What great people Barry and Annette are...thank you!

What a great conversation. What amazing attitudes about the situation.

@teepasnowvideos

3 жыл бұрын

Thanks! We all hope to keep that positive outlook on life... thanks for supporting us to share this story.

I just love Teepa!!! She's so patient

This was an awesome video. I am always telling Gary (my husband) that it's not him, it is Lewy. He's aware most of the time but when he's not and I say that, he will usually say "That's right, dang bluey." No doubt this is a very tough thing and it's not easy for the one with it or the caregiver (me). Thank you Teepa for doing these videos. This is the very first one I watched. It was helpful to hear it from Barry.

@teepasnowvideos

11 ай бұрын

Hi, @deborahwestoby4084! Glad that you enjoyed this video. If you'd like more on Lewy Body, you might want to check out (shop.teepasnow.com/product/other-dementias-lewy-body/) or (shop.teepasnow.com/product/2020-pac-virtual-conference-living-under-the-umbrella-of-dementia-lewy-body-dementia-online-course/).

Thank you Teepa.

@teepasnowvideos

3 жыл бұрын

You are so welcome @Scott, thank you to Annette and Barry for their willingness to have the conversation! teepasnow.com/resources/about-dementia/courageous-conversations/

These videos have helped so much.

a wonderful attitude

Wonderful conversation with Barry and Annette, thanks Teepa!

@teepasnowvideos

2 жыл бұрын

Hi, Creeky (@Karen Creekmore)! Shelly from Teepa's team - so glad you found this conversation interesting. I hope that things are going well for you these days!

These 2 are amazing! Love and blessings to them both! 💗

@teepasnowvideos

3 жыл бұрын

Agreed, they are incredible!

Good things come from Wales.

Wonderful couple helping teepa xx

Beautiful🥰

Oh i think my moms has lbd .. But doctors seen not to agree with that and keep giving her psyquiatric treatments ..cause she was really fine 5 months ago. Its such frustating .. Shes gaving terrible alucinations and she cannot sleep. And she still understands it all. Im from argentina . Im trying to get and specialist in this. Because they dont know this illness.she also thinks im duplicated at night.. Thank you for this

@teepasnowvideos

Жыл бұрын

Hi, @Irupe Ventura Seijo! Sorry to hear that you are having diffuculties with the doctors. If you would like to get more information about LBD, try contacting the LBD Association (www.lbda.org) or check out some of the other videos on our website (teepasnow.com/search/?search=lewy%20body%20dementia&search_filters=%7B%22products%22%3A1%7D)

Very good! Super informative!

@teepasnowvideos

2 жыл бұрын

Wendy, Thank You! If you are looking for more content please subscribe to my KZread channel as well as to our free monthly Online Dementia Journal (teepasnow.com/online-dementia-journal/).

Awesome couple. To use humor is so great.

@teepasnowvideos

3 жыл бұрын

Glad you enjoyed it! We totally agree, humor saves us:) Lauren continues to be our light through this journey: teepasnow.com/blog/lauren-with-a-side-of-lewy-perspectives-of-living-with-lewy-body-dementia/

So many often think you realize the details when they are only speaking in generalities. I seen this with my mom so often. Teaching those cues make a vast difference.

@teepasnowvideos

Жыл бұрын

Glad to hear cues are helping @Deniese Kline-Thatcher!

@deniesekline-thatcher8380

Жыл бұрын

Thanks Teepa my daughter graduated from Pitt dental school of Medecine as a licensed dental hygienists & often we are shocked & speak about how many professionals are losing insight to common sense prep care to patients of all types not just those with dementia. She teaches & trains her companies licensed dental hygienists regarding professional & caring for patient practices. When my mom was dying of cancer I was appalled at the fallen realization of importance of proper caring techniques & lack of disrespect for not just my mom but many of their residents. Also hospitals they know how to give great emergency care but then they drop the ball. 🤷‍♀️🙏

Hi Teepa! I was wondering when he was diagnosed with LBD. He seemed to be cognitively intact and I know memory issues is not a problem with LBD not until later or the advanced stage. But great conversation, thank you!

@teepasnowvideos

3 жыл бұрын

Good question @Marizen! We have a lot of resources on LBD and some great conversations with a few of our PAC Core Team members that are Living with Lewy:) teepasnow.com/?s=lewy+body teepasnow.com/resources/for-people-living-with-dementia/print-resources-for-plwd/ teepasnow.com/about-dementia/ teepasnow.com/resources/for-people-living-with-dementia/

he sounds so intact...I would give anything to have a conversation with my Father...my Fathers voice is disappearing...the words are all but gone..

@teepasnowvideos

2 жыл бұрын

Hi @Alison Howells, it sounds like you are wanting to talk with your Father more. We know how difficult that can be when words are disappearing. I'm wondering if you might be able to connect with him through singing or listening to music that you both enjoy - sometimes being with each other can provide joy. If you'd like to connect with us, please reach out to talk 1-877-877-1671 or consult@teepasnow.com (we provide free 30-minute talks).

Teepa, I was wondering if you could link some information on younger men who seem to have LBD? Or, is it possible that I can email you? Because of Covid, trying to get an appointment with a neurologist is delayed. I know something serious is going on, but with no official diagnosis, I am stuck with what I can really say or do. There are definitely indicators going on , and things have changed very rapidly in the last few months. I could really use some advice from an expert.

@teepasnowvideos

2 жыл бұрын

@Tara K, we see that you asked us twice for some information, please see the earlier comment we made about our consults (email us at consult@teepasnow.com)

How many years has he had diagnosed lewy body?

@teepasnowvideos

3 жыл бұрын

I'm so sorry, we don't have this info but just to confirm Barry is the gentleman with LBD. Annette is his wife and care partner.

Are both hands shaky or just one

@teepasnowvideos

3 жыл бұрын

Great question...they did not share this detail with us but we know it can be one or the both when it comes to LBD.

My father has Alzheimer’s and Lewy Body dementia.

@teepasnowvideos

3 жыл бұрын

Hey @Wendy, we can happily connect and work to help you find the humor and joy in this for you and your dad. Check out our Consultation offers: teepasnow.com/services/consulting/

Does Barry ever wake up before his usual time

@teepasnowvideos

3 жыл бұрын

He did not provide us with this info...but we do know that sleep can be an issue for some folks.