Celebrating Disability Pride with TikTok 🌈♿️ (travel vlog ft health flare up)

i went to TikTok’s Disability Pride Month Mixer event! 🎉🙌🏻 this was such an incredible night with so many unique and lovely individuals who i’m so glad to have made friends with :)
my health however, suffered a LOT after this trip. it solidified a huge FND/chronic illness flare up which i’m still suffering with over a month and a half later - the joys of travelling with a disability lol! 👀
but nevertheless, here’s the vlog of my couple days in London, meeting Jess and Seren, going to the event, and exploring + travelling as a disabled and neurodivergent person ♿️
enjoy!!
- TIMESTAMPS✨
00:00 - intro
00:36 - getting ready + ootd
01:42 - travelling
02:09 - dealing with sensory overload
02:53 - lunch with jess
03:20 - exploring London
05:30 - TikTok disability event!
06:29 - health decline + getting lost
08:02 - the next day
08:38 - London Eye
09:43 - travelling home
10:16 - health/flare update
13:21 - outro
don't forget to subscribe! ♡
-------------------------------
⭐️ instagram ▹ / zara.bethx
⭐️ all socials ▹ linktr.ee/zarabeth
⭐️ discord server ▹ / discord
⭐️ my art shop ▹ www.depop.com/zarabethillustr...
BUSINESS EMAIL ▹ enquiries@zarabeth.co.uk
Twitch 👉🏻 / zarorahh
and if you miss any of my streams LIVE... you can watch the VODS on my 2nd channel! 👉🏻 @zarabethvods
-------------------------------
⭐️ become a channel member ▹ / @zara_beth
⭐️ stream my music ▹ distrokid.com/hyperfollow/zar...
⭐️ where i get my music (1 month free!) ▹ share.epidemicsound.com/g31jc...
-------------------------------
⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How old are you?
‣ 17
3. What is FND?
‣ fndhope.org/fnd-guide/
4. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
5. What do I use to edit videos?
‣ Final Cut Pro X
6. What filming equipment do I use?
‣ main camera - amzn.to/3MW7v8w
‣ tripod - amzn.to/3P7G8Ly
‣ vlogging camera - amzn.to/42CBQ1G
‣ mic - amzn.to/3qD5gjg
‣ wireless mics - amzn.to/3X2RxOE
⭐️ KZread Setup + Equipment ▹ amzn.to/42QmxCN
(not sponsored! but these are af links so i make a cut from any purchases💕)
-------------------------------
Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, KZread and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!

Пікірлер: 116

  • @Et-Princess_Nanah
    @Et-Princess_Nanah10 ай бұрын

    New subscriber! ! regardless of any syndrome she has, she is perfect, she deserves absolutely everything!🥺❤

  • @elizabethr.9359

    @elizabethr.9359

    10 ай бұрын

    Zara has Tourette's, FND and Pots :)

  • @TVNerd_3

    @TVNerd_3

    10 ай бұрын

    She's amazing, and you'll seriously love her!!

  • @elinalannah0022
    @elinalannah002210 ай бұрын

    Never commented before, but I just wanted to say I absolutely adore your vlogs, because I love seeing someone online who’s life looks a little more like mine; the adaptations you have to make and the challenges of health and trying to have a life with chronic illness. It’s lovely and relatable and makes me feel much less alone! 💗

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    thank you for commenting!!🩷 i'm so happy you like the content :)

  • @lolitakorbelova1813
    @lolitakorbelova181310 ай бұрын

    It always warms my heart when I see your new video got uploaded. Your creation is always so authentic, informative, enhancing and pleasing to watch. Thank you for contributing to our society ❤

  • @michelle7480
    @michelle748010 ай бұрын

    What an amazing strong young woman you are, love watching your videos, it always amazes me how you manage to do all that you do with all your health struggles. I have some of the symptoms of fibromyalgia but ive not been officially diagnosed. Hope this flare up you had didn't last long. Love and Light xx 💞

  • @lucypringuer2174
    @lucypringuer21749 ай бұрын

    I love how u are not afraid of putting ur syndrome out there u stand out u check all comments you are just super lucky and brave and u are a wonderfull person

  • @LofiiCow
    @LofiiCow10 ай бұрын

    i love your videos sm! i have had tics for 7 months now with no explanation and seeing you happy makes me happy!

