Im a retired hospital pharmacy tech. I've actually mixed the IVIG. These infusions are not fun. But you will begin to feel better soon. And I will be praying for you every time I sit down to do my devotions. You do whatever you need to do for you and your family. That said, I just today spoke to a Dr. who actually HEARD ME!!! I've been struggling with an illness and was dismissed. Oh you have to expect these things because your 65 yrs old now. I finally just asked God to specifically send me to a Dr. who would hear me. And today he did. So I hear you and I feel you. Hang in there sweetie. Know that you guys are added to my prayer life. ❤❤❤

I’m a retired nurse so I totally understand all of this… and so glad that you were finally diagnosed after all these years.. agree we have to be our own advocate .. I just want to give you a hug.. you are such a beautiful person inside and out and you deserve to be understood !! God less you and will continue to pray for you and Jason .. Please continue your channel and I so enjoy your vlogs. Sending love to you !

@simplecountryliving7555

Жыл бұрын

I am a caretaker of my adult daughter and am looking for support and people to connect with. Thanks for this channel . Every bit helps.

@lisa.1771

Жыл бұрын

Thank you so much for sharing, Leslie. I’ve been sick my entire life (I’m 55) and I just don’t even talk about it with doctors anymore because I never get any answers or help and I feel like I’m being perceived as a hypochondriac. I always get sick - as a kid I got severe tonsillitis constantly up through teenage years, missed so much school. Used to have continual UTIs, yeast infections, swollen lymph nodes. If anyone around me has a cold or flu I’m guaranteed to get it but it always hits me much harder and much longer than it does them. I hurt all over every day. You’ve made me think that maybe I should go to see an immunologist! I’ll be praying for you, my sister-in-Christ! ❤

@Corinna_Schuett_GER

Жыл бұрын

@@lisa.1771 PLEASE consider mykotherapy medicinal mushrooms to strengthen your immune system naturally. There's great information all over the internet and the mushrooms are to be found for free in your local forest. 👍👍

@sharonsimmons8491

Жыл бұрын

Sending prayers your way Leslie.

@KayeCarterTV

Жыл бұрын

Sending you love hugs prayers and kindness with blessings ❤❤❤

Preach Sister!!! I have MS. It is invisible to everyone else and I make it so. If people had to live in my body for a day then maybe they would understand all the things. Praying you get the help and treatments you need soon and it makes you feel better!!! 🙏

Wish I could give you a big hug. Retired nurse here. This speaks volumes. Praying the immunotherapy goes well. From a childhood Christian song,” You are precious in His sight” this is a ministry. 🙏🏻💗

"When you're ill yourself and you're the caregiver of someone who is ill"...my story. Lifetime illness and caretaker of my adult daughter. Totally understand medical gaslighting and the trauma of not being heard. Sending you hugs and prayers that the ivig helps you feel so much better! xoxo

Leslie, I had no idea that you were dealing with sickness. Thank you for sharing your story and being vulnerable with your viewers. I'll be praying for you.

@ingelawilkens9737

Жыл бұрын

P

@grandmasewhappyhomestead187

Жыл бұрын

Standing in prayer

@robertbaker9377

Жыл бұрын

You are me accept you handle it better. I sat watch with tears. I have been on IVIG for about 14 years. I feel your frustration. In addition I had Covid Pneumonia in December and now have been diagnosed with long Covid. Talk about making things worse.

It took 40 years before I was taken seriously and diagnose with FM and ME/ CFS. I also care for my husband with ALZ. I’m so glad you shared this. Yes, we are in the Lord’s care and His plans are good. I’m praying for you🙏🏻💕

@ednasantiago-otero6245

Жыл бұрын

You are another amazing lady. God bless.

