This is all such wonderful news with the new you ! The donor family have given you the most beautiful gifts ,the gift of hope , a better life, & more time to love your family. It's also important to us to see you doing so well , to see the big difference might also others to make the same choice as you.

You look and sound amazing. Thank you for the update. Beautiful RV! Great adventures ahead.

Dont worry about the hair! You look amazing!

I am so happy you are doing great. You look great too. Wiggs are a great alternative. 😊💐🐝

Hey Barbra. With or without the hair I bet your going to be the prettiest camper out there. Your happiness is shining. And i bet your husband would agree. Today was the first day i couldnt walk through Walmart without losing my breath. Couldnt do it. I've got a long way to go.

@BarbraMyPHCOPDLife

3 жыл бұрын

Hey Tommy hang in there! Keep working at it ... keep taking care of yourself and most importantly just keep moving. I am proof that you never know what is right around the corner 😉

That is a beautiful RV I am sure you will enjoy it....glad you are doing well.

Nice to see you! I’m glad you are doing well aside from the side affects from your meds....hopefully it will subside soon....love the RV & your pics especially the one of you & your husband....take care & have fun...you’re in my prayers 🙏🏼

Hi Barbera, good to see you going so well😃. Lake Havasu-☀️ AZ.

Ive been following some of your journey within the past few months being diagnosed myself. I have adult onset asthma and Copd. Im 40. Just had my first bronchoscopy a few weeks ago..I was given general anathesia for it. Im so happy that you got your new lungs !!!!!!

@BarbraMyPHCOPDLife

3 жыл бұрын

MommyAtHome I know it's so hard to be diagnosed so young, but just hang in there and take good care of yourself and most of all just keep moving! So many new things on the horizon ... so many new treatments and so mcuh better results from older treatments as well. Have you been tested for eosinophils? If not ask your doctor, could result in a simple solution.

Great video, thanks for the info! Happy trails to you! ⛺️😄

I’ll take a wig anyway! Tired of doing my hair! Lol so many beautiful ones out there today! One day you can be blonde, another brunette, wow!

Happy to c u. I have a suggestion on your hair. Rinse in near cold water and then lather up and only have water temp just slightly under warm water. Rinse well and then final rinse with cold water. Just towel blot your hair. Nothing vigorous. As you don't want he hair follicle to break when drying your hair. Hope that helps. Enjoy your R.V.. summers upon us.

@BarbraMyPHCOPDLife

3 жыл бұрын

Thank you for the suggestion, every idea helps!

brand new rv wowsers

Hi Barbra, so glad to see you looking and feeling so good! Sorry to hear about the hair situation. That would be upsetting to me too. I must admit there are days I wish I could just throw a wig on!! I had let my hair grow out so I can braid it to keep it out of my ventilator mask at night. I just got through all of the doctors and tests that the lung transplant team wanted me to do and will be going for a consultation on April 21 to hear their conclusion. Your new RV is gorgeous! I am so excited for you and your family. Thanks again for all that you share about your experiences. It helps so much.

@BarbraMyPHCOPDLife

3 жыл бұрын

Hi Shelley! So how did things go for you on April 21st? I'm hoping well! I can't wait to find out! Hoping for the best for you! 😉

@shelleyb8873

3 жыл бұрын

@@BarbraMyPHCOPDLife Hi Barb! My appointment went well. They sent me off with a ton of more tests to have done and a booklet to read. The booklet was mostly a long list of all the reasons that they could drop me from the program. The rest was explaining all the things that could go wrong that I couldn't hold them liable for. Well, now I'm so unsure of what to do. My support group has dwindled down to 0. My husband has Crohn's disease and after 2 surgeries it has only gotten worse so we have to live one day at a time. My Bff was filling in when my husband can't and she just got a cancer diagnosis. My sister was helping but my Mom who is 83 and after a bout with what we thought was the flu was diagnosed with Colitis. She has been very weak and took a fall. So she needs constant care now from my sister. Thanks so much for asking. How often do you have doctor appointments now? Hope everything is going really good for you. I am so happy for you!

Ich hab schon viele Videos von dir angeschaut, kann aber leider kein englisch. Ich habe gerade die voruntersuchungen zur lungentransplantation und hoffe das ich dan auf die Liste komm.hab copd4 und emphisem. LG Sylvia von Germany

Also doesn’t such a major surgery in itself cause temporary hair loss?

@BarbraMyPHCOPDLife

3 жыл бұрын

It could be Amy ... I di have a little bit of hair loss right after surgery as well so that is quite possible.

What percentage does pft 1.69 mean?

@BarbraMyPHCOPDLife

3 жыл бұрын

I believe that is considered at the low end of normal. I was at 1.69 the last time I was tested.

This is all such wonderful news with the new you ! The donor family have given you the most beautiful gifts ,the gift of hope , a better life, & more time to love your family. It's also important to us to see you doing so well , to see the big difference might also others to make the same choice as you.