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    I'm so glad you like the videos!!

  • @bmg9136
    @bmg913610 ай бұрын

    Fabulous fun trip and I'm glad you had a great time. Hope this flare up calms down quickly. I didn't realize my increasing sensory overwhelm was part of FND,. Thank you for sharing your experiences, helps me to reframe and research more ideas to retrain my brain.

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    my sensory overwhelm isn't due to my FND, but some sensory impairments can be caused by it. alongside my physical health conditions, i have some mental health difficulties and am currently being diagnosed as autistic :) it's been a long journey of realisations but i'm finally feeling confident enough to talk about it publically!

  • @VibeRad
    @VibeRad10 ай бұрын

    I am just now seeing this for the first time, and I just want to say this is a great thing you are doing to raise awareness. I work in healthcare and I find this very interesting. I think people in healthcare and law enforcement should watch theses videos to have a better understanding of the behaviors. I hope all is well, stay awesome, and thank you. You are an amazing person!

  • @no1gracieabramsfan13
    @no1gracieabramsfan1310 ай бұрын

    You're amazing Zara, You make me feel like I'm not alone. I have tics (not tourrettes though which I'm so grateful for) and I deal with sensory overloads, your channel has helped me alot

  • @elizabethr.9359
    @elizabethr.935910 ай бұрын

    Yay! this is so fun, I would love if we could have disability meetups all around the world

  • @thatartyarcher
    @thatartyarcher10 ай бұрын

    Sorry this trip ended in a flare up still it looks like u had a good time, thanks for making me comfortable to go out with my tics, your amazing and deserve the world :)

  • @johngolombek61
    @johngolombek6110 ай бұрын

    I enjoy your channel and look forward to uploads . I have MS served in the USMC . The MS affects my gait balance the way I walk . You have a great attitude keep pushing forward .

  • @Sailing_with_Carina
    @Sailing_with_Carina9 ай бұрын

    I love your videos sm!! I love how you spread awareness!!! ur content is one of my favorite! ❤ :D

  • @takkiplayer
    @takkiplayer10 ай бұрын

    I pray to God to give strength to you and other disabled people all over the world 🥲❤️

  • @D.Guitar
    @D.Guitar10 ай бұрын

    Zara You're Such a Beautiful Soul person. I really like your videos. You are Down to earth and always make me Smile 😊

  • @georgespantidakis3539
    @georgespantidakis353910 ай бұрын

    Just bumped into your channel. You look so beautiful and full of joy. I am sending happy thoughts and positive energy. Be happy and enjoy every day.❤❤❤

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    Thank you! You too!

  • @user-fi7gf2nb9g
    @user-fi7gf2nb9g10 ай бұрын

    Thank you for all your sharing I am learning and thankful to have a voice somewhere else also you are helping before I know it😊

  • @hey_how_are_you_doing
    @hey_how_are_you_doing10 ай бұрын

    I love your video's. my day was really bad😔.... and this helps sooo much... thank you so so so much 🥺

  • @maaikebouwman1168
    @maaikebouwman116810 ай бұрын

    Hey Zara, good that you keep sharing things with you're dissabilities. I find it interesting and educational to watch. 👍☺

  • @nerveendings
    @nerveendings10 ай бұрын

    I always look forward to your videos but this one in particular hit home. Being busy + lots of sensory overwhelm = FND flare is an equation I know well and it's really nice to see it reflected back to me. I don't know anyone else personally with FND and there's not a lot of creators I know who talk about it, so thank you SO MUCH for sharing, and happy (belated) Disability Pride!!