Oh Leslie! I was a hospital administrator for several years and my boss who was an RN had her breast cancer dismissed as nothing by 2 drs before she saw the third who confirmed what she felt. Such a great video to advocate for people to be their own medical champion. It's a MUST. PS I know how hard it is to care for someone when you feel bad as I am caring for a friend with dementia and have been sick myself with covid. Hang in there, you are right Jesus loves us! xoxo

I am the parent of two critically ill/disabled children. One has left us and one is in her late twenties. There is absolutely no question that this level of intense caregiving has negatively impacted my health. Despite that, there is no question of stopping. Your voice reaches so many, thank you for raising this issue and having this discussion. 💜

@tammylewis6296

Жыл бұрын

So sorry!😞 I'm a special needs mom too and it can be a lot at times, but never gonna stop for my precious son. He's a blessing! God gets us through. 🙏

@joannpergakis4183

Жыл бұрын

Hugs and prayers 🙏 ❤️

@tammymango3028

Жыл бұрын

Thank you for sharing your journey with us. I don’t feel so alone. I Have rheumatoid vasculitis & care for my husband/w dementia. Had to advocate for a specialist for auto immune issue also. Prayers, hugs & healing to you You’re an amazingly strong & beautiful person God bless you 🥰🙏🙏🙏

@jnerlee962

Жыл бұрын

💕💕💕

@MrsBeasleys1111

Жыл бұрын

I’m also a special needs Mom. My son recently passed and I am blessed I had the time to be with him. Much love to you.

Nurse here too. Medical gaslighting is such a horrible, widespread problem. I’m glad you’ve gotten some answers and hope you start feeling better.

@klw8771

Жыл бұрын

Can’t believe how many female Drs/GPs/specialist are dismissive with women!! Like myself. Whats up with THAT?? I’ve pushed back far too many times and at 63 I’m frankly getting tired of it. I’m like Leslie..I push thru every single, solitary day and do quite well considering how much pain I’m in or struggling. Thanks for identifying medical gaslighting..what a perfect analogy!

@dawnmitchell11

Жыл бұрын

I want to say thank you to you and all nurses. My medical experience is that nurses tend to know more than doctors do generally speaking. I understand there are some technical things about more complicated medical issues that doctors do know more about, however. Nurses see and hear everything everyday, over time you start learning things on your own. Nurses are the ones that take all the information and listen to the patient say what is going on, I presume this also has a lot to do with them being more competent than many doctors! 😆

Leslie I remember when this video came out, I too as a child up to present at 62 always sick. I use to receive gamma globulin until I was in my late 20’s , which helped! I started with a new primary and it was always well your under stress ,and I was most definitely because I was working and caring for sick parents 4 children and then my husband received a diagnosis that was terminal. I would end up in tears because I knew in my gut this is not just stress . Well I thought of what you said on here and asked God for the courage to have my hematologist do blood work AGAIN! I received a phone call stating I have low IgG subclass 1 , and low IgG subclass 3. Same questions were asked do you get sick a lot ? Yes! So I’m a candidate for immune globulin infusions. Thank you for your encouragement to advocate for myself. May God Bless you ! 🙏

It doesn’t always have to be “enjoyable” content! This was very informative and I’m sure there will be a lot of people that will be grateful for you being so honest and transparent! Thank you!

Hi Leslie, I’m also a retired nurse and it’s so frustrating to get dismissed. When I was working, the pressure was to see as many patients as possible so the providers just didn’t have the time to spend with our patients. After years of this, I just couldn’t take it anymore and just retired. Thank you for highlighting this very real issue and encouraging us to be our on advocates! God bless you and Jason and I’ll be praying for good success with your treatment. ❤️Becky

@jeanieengland8682

Жыл бұрын

I have an autoimmune disorder and take IVIG every four weeks!

As a fellow RN, I hear you loud and clear. So glad that you were able to use your venue, to spread the word. Proud of you for finally putting yourself, maybe not first, but higher on the ladder. Continue to be your beautiful self... 🙏

Finally after all of these years, you have a diagnosis! What a weight off of your chest-we love Leslie no matter how many breaks you take, you are not alone! Take care of yourself and congrats on taking a chance and making that appt. with a new P.A. This is a major breakthrough for you! You and Jason are in my prayers.

