Celebrating Disability Pride with TikTok 🌈♿️ (travel vlog ft health flare up)
i went to TikTok’s Disability Pride Month Mixer event! 🎉🙌🏻 this was such an incredible night with so many unique and lovely individuals who i’m so glad to have made friends with :)
my health however, suffered a LOT after this trip. it solidified a huge FND/chronic illness flare up which i’m still suffering with over a month and a half later - the joys of travelling with a disability lol! 👀
but nevertheless, here’s the vlog of my couple days in London, meeting Jess and Seren, going to the event, and exploring + travelling as a disabled and neurodivergent person ♿️
enjoy!!
- TIMESTAMPS✨
00:00 - intro
00:36 - getting ready + ootd
01:42 - travelling
02:09 - dealing with sensory overload
02:53 - lunch with jess
03:20 - exploring London
05:30 - TikTok disability event!
06:29 - health decline + getting lost
08:02 - the next day
08:38 - London Eye
09:43 - travelling home
10:16 - health/flare update
13:21 - outro
don't forget to subscribe! ♡
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⭐️ instagram ▹ / zara.bethx
⭐️ all socials ▹ linktr.ee/zarabeth
⭐️ discord server ▹ / discord
⭐️ my art shop ▹ www.depop.com/zarabethillustr...
BUSINESS EMAIL ▹ enquiries@zarabeth.co.uk
Twitch 👉🏻 / zarorahh
and if you miss any of my streams LIVE... you can watch the VODS on my 2nd channel! 👉🏻 @zarabethvods
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⭐️ become a channel member ▹ / @zara_beth
⭐️ stream my music ▹ distrokid.com/hyperfollow/zar...
⭐️ where i get my music (1 month free!) ▹ share.epidemicsound.com/g31jc...
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⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How old are you?
‣ 17
3. What is FND?
‣ fndhope.org/fnd-guide/
4. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
5. What do I use to edit videos?
‣ Final Cut Pro X
6. What filming equipment do I use?
‣ main camera - amzn.to/3MW7v8w
‣ tripod - amzn.to/3P7G8Ly
‣ vlogging camera - amzn.to/42CBQ1G
‣ mic - amzn.to/3qD5gjg
‣ wireless mics - amzn.to/3X2RxOE
⭐️ KZread Setup + Equipment ▹ amzn.to/42QmxCN
(not sponsored! but these are af links so i make a cut from any purchases💕)
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, KZread and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!
Пікірлер: 116
New subscriber! ! regardless of any syndrome she has, she is perfect, she deserves absolutely everything!🥺❤
@elizabethr.9359
10 ай бұрын
Zara has Tourette's, FND and Pots :)
@TVNerd_3
10 ай бұрын
She's amazing, and you'll seriously love her!!
Never commented before, but I just wanted to say I absolutely adore your vlogs, because I love seeing someone online who’s life looks a little more like mine; the adaptations you have to make and the challenges of health and trying to have a life with chronic illness. It’s lovely and relatable and makes me feel much less alone! 💗
@Zara_Beth
10 ай бұрын
thank you for commenting!!🩷 i'm so happy you like the content :)
It always warms my heart when I see your new video got uploaded. Your creation is always so authentic, informative, enhancing and pleasing to watch. Thank you for contributing to our society ❤
What an amazing strong young woman you are, love watching your videos, it always amazes me how you manage to do all that you do with all your health struggles. I have some of the symptoms of fibromyalgia but ive not been officially diagnosed. Hope this flare up you had didn't last long. Love and Light xx 💞
I love how u are not afraid of putting ur syndrome out there u stand out u check all comments you are just super lucky and brave and u are a wonderfull person
i love your videos sm! i have had tics for 7 months now with no explanation and seeing you happy makes me happy!
@Zara_Beth
10 ай бұрын
I'm so glad you like the videos!!
Fabulous fun trip and I'm glad you had a great time. Hope this flare up calms down quickly. I didn't realize my increasing sensory overwhelm was part of FND,. Thank you for sharing your experiences, helps me to reframe and research more ideas to retrain my brain.
@Zara_Beth
10 ай бұрын
my sensory overwhelm isn't due to my FND, but some sensory impairments can be caused by it. alongside my physical health conditions, i have some mental health difficulties and am currently being diagnosed as autistic :) it's been a long journey of realisations but i'm finally feeling confident enough to talk about it publically!