  • @GRCTECH7
    @GRCTECH710 ай бұрын

    I'm proud of you Zara 🙏🏻❤️

  • @haileyburrus1416
    @haileyburrus141610 ай бұрын

    I absolutely loved this I have austim and traveling is stressful for me I do bring headphones whenever I travel but it's not noise cancelling. I've been having a hard time finding some

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    i use the Bose QC45s and they're amazing! a few people at this event had the same ones too :)

  • @haileyburrus1416

    @haileyburrus1416

    10 ай бұрын

    @@Zara_Beth thank you so much I will definitely look into them! 🤍

  • @user-un5do2wj1y
    @user-un5do2wj1y10 ай бұрын

    I love you so much! Im glad you had fun! And i hope you will be okay! ❤

  • @Melsenchantedlife
    @Melsenchantedlife10 ай бұрын

    Love your vlogs ❤ keep posting luv

  • @saegemehlfee
    @saegemehlfee10 ай бұрын

    The pride of finding your way around London without getting lost is a very real thing 😅

  • @timothycolander4297
    @timothycolander429710 ай бұрын

    So gorgeous!!! Such an amazing person!!!

  • @stanvdwiel
    @stanvdwiel10 ай бұрын

    it looks like so much fun!! :)

  • @emmynother1164
    @emmynother116410 ай бұрын

    6:22 I literally stimmed while watching this video! They have an ASL interpreter as well as one of my favorite autistic creators on Tiktok!!!

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    i was stimming with excitement when i was there! it was the most inclusive and welcoming space full of colourful and interesting people... truly was a dream!!

  • @emmynother1164

    @emmynother1164

    10 ай бұрын

    @@Zara_Beth we stan inclusive and accessible spaces!!!😁

  • @Reaganwheatley
    @Reaganwheatley9 ай бұрын

    Your outfit was so cute!🫶🏻

  • @angelixoxo
    @angelixoxo10 ай бұрын

    Ooo this looks so cute!

  • @GloriousPurpose-fj6gm
    @GloriousPurpose-fj6gm9 ай бұрын

    Hey Zara! So I’ve been looking into getting some noise canceling headphones, but I don’t know which ones to get. What ones do you use?

  • @holly9464
    @holly946410 ай бұрын

    I'm sorry about your flare up, I hope it went quickly and wasn't too bad! London looked great, I'm glad you had a good time at the event :) I hope it's okay to ask, could you please add a warning for the flashing images in this video for people with photosensitive epilepsy, migraines etc. please? Thank you so much!

  • @malcolmgatenby6792
    @malcolmgatenby679210 ай бұрын

    Excellent video I hope you feel better really soon 😊 🙂 I think your amazing 👏 till next video bye zara 😊 ❤️

  • @cziegle3794
    @cziegle379410 ай бұрын

    it's 78 degrees here in Maryland. Love your channel.

  • @thehoundhedgehoghippie7346
    @thehoundhedgehoghippie734610 ай бұрын

    ❤❤❤

  • @Swiftie52
    @Swiftie5210 ай бұрын

    Hey, great video! I was just wondering, you say you have fnd, tourettes and suspected pots, but if you don't mind me asking, do you have any other conditions because you talk about neurodiversity (I know tourettes is considered neurodiverse but I was just wondering if there was anything else) and mental health a lot. You don't have to answer though. I hope your flare up feels better now 😁

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    i have a lot going on behind the scenes that i don't talk about, some things i probably never will (and that's okay too!) but yes, i have mental health struggles alongside chronic illness. i've recently become more confident in talking about my difficulties specifically my autistic traits, which i'm called neurodivergent for now until i feel comfortable/validated enough to roll with the diagnosis 🙌🏻🌈 it's a long journey of acceptance and realisations, but i'm getting there and hope to share a lot more soon in the hopes people can relate :)

  • @JamesRocks920
    @JamesRocks92010 ай бұрын

    Honestly, I have a disability and this is amazing ❤️

  • @myayllanes8853

    @myayllanes8853

    9 ай бұрын

    Me too. I love her channel❤️

  • @Maria_Steinfeld
    @Maria_Steinfeld5 ай бұрын

    Love from Greece ❤❤❤❤ I understand you.