Oh Leslie, you made this for me. Your story is incredibly familiar. I am mysteriously chronically ill (currently been sick for a month with 3 different illnesses). …I started to share more of my story with you just now and deleted it all. I realized I simply want to say what I wish I heard more often: I hear what you are (and are not) saying. I see how strong you are (even the beautiful strength in your weakness). I understand that place of existence between uncompromising faith and just trying to survive yet another round of the really, really hard. And I honor you, my sister in Christ, for your courage in showing His light in darkness. Thank you, to infinity, for sharing. (I’m going to go be my nerdy self and research your diagnosis. Who knows, maybe that will lead to answers of my own! ❤

OMG. This has been my life as well… I’m 78 now and I’m just learning about my autoimmune disorder. Having said that my daughter is a doctor and she too has had a hard time when going to doctors. I now have my doctor daughter advocate for me and now at my age I’m finally am learning about my issues. God bless you. I will pray for you and your family. ❤

@lynnewilburn5460

Жыл бұрын

I do not have the same diagnosis as you but I have been I’ll for 30 years. I have Complex Regional Pain Syndrome (CRPS). , Fibromyalgia, CFS/ME, was just diagnosed with Congestive Heart Failureand my husband was recently diagnosed with Mild Cognitive Impairment. He’s been my caregiver and I’m so scared because they just can’t give us much direction with his diagnosis. I hav had cognitive problems since I got sick 30 years ago and was completely dismissed so I noticed his issues after going through it myself. I’m scared about how we will handle things and watching your videos have helped so much. We have no idea how he will progress or if he will and I keep getting new diagnosis myself. I will send my email and maybe we could exchange info and talk? It’s totally up to you but I have suggestions after being ill for so long and I’m sure you would have them for me. If I don’t hear from you it’s ok. I will send my email and phone number through Messenger on FB. Anyway, I wish you all the best.

I hear you, Leslie. I, too, have a chronic illness (Sjogrens Syndrome), and I, too, am the caregiver for my husband who has Lewy Body Dementia. There are days when I have a flare-up and feel like I have the flu, but I have to keep going for him. I've also had to change doctors a few times until I found one that would really listen. You're not alone, and I wish I could give you a hug. ♥️

@ruthmiller4513

Жыл бұрын

Hi April. Can I ask you how you got diagnosed with Sjogrens syndrome? I was diagnosed with fibromyalgia 10 years ago but feel like there is more going on then that. I tried to get an appointment with Ruemetologist but have to see my GP first then he has to refer me. I need to have more tests or something to help me find out what is going on. Bless you in your journey 🙏

@apriljohnson4793

Жыл бұрын

@@ruthmiller4513 It was a series of tests that started with a blood test that measures inflammation markers, then a biopsy of a saliva gland in my lower lip, and an eye dryness test called a Schirmer's test. My blood test was enough for the rheumatologist I was seeing at the time, so she diagnosed me without the other tests. The next rheumatologist I started seeing wanted it confirmed with the other two tests, so I went through those just to satisfy her protocol. Around the same time, I was diagnosed with Celiac disease--another autoimmune disorders. It was hard to tell which one was causing which symptoms for a while. I'm better now and inflammation markers have been normal for several years, but I tire easily and have lost a lot of strength. I hope you find some answers and solutions for what you are experiencing.

@ruthmiller4513

Жыл бұрын

@@apriljohnson4793 thank you so much. I appreciate you letting me know. Hopefully I will get some answers soon because this has been such a struggle for so many years and as I get older it just gets worse. I'm happy to hear that your doing better. God Bless

@joannpergakis4183

Жыл бұрын

Hugs your way Prayers

@heatherhughes8180

Жыл бұрын

I also have Sjogrens and it took good through 4 other rheumatologists before I found one that diagnosed me. He did labs - ANA, immunoglobulins, RF factor (positive in conditioner than RA), etc. But my Dr said it’s more than just labs. Keep pushing till you find a dr that will listen to you. Like Lesley said!

As a lifelong migraine sufferer (until 2 years ago) and the last 20 years of Fibromyalgia I can really relate. Thank God I don’t have to be a caregiver (so far) as I find it challenging just dealing with my own issues. Decorating videos are so much fun and takes our minds off other things but this is real life and we all need to know we’re not alone in our struggles. I often say to myself, “suck it up Buttercup, life isn’t supposed to be easy or pain free” but I will never stop looking for answers! You inspire so many people I just want to thank you and send His blessings your way. I’ll support you no matter how many videos you post.

