I just found your channel and immediately binged watched. I feel so similar with all my medical stuff. Thank you for being brave and sharing❤❤

Hi Jenni! Lovely to see you on KZread again! xxxxxx

@ChronicallyJenni

Ай бұрын

Thanks Penny, it's nice to be back! If a little sporadically at the moment x

The weather has been so u up and down and so rubbish I think we are all flaring! Xx

@ChronicallyJenni

Ай бұрын

I know it's such a nightmare isn't it! Sending love Beverley xx

Thank you for the video Jenni ❤

@ChronicallyJenni

Ай бұрын

Thank you so much for watching Julie x

Thank you for your video. My daughter has Hypermobility spectrum disorder and prob adhd. She has some similar symptoms, so your video helps me understand what she goes thro. It is very hard, especially the misunderstanding of other people. Showing people how it is will hopefully help understand better.

@ChronicallyJenni

29 күн бұрын

So glad your finding these videos helpful in understanding your daughter more xx

Thank you for the updates. Yeah i have to be careful too being I have POTS. Btw every time you yawned I did too lol

Thank you for sharing, Jenni. I've been having a some immobilising chronic pain so seeing you take it easy during a flare up makes we want to try and be kinder to myself. Take care x

@ChronicallyJenni

29 күн бұрын

Really hope it helps you be kinder to yourself x sending so much love x

Is there a sealife centre near you? That might be a fun day out?

@ChronicallyJenni

Ай бұрын

Yeah there are a couple not too far away they do go to the local one a lot already I think haha

La terapia aquí también es cara pero como dices con una discapacidad y con dolor es importante tener una buena terapia con alguien ya que si la sociedad no está lo bastante consciente con estos temas suele ser agotador aquí parece que tienes que ir pidiendo perdón por existir o necesitar. Me gustó mucho tus palabras de sentí compasión por mi misma, amor para cada persona que tiene que vivir con cualquier enfermedad deberiamos ser consciente de lo importante que es la salud, ser más amables y contaminar menos para cambiarlo. Es muy cansado medicaciones médicos hospitales depender ser capaz solo a veces y encontrarse mal todo el tiempo. Cuidemos unos de otros y al planeta. Eres muy valiente. Me encantó el momento sofá y perrito. A todos los que leen estar enfermo no es estar cansado, no, ojalá es sentirse exhausto después de cada cosa... Ser compasivos porque ni os imaginais lo agotador que es pelear todos los días con una enfermedad. Aquí si vas arreglado también te miran como no necesita la la silla de ruedas... juzgar es algo que acabará con la paz en el mundo como no lo cambiemos, cambiemos. Oto momento genial jugando con las niñas maravilloso. Me gustó verlo todo. Gracias por ser tan valiente.

The May Day bank holidays are about the pagan festival Beltane. No idea why we celebrate them. I’ve had the ‘incidental finding’ talk from neurology, I didn’t get a walk through of my scans tho. I’m glad they did that for you, it sounds helpful. I have all my appointments on the phone now to save the distress of going in.

@ChronicallyJenni

Ай бұрын

So random! Thanks for the insight! Yeah it was helpful I wish they'd have showed & explained why it probably wasn't causing an issue when they discovered it years ago though haha

The crocs 👞 🤣🤣

@ChronicallyJenni

Ай бұрын

I know my body obvious recognised I was wearing shoes when I left the house my brain just didnt take into account which ones haha!

Hi I’m fairly new to your channel and don’t get much info and support from drs. I’m intrigued about having a support worker. Also walking sticks any recommendations? X

@ChronicallyJenni

29 күн бұрын

In terms of support workers please check out my last video about the access to work scheme! And I have a mobility aid tour video coming out tonight for all my mobility aid reccomendations x Hope its helpful x