  • @theReal.charly
    @theReal.charly10 ай бұрын

    FIRST

  • @YIPPEE-ram3n
    @YIPPEE-ram3n9 ай бұрын

    I am getting very trustable best friend vibes. Only because one of my besties has the tism as we call it- I guess are two chaotic brains, just mesh.

  • @fuzzydragons
    @fuzzydragons9 ай бұрын

    yep, can relate to a brain shutting off and nope, not working legs anymore 😝 stupid MS def tells me when its had enough lol

  • @liminalum
    @liminalum9 ай бұрын

    hi zara! im hoping this wont be insensitive, but i was wondering how you know when your friends with ticking disorders are ticking and when theyre actually talking voluntarily?

  • @Zara_Beth

    @Zara_Beth

    9 ай бұрын

    you get used to it! it's pretty easy to tell the difference most of the time with tone of voice etc :)

  • @stanvdwiel
    @stanvdwiel10 ай бұрын

    the "wasps" were bees haha they were a bit fluffy and the colours weren't that bright

  • @JOZZY265
    @JOZZY2653 ай бұрын

    It’s so nice to find someone else who is neodigergent (btw I don’t know how to spell it ) Edit: I got a tic and spelt “ who “ wrong

  • @gamerlucy1357
    @gamerlucy13572 ай бұрын

  • @pruthvirajchavhan4378
    @pruthvirajchavhan43786 ай бұрын

    I love the smile of second girl

  • @AverageSingleGirlDad-LovesBBQs
    @AverageSingleGirlDad-LovesBBQs10 ай бұрын

    This has nothing to do with the vid but I’m obsessedddddd with her aesthetic, does anyone know what it’s called??

  • @Zara_Beth

    @Zara_Beth

    9 ай бұрын

    i have NO idea 😂 i just choose what i feel confident and cool in!!

  • @conan837
    @conan8377 ай бұрын

    You're beautiful and I hope you nothing but the best in life

  • @kzke
    @kzke10 ай бұрын

    Question how do you know like if you faint or have a absence seizure not that you doze of and fall alseep?

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    it feels very different. a seizure comes with horrible symptoms before and after, and there is no awareness or consciousness during (it sucks) whereas sleeping is peaceful and restful! and obviously doesn't have any other symptoms or neurological convulsions etc fainting also has uncomfortable pre-syncope symptoms beforehand, and doesn't feel restful

  • @3alenciagaboots

    @3alenciagaboots

    10 ай бұрын

    @@Zara_Bethhave you ever had a tonic clonic seizure

  • @NEONDEN23
    @NEONDEN2310 ай бұрын

    Like a little kitten you wake up ❤❤❤

  • @Sara-channel-2023
    @Sara-channel-202310 ай бұрын

    ❤❤👍

  • @3alenciagaboots
    @3alenciagaboots10 ай бұрын

    4:04 bing chilling 👍🍦

  • @monaomar7933
    @monaomar793310 ай бұрын

    i love u❤

  • @ArsonTheShroom
    @ArsonTheShroom9 ай бұрын

    You're so sweet awwe :]

  • @user-nj4si3rn7f
    @user-nj4si3rn7f10 ай бұрын

    Hi zara good video. hows you? you and your mates are goodlooking. did you enjoy london? xxx

  • @kasimqureshi7064
    @kasimqureshi70649 ай бұрын

    ❤❤🥰😍 I LOVE YOU ZARA BETH ❤❤

  • @kasimqureshi7064

    @kasimqureshi7064

    9 ай бұрын

    🥰😍😘🤗☺️

  • @kasimqureshi7064

    @kasimqureshi7064

    9 ай бұрын

    ❤ You are really cutest Girl and hand some ❤🥰

  • @caminoalavirtud
    @caminoalavirtud9 ай бұрын

    👍👍👍👍😊😊😊😊

  • @Chloe-oo1gh
    @Chloe-oo1gh10 ай бұрын

    Please can you do a room tourrrrr

  • @Chloe-oo1gh

    @Chloe-oo1gh

    10 ай бұрын

    Like a autumn edition

  • @chattingesque372
    @chattingesque37210 ай бұрын

    Jess is like an Anime character

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    i always say this!