@COEXIST-ny4db

Жыл бұрын

Can I ask how you got rid of your migraines? I suffered too for MANY years. 14 to 16 a month. I literally have lesions / scarring on my brain from them. I was on so many of those instant meds. but they only ever worked just 1 time each for me. Then finally seizure meds that helped a bit. But the biggest cure for me (And I had zero idea) was my divorce. It's been almost ten years now and I went from that suffering to maybe 4 over the past entire 10 years put together!! My migraines were have to be in a black room. Zero sounds. Like the neighbor taking the garbage our 2 blocks away would kill me!! I'm so thankful for my divorce. They were literally life altering. Alot of people just don't get that. Im thankful you dont get them anymore! Congratulations!!!

@denisecarpenter4326

Жыл бұрын

@@COEXIST-ny4db I started getting them as early as I can remember like 3 years old. I had high hopes they would go away after menopause but they didn’t. I had every kind of test under the sun and tried every kind of drug. Imitrex injections finally ended the trips to ER. About 2 or 3 years ago I started taking Aimovig injections once a month. Finally, something that actually worked! My life was controlled by my migraines. I prayed for help in all those years and they were finally answered. Praise God!

@karleem3473

Жыл бұрын

I have fibromyalgia too it’s awful so much pain every day

@aprillemiller8325

Жыл бұрын

@coexist2020 I can’t say that I have any experience with this but I recently heard a friend of mine saying that he used to suffer with terrible migraines until he had his blood thinned. He said that took care of it and he never had any more. I just thought you might like to look into that. Wishing you the best!!

@kaylabryson1932

Жыл бұрын

Did your migraines go away two years ago. What was the cure?

Omgosh I just talked about IGG to my chiropractor recently! Since getting _vid in 2020 I get sick all the time. I started crying when you said if just one person watching etc. I'm one person. Thanks for opening up to us about your health struggles. I feel validated and will address my issues with my doctor. Thank you Leslie. Healing prayers for us. ✨💕

This is one of the best videos you've ever made. It's always about stuff or Jason and hearing about you is also what we're interested in too. To hear you as a great advocate to encourage others to push and advocate for themselves. We cannot care for others if we don't care for ourselves first. Make what videos you can, when you can. Hugs to YOU!!!!!

Oh bless you-I relate! I am an RN, was caring for my stroke effected husband until he passed in 2021. I was diagnosed with Scleroderma, Pancreatic NETS, IBD, Uncontrollable Hypertension. I had so many weird sx, and it was challenging sometimes to also be a caregiver when not feeling well myself! The Lord got us through, and you are right, Jesus will continue to hold you in his care. My husband no longer suffers, and I have been given a gift of healing from the Lord and wisdom how to make changes in diet to continue the healing. Keep on being faithful, you are a light and an example of sharing in Christ's sufferings.

My daughter (38) has auto immune disorders and it took awhile to get diagnosed, not nearly as long as some though because she was so persistent. She is taking a lot of meds to help symptoms. It’s been a long 3+ years, but she’s feeling better. God bless you during your struggle.

I needed to hear this so badly! As a momma of a cancer survivor I have always told any who would listen to advocate, advocate, advocate for those you love with people in the medical field. It is very easy to feel like you are not being heard. But for myself I never even try with my own health. It has been on my mind a lot lately and your sweet video was just another witness of that!

I think you speak for so many when you say, "You learned to live with it, because you have to go on." And good for you for pursuing the help you so badly needed. Wow, you obviously were ignored or dismissed for so long. That's awful. You are strong and beautiful and amazing! Thank you for sharing from your heart. I pray for you and Jason and send you love and hugs. 🙏💖🙏

❤Leslie - I actually have heard of IVIG from another channel I watch. The person who began IVIG had a simply amazing recovery, and I hope you will too!! You truly are a ray of sunshine, and no one would have suspected you weren’t well. I will continue to look for your channel and to send you all the positive energy I can!!! Feel better and be well! ❤

So much in common here! Prayers for both you and Jason. I am immune compromised and having infusions. Let’s hang in there together! ❤️

