My 1 1/2" year old girl has celiac(just found out last mouth) i will do everything in my power to protect and guide her in life. I have to make huge lifestyle changes! thank you for having this channel. I have a lot to learn.

Thank you for continuing this work! I have profound fatigue even with a GF diet. It's heartening to know that there are people involved in finding more treatments. ; )

Just diagnosed at age 70 after 19 years of being told I have Chronic Fatigue Syndrome. I'm hopeful they were wrong. It sure explains having severe osteoporosis at age 50. Docs just shrugged their shoulders, even knowing I was a marathon runner before I got sick.

Thank you for the work that you do

That happened to me quite a bit when I was a little girl... I can remember my stomach hurting and my Mom would rub my tummy for me until I fell asleep

What is interesting is that all my skin problems and weight problems lear up when I'm off dairy as well as gluten. I don't have celiac genes. We will someday have a good test- No one should ever have to take poison to get a proper test. I can't imagine I lived for years in so much pain. Thank God for Gluten Free RN and Peter Osborne. I highly suspect Essential Tremor and Parkinsons are gluten and dairy related. Look how many people Dr Terry Wahls has helped who have MS.

Would be happy to do survey, 30+ years after diagnosis, GPS in my country discount celiac neurological symptoms,I now avoid doctors

@lindaswan6655

6 ай бұрын

Keep the Faith.....I am now 18 yrs after fighting for years to get diagnosed , healthy, active at 83......my issues started at age 15 when I had to take lunch to a new school....1955......finally diagnosed 2005.....L.

It blows my mind MDs in America say gluten doesn’t impact Parkinson’s and dystonia. My question is what do you do if going off gluten makes the gut even more upset and you have even worse constipation. Again doctors don’t care. I had to go off gluten because the pain in my feet and legs was so bad. No one would test me. Then after I go off celiac now they want to test me. I am so sick of doctors.

@geauxp

24 күн бұрын

Wondering if you have tried eliminating dairy as well? I listen to Peter Osborne DC and Gluten Free RN and they both suggested it. I feel so much better. Basically I do paleo.

What test did he do? My bloodwork looks negative.

Sad is my case of misdiagnosis. I am damaged beyond total repair . We will see how much now . After being told I am negative I kept eating gluten but see the rash now so bad and so apparent . Eliminating gluten 100% . I always knew I would get a little rash at my watch area or where my socks were snug then it would go away . Allergy tested also told no not allegic to wheat but I know that is wrong because now the rash is so bad only to start clearing when I fast or go without any grains .

@BeyondCeliac

5 ай бұрын

Next time you get the rash, ask a dermatologist to biopsy it. It could be dermatitis herpetiformis, which is the rash associated with celiac disease.