Thank you so much, Noura, for another informative video. The work that you do to help empower those of us caught in the Cushing's pre-diagnosis undertow is so valuable. I cannot overstress (this will forever be a pun now) how useful of a resource you've been for me this past week of learning where we're leading with a diagnosis. I really appreciate you.

@Chronicallyyours_

2 жыл бұрын

thank you so much. this is a very kind message

Ur amazing so glad I found your channel. Glad you finally got diagnosed. So you could get the treatment and your life back. My mum and me think I have had cushings for at thirty years. Yes I know you probably think I should be dead by now. But my endocrinologist was rubbish and I didn't fight to see another one. I had a scan for pituary tumour. But when that came back normal. He didn't do any further testing. I have been existing not living for a long time. Haven't been able to work for the last 8 years. Due to exhaustion and lots of other symptoms. I feel defeated but I think. I will go private and pay for a body scan. I'm in the uk and they keep saying how rare it is. But like you said, you just know your own body 🙏

@mind_of_mine

3 жыл бұрын

Do you have other visible symptoms like the striae marks or the buffalo hump?

@Chronicallyyours_

2 жыл бұрын

Hi! I'm so glad my channel has helped you. Have you been able to do testing since this comment?

Thank you for making this!

@Chronicallyyours_

3 жыл бұрын

thanks for watching!

Hey good to see ya back! I finally got into my endo appointment but she looked at all my tests and says she thinks that the high cortisol is due to depression and anxiety and that it's fibromialga instead of cushing's. Taken a year to get to this point and feeling kinda discouraged now. When I asked if there was anything I could do about fibromialga her only suggestion was to smoke weed ... Yeah.... Thanks doc lol.

@Chronicallyyours_

3 жыл бұрын

Do u have Instagram? Hit me up on IG (in the video) and I can talk you through it

@stormtrooper2425

3 жыл бұрын

@@Chronicallyyours_ ok!

i have lower testosterone and longer periods (irregular lengths of bleeding 5-8 instead of my previously 4 without fail)

@Chronicallyyours_

2 жыл бұрын

Ah interesting! I had the opposite

Noura can you please make an ACTH video?

@Chronicallyyours_

3 жыл бұрын

Yes for sure

Please do more about acth!

@Chronicallyyours_

2 жыл бұрын

sure, do you have a specific question?

@brookeb4966

2 жыл бұрын

@@Chronicallyyours_ well … I’m just trying to understand it and learn more. From what I’ve been researching I feel like it has left some info out. Got bloodwork back today and mine was 279pl/mg. Is there a range for acth that indicates cushings? Or is it just if it’s out of the normal ranges? Oooor is it a mixture of certain levels of acth and cortisol?

@brookeb4966

2 жыл бұрын

@@Chronicallyyours_ thanks also! You’re videos are very informative!

Sorry if this was already answered but can you battle with nausea with Cushings?

@Chronicallyyours_

Жыл бұрын

yes, but usually it is a sign of a low cortisol moment

Can u have hypothyroidism and Cushing ?

@Chronicallyyours_

3 жыл бұрын

You can indeed

@itsmexena4727

3 ай бұрын

I do 😢

My apologies I just reached out on Facebook, I’m sorry I missed the Instagram account would someone share that with me please?

@Chronicallyyours_

3 жыл бұрын

hey! no worries. IG is @chronicallyyours_

@bismarkavenue7361

3 жыл бұрын

I made that mistake too. I sent a request on Instagram when I got to the video where she mentions it. I should have read the description. Did you by chance find who her endo who successfully diagnose is?

I have a Buffalo hump. Does that 100% mean it’s Cushing’s?

@Chronicallyyours_

3 жыл бұрын

No, but I would get a cortisol workup

@Mztastyish

3 жыл бұрын

@@Chronicallyyours_ ok, ty

only 50% of cushings patients have striae

@Chronicallyyours_

3 жыл бұрын

Hi! All my research shows it’s much higher then that - 70% is the most common number I see.

@rachelharris725

3 жыл бұрын

I was a severe, pathology proven case and I didn't have it or the hump.