I am just now seeing this for the first time, and I just want to say this is a great thing you are doing to raise awareness. I work in healthcare and I find this very interesting. I think people in healthcare and law enforcement should watch theses videos to have a better understanding of the behaviors. I hope all is well, stay awesome, and thank you. You are an amazing person!
You're amazing Zara, You make me feel like I'm not alone. I have tics (not tourrettes though which I'm so grateful for) and I deal with sensory overloads, your channel has helped me alot
Yay! this is so fun, I would love if we could have disability meetups all around the world
Sorry this trip ended in a flare up still it looks like u had a good time, thanks for making me comfortable to go out with my tics, your amazing and deserve the world :)
I enjoy your channel and look forward to uploads . I have MS served in the USMC . The MS affects my gait balance the way I walk . You have a great attitude keep pushing forward .
I love your videos sm!! I love how you spread awareness!!! ur content is one of my favorite! ❤ :D
I pray to God to give strength to you and other disabled people all over the world 🥲❤️
Zara You're Such a Beautiful Soul person. I really like your videos. You are Down to earth and always make me Smile 😊
Just bumped into your channel. You look so beautiful and full of joy. I am sending happy thoughts and positive energy. Be happy and enjoy every day.❤❤❤
@Zara_Beth
10 ай бұрын
Thank you! You too!
Thank you for all your sharing I am learning and thankful to have a voice somewhere else also you are helping before I know it😊
I love your video's. my day was really bad😔.... and this helps sooo much... thank you so so so much 🥺
Hey Zara, good that you keep sharing things with you're dissabilities. I find it interesting and educational to watch. 👍☺
I always look forward to your videos but this one in particular hit home. Being busy + lots of sensory overwhelm = FND flare is an equation I know well and it's really nice to see it reflected back to me. I don't know anyone else personally with FND and there's not a lot of creators I know who talk about it, so thank you SO MUCH for sharing, and happy (belated) Disability Pride!!
I'm proud of you Zara 🙏🏻❤️
I absolutely loved this I have austim and traveling is stressful for me I do bring headphones whenever I travel but it's not noise cancelling. I've been having a hard time finding some
@Zara_Beth
10 ай бұрын
i use the Bose QC45s and they're amazing! a few people at this event had the same ones too :)
@haileyburrus1416
10 ай бұрын
@@Zara_Beth thank you so much I will definitely look into them! 🤍
I love you so much! Im glad you had fun! And i hope you will be okay! ❤
Love your vlogs ❤ keep posting luv
The pride of finding your way around London without getting lost is a very real thing 😅
So gorgeous!!! Such an amazing person!!!
it looks like so much fun!! :)
6:22 I literally stimmed while watching this video! They have an ASL interpreter as well as one of my favorite autistic creators on Tiktok!!!
@Zara_Beth
10 ай бұрын
i was stimming with excitement when i was there! it was the most inclusive and welcoming space full of colourful and interesting people... truly was a dream!!
@emmynother1164
10 ай бұрын
@@Zara_Beth we stan inclusive and accessible spaces!!!😁
Your outfit was so cute!🫶🏻
Ooo this looks so cute!
Hey Zara! So I’ve been looking into getting some noise canceling headphones, but I don’t know which ones to get. What ones do you use?
I'm sorry about your flare up, I hope it went quickly and wasn't too bad! London looked great, I'm glad you had a good time at the event :) I hope it's okay to ask, could you please add a warning for the flashing images in this video for people with photosensitive epilepsy, migraines etc. please? Thank you so much!
Excellent video I hope you feel better really soon 😊 🙂 I think your amazing 👏 till next video bye zara 😊 ❤️
it's 78 degrees here in Maryland. Love your channel.
❤❤❤
Hey, great video! I was just wondering, you say you have fnd, tourettes and suspected pots, but if you don't mind me asking, do you have any other conditions because you talk about neurodiversity (I know tourettes is considered neurodiverse but I was just wondering if there was anything else) and mental health a lot. You don't have to answer though. I hope your flare up feels better now 😁
@Zara_Beth
10 ай бұрын
i have a lot going on behind the scenes that i don't talk about, some things i probably never will (and that's okay too!) but yes, i have mental health struggles alongside chronic illness. i've recently become more confident in talking about my difficulties specifically my autistic traits, which i'm called neurodivergent for now until i feel comfortable/validated enough to roll with the diagnosis 🙌🏻🌈 it's a long journey of acceptance and realisations, but i'm getting there and hope to share a lot more soon in the hopes people can relate :)
Honestly, I have a disability and this is amazing ❤️
@myayllanes8853
9 ай бұрын
Me too. I love her channel❤️
Love from Greece ❤❤❤❤ I understand you.