  • @sophie3084
    @sophie308410 ай бұрын

    Hi

  • @TechRyze
    @TechRyze8 ай бұрын

    Xx

  • @bxstar5276
    @bxstar52767 ай бұрын

    Can I join next time please? I have similar disability and live in london

  • @NEONDEN23
    @NEONDEN2310 ай бұрын

    💋 What an angel you are ... We love you... What a darling you are ...

  • @utrelf
    @utrelf10 ай бұрын

    I've been following you on instagram. And I am really curious. Are you vegan? 🌿💗

  • @Zara_Beth

    @Zara_Beth

    9 ай бұрын

    no, but i am vegetarian so i don't eat meat 💖

  • @utrelf

    @utrelf

    9 ай бұрын

    @@Zara_Beth Oh me too! I was wondering because I didn't know if you're meals had meat cause then it would be harder for me to copy paste!😅💗

  • @rollybriones4489
    @rollybriones448910 ай бұрын

    i love you my crush

  • @usamarafieck1715
    @usamarafieck17158 ай бұрын

    Meow.

  • @BattleOnTheRock
    @BattleOnTheRock10 ай бұрын

    Disability Pride month? Now I've see'm all.

  • @vasama3

    @vasama3

    10 ай бұрын

    What do you mean?

  • @utrelf

    @utrelf

    10 ай бұрын

    ​@@vasama3I have to agree that that sound weird af. But maybe this video will make it make sense.

  • @3alenciagaboots

    @3alenciagaboots

    10 ай бұрын

    nigga what

  • @senioralmond
    @senioralmond10 ай бұрын

    “Disability pride” yet little to no people are wearing masks. Really shows how only some disabilities are really seen as valid or worthy of protection for.

  • @Zara_Beth

    @Zara_Beth

    10 ай бұрын

    you do know not all people with disabiltiies are immuno-compromised? the pandemic is long over so it's perfectly safe for events like this to go ahead

  • @justinthrun4627
    @justinthrun46279 ай бұрын

    Can’t believe people are still faking tics

  • @painauchocolat58

    @painauchocolat58

    9 ай бұрын

    Are you a doctor?? Do you know anything at all about tics or Tourette’s?I highly doubt it so how dare you have the audacity to tell someone that they’re faking a medical condition. Leave her alone.

  • @chappy918

    @chappy918

    8 ай бұрын

    Right? lol, when will this shit end

  • @Harold2124
    @Harold21247 ай бұрын

    Huh where did her tics go?? This girl is a psychopath for faking all this

  • @salamilidaintgonfit7576

    @salamilidaintgonfit7576

    7 ай бұрын

    I have tics as well and they tend to come and go. Please at the very least to research on these conditions before making up lies about people

  • @larinhaa_booksandgospel

    @larinhaa_booksandgospel

    2 ай бұрын

    ⁠@@salamilidaintgonfit7576but she barely ticked at all

  • @P_A_T_R_I_O_T
    @P_A_T_R_I_O_T9 ай бұрын

    What a joke!

  • @Wolfy_Tea

    @Wolfy_Tea

    8 ай бұрын

    How’s this a joke?

  • @P_A_T_R_I_O_T

    @P_A_T_R_I_O_T

    8 ай бұрын

    @@Wolfy_Tea because you’re a joke

  • @JB-ww4qp
    @JB-ww4qp10 ай бұрын

    Hope I meet someone like you lol I think tortettes is funny and interesting

  • @chivarosoemodikromo9345
    @chivarosoemodikromo934510 ай бұрын

  • @SophieJones14
    @SophieJones1410 ай бұрын

    Hi