaptivefamily

Жыл бұрын

Thank you so much

Your vulnerability is the encouragement others are receiving.

I'm going through the same thing, the only thing is I'm still paralyzed almost 4 months now from the chest down

@theadaptivefamily

Жыл бұрын

I apologize for the late response.I, sorry to hear that. Any new developments?

Hi thank you for your video and i am glad your doing vrry well.. I am 6 months into TM. I cant pass bowel movemts. And bladder issues just dribbiling and sometimes not been able to wee at all.. But my question is do you have frozen and numbe feet and legs? Thank you.. Well done your a great dad also..

@theadaptivefamily

2 ай бұрын

Thank you. Have your tired strengthening you core like pelvic floor exercises? That helped and continues to help me with bowel and bladder. In regards to frozen feet it comes and goes. It mainly my right foot that feels frozen some times

Did you have urinary retention initially? How long did it take for you to start walking from the day you got TM? Thanks

@theadaptivefamily

Жыл бұрын

Thank you for your comment 1. I do have unirinary retention which is why I make sure I drink plenty of water to make sure it being filtered through. 2. From contracting the disease to taking my first un assisted step was about 4 weeks

@KaranSingh-io6ds

Жыл бұрын

@@theadaptivefamily I just got diagnosed with TM about a month ago and originally I had lost most of my mobility in my legs and they were very numb. But a month out now and I’m able to walk unassisted for short distances. Im looking forward to the recovery the next few months bring me. Unfortunately I’m still have to intermittent catheterize because I have urine retention. I’m hopeful my bladder will start working on its own again. Did you have to catheterize initially as well? Thank you for sharing your story btw, it got me through the first two brutal weeks. Your an angel!

@theadaptivefamily

Жыл бұрын

Thank you for the kind words Yes I did begin catheterization when we I was discharged. Once my bladder got stronger I slowly pulled away from the frequency of using the catheter. My bladder strength came through specifi abdominal exercises

@darrellmckelvie

26 күн бұрын

Great video, amazing advice, dope community you’re building. I found lymphatic massage to be my effective route to bladder/bowel function. It’s rare to find someone capable, and it’s a vulnerable experience. But that turned my condition around quickly (at least as far as those symptoms, which can be some of the more annoying issues). Best of luck to you both, thanks for sharing ❤

halo i am also this provlam. How can i recover my shelf.. My bowel sistem is so wicks.Place halpe me i am very poor.

@theadaptivefamily

Жыл бұрын

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