FIRST
I am getting very trustable best friend vibes. Only because one of my besties has the tism as we call it- I guess are two chaotic brains, just mesh.
yep, can relate to a brain shutting off and nope, not working legs anymore 😝 stupid MS def tells me when its had enough lol
hi zara! im hoping this wont be insensitive, but i was wondering how you know when your friends with ticking disorders are ticking and when theyre actually talking voluntarily?
@Zara_Beth
9 ай бұрын
you get used to it! it's pretty easy to tell the difference most of the time with tone of voice etc :)
the "wasps" were bees haha they were a bit fluffy and the colours weren't that bright
It’s so nice to find someone else who is neodigergent (btw I don’t know how to spell it ) Edit: I got a tic and spelt “ who “ wrong
❤
I love the smile of second girl
This has nothing to do with the vid but I’m obsessedddddd with her aesthetic, does anyone know what it’s called??
@Zara_Beth
9 ай бұрын
i have NO idea 😂 i just choose what i feel confident and cool in!!
You're beautiful and I hope you nothing but the best in life
Question how do you know like if you faint or have a absence seizure not that you doze of and fall alseep?
@Zara_Beth
10 ай бұрын
it feels very different. a seizure comes with horrible symptoms before and after, and there is no awareness or consciousness during (it sucks) whereas sleeping is peaceful and restful! and obviously doesn't have any other symptoms or neurological convulsions etc fainting also has uncomfortable pre-syncope symptoms beforehand, and doesn't feel restful
@3alenciagaboots
10 ай бұрын
@@Zara_Bethhave you ever had a tonic clonic seizure
Like a little kitten you wake up ❤❤❤
❤❤👍
4:04 bing chilling 👍🍦
i love u❤
You're so sweet awwe :]
Hi zara good video. hows you? you and your mates are goodlooking. did you enjoy london? xxx
❤❤🥰😍 I LOVE YOU ZARA BETH ❤❤
@kasimqureshi7064
9 ай бұрын
🥰😍😘🤗☺️
@kasimqureshi7064
9 ай бұрын
❤ You are really cutest Girl and hand some ❤🥰
👍👍👍👍😊😊😊😊
Please can you do a room tourrrrr
@Chloe-oo1gh
10 ай бұрын
Like a autumn edition
Jess is like an Anime character
@Zara_Beth
10 ай бұрын
i always say this!
Hi
Xx
Can I join next time please? I have similar disability and live in london
💋 What an angel you are ... We love you... What a darling you are ...
I've been following you on instagram. And I am really curious. Are you vegan? 🌿💗
@Zara_Beth
9 ай бұрын
no, but i am vegetarian so i don't eat meat 💖
@utrelf
9 ай бұрын
@@Zara_Beth Oh me too! I was wondering because I didn't know if you're meals had meat cause then it would be harder for me to copy paste!😅💗
i love you my crush
Meow.
Disability Pride month? Now I've see'm all.
@vasama3
10 ай бұрын
What do you mean?
@utrelf
10 ай бұрын
@@vasama3I have to agree that that sound weird af. But maybe this video will make it make sense.
@3alenciagaboots
10 ай бұрын
nigga what
“Disability pride” yet little to no people are wearing masks. Really shows how only some disabilities are really seen as valid or worthy of protection for.
@Zara_Beth
10 ай бұрын
you do know not all people with disabiltiies are immuno-compromised? the pandemic is long over so it's perfectly safe for events like this to go ahead
Can’t believe people are still faking tics
@painauchocolat58
9 ай бұрын
Are you a doctor?? Do you know anything at all about tics or Tourette’s?I highly doubt it so how dare you have the audacity to tell someone that they’re faking a medical condition. Leave her alone.
@chappy918
8 ай бұрын
Right? lol, when will this shit end
Huh where did her tics go?? This girl is a psychopath for faking all this
@salamilidaintgonfit7576
7 ай бұрын
I have tics as well and they tend to come and go. Please at the very least to research on these conditions before making up lies about people
@larinhaa_booksandgospel
2 ай бұрын
@@salamilidaintgonfit7576but she barely ticked at all
What a joke!
@Wolfy_Tea
8 ай бұрын
How’s this a joke?
@P_A_T_R_I_O_T
8 ай бұрын
@@Wolfy_Tea because you’re a joke
Hope I meet someone like you lol I think tortettes is funny and interesting
❤
Hi