@adrianahewett9557

Жыл бұрын

My daughter has infusions too. Same thing I think

@ellyrussell6814

Жыл бұрын

I too have CVID Common Variable Immune Deficiency. The struggle is real everyday. “Jesus is my strength and song “ Exodus 15:2 He has truly helped me everyday. I was finally diagnosed back in September 2019. I give myself subq infusions at home once a week. It is literally a blessing and I’ll never take it for granted. I’m still sick though with sinus and ear infections ~ had surgery this last Oct and I’m still sick and the Surgeon and his nurse are dismissing me and not willing to look more into it, or help me to get better. So I truly needed to hear and see this video today. I’m going to call them back today again and push back. They never returned my call sense last week, and I had just resigned 😑 to just dealing with it and just wait for the healing that they said could take 3/6/9 mos to a year. Thank you so much for sharing your struggle, sickness, and your heart of all that you have been going through. I’m sorry that you have had so much to deal with~ the IVIG therapy I hope will give you much healing, strength and hope in a better everyday life. It certainly did for me. Just a bump in my journey that I need to push through and get this past surgery resolved. I wish you health and happiness. You are very strong, and a very caring and kind person. God bless.

I just went to my doctor and told her something is not right. I keep getting sick and her response was “ do you know how many people come in saying that now days ?!!! 😢…Thank you so much for making this video, such good information. God bless you🙏

I am a retired RN and thank you for sharing this! EVERYONE needs to be encouraged to find those who will LISTEN! I always told my patients, “the squeaky wheel gets the grease.” My most rewarding time as a nurse was doing in home hospice. I received excellent and ongoing education on symptom control, especially for pain and agitation. So doctors would listen to me when I would call for help for my patients. Thank you again! ❤️🙏❤️And I am blessed to have a doctor the past 20+ years who listens, even if she doesn’t agree with my diagnoses for myself, 🤣, and she understands the pain I deal with osteoarthritis, including two surgeries, and how emotional pain can settle in our bodies and actually lower our pain threshold. Caring for Jason is similar to my dealing with my adult son’s death as it increases our vulnerability. God bless you both! And I am adding you to my prayer list.🙏🙏🙏

Leslie you always look so put together one would never know your struggles. I am a retired nurse who battles with depression and totally understand the outward appearance can always be deceiving. Being dismissed by another healthcare person is maddening. Bless you for your determination to persevere through all this. I have such respect for you. Will keep you in my prayers. ❤

Leslie, I understand! When people say, well you don’t look sick… I could SCREAM! I too have been ill my entire life. My biggest hugs and prayers coming your way! Take care of YOU! We love you! 💖

@karleem3473

Жыл бұрын

I know exactly what you mean and I never say anything to anyone about how sick I feel and every day I feel awful

I am so thankful you posted this! Sooo many people are at the health professionals’ mercy. I pray you will get a handle on your condition and live without sickness in your daily life. Thank you! ❤

Praying for you and Jason. The Lord is your strength and you are such an inspiration to so many. Love your channel!

As a RN also newly retired, I have seen this happen so often! Unfortunately the medical community is not like it used to be! I also have issues and I don’t even share with my family as they don’t understand! I’ll pray for you! Keep the faith!

You have to be your own healthcare advocate! You know your body & mind like no one else. We love you because you are “real”. We all have stuff we go through & it’s nice to know we aren’t alone but we also love the escape we get through you. Sending big hugs from Alabama to you Leslie & Jason. ❤

Leslie, I’m glad you’re bringing this to the forefront. My wonderful pulmonologist wanted to figure out why I was getting pneumonia twice a year. She did an IgG test & my level was extremely low. She sent me to an immunologist & he put me on Hizentra infusions weekly. Now I rarely get sick. BTW, I’m a nurse & my husband was diagnosed 2 years ago with dementia. So, we’re living similar lives. God bless you 🙏

Tears in my eyes not only for you but also for me. I am currently being dismissed. I thought by changing from a PA to physician, I’d be listened to…NO! Throw me pills with horrid side effects. I’m going to seek out a naturopath physician. I’m also an RN but patient first. Not being believed is the ultimate for me. Prayers for US, Leslie. I’m so glad you were listened to…I’ll wait my turn! 😢

@ACharmingAbode

Жыл бұрын

Praying for you 🙏🏼💕

@Gramsofboys

Жыл бұрын

@@ACharmingAbode Thank you! ❤️

@Jen-zz7nv

Жыл бұрын

If you've ever heard of functional medicine, that is a route to look into.( I can't find a naturopath around me) I'm currently doing that and they take a deep dive into your health and use nutrition among other things to treat the root. Not to mention they take lots of time with you, and your not rushed in and out and dismissed.

@Gramsofboys

Жыл бұрын

@@Jen-zz7nv I live in a rural community so I have to take what I can get.

@Jen-zz7nv

Жыл бұрын

@@Gramsofboys I totally get that. Praying for you.

I am a retired nurse, and I know so many "professionals" don't listen because they have the "knowledge" BUT listen to your body, make them listen! Be your advocate. Bless you, and may the Lord keep you strong. Fight for yourself!

I’m so sorry you are going through this. It amazes me that you made it through Covid, multiple times no less, without dying, with having such a poor immune defense. I’m so glad someone finally listened to you and I’ll be praying that there is something that can be done to help you. Even strong women need help. 💛

@angelapetrie2418

Жыл бұрын

😅🤣😂 Can't be that bad then eh?

@Floatingaccidentallike

Жыл бұрын

@Angela Petrie it is to different people. The problem is, no one knows who will end up with long haulers etc...

@darlenekiefer7332

Жыл бұрын

You are so inspirational. You brought tears to me and I feel I love you even tho I don’t know you. Thank you for sharing from your heart. I totally see you!❤️

@angelapetrie2418

Жыл бұрын

@@Floatingaccidentallike Same as any other viral infection, or any infection then. 🥱 Next!

Dang! This sounds like my sister. She gets sick a lot! Thank you so much for making this video. I’m going to send this to her. Thank you, Leslie. Us women are so good at just carrying on ❤️

Aaaaw I know that feeling hon! I've been going through medical appointments for so long and yes you are in charge of your own health! 👍 It took me 7-10 yrs to get my Fibro and Sjogren's diagnosis. I went through hearing EVERYONE tell me there's nothing wrong with you!! You can't possibly be in that much pain! Nothing is showing on your labs! Please put yourselves first love and I will be here rooting you on. I just got diagnosed with Lewy Body and your videos are key to my learning. See ya on Instagram 😊

@ACharmingAbode

Жыл бұрын

I’m so sorry for all that you went through and are going through 🙏🏼❤️

@dino946

Жыл бұрын

🙏🏽 for you Tory

@toryberch

Жыл бұрын

@@dino946 😊🤗Ty

@toryberch

Жыл бұрын

@@ACharmingAbode your in my prayers for your medical treatment,😊🤗🙏💖🌼

@wendyreynolds6959

Жыл бұрын

I don’t understand Instagram. I went over to follow you and there are all sorts of other things and people on what I thought was your page. I did sign up to follow you so I guess I’ll just see what happens.

Such a precious ending!😊❤️😊❤️🐕❤️🐕

Prayers for you Leslie! You have a lot on your plate and yet you’re still always so positive and looking out for others. Please take care of yourself too tho! We’ll still be here ready to watch! And you’ve got loads of prayer warriors out here ❤

I'm a retired nurse and totally understand how you feel about being ignored or dismissed by doctors. I knew something wasn't right with my health and went to several doctors with no diagnosis. Finally found a doctor who listened and cared. Finally dx with RA and Fibromyalgia. Treatment has helped and I learning what helps and what doesn't. I'm so glad you persisted and got answers. Prayers for you and family. Take care and do what is best for you. We will be here waiting. ❤🙏

You are such a trooper! Praying for you and Jason. I currently take responsibility for my 88 year old mom, my 72 year old husband and my sister and I. I have had to advocate for all of us and I so appreciate your words today. God bless you! And YES, I’ll be right here when you post, regardless of when your last one was!

@figtreetwig4613

Жыл бұрын

I'm praying for your next appointment.

If nothing else, Leslie, by sharing your story, by educating the public and your friends about the symptoms and severity of immunodeficiency- I HOPE the people who hear you will take time and care to be EXTRA vigilant around anyone who is immune compromised. All during the COVID epidemic I felt so frustrated that some folks felt they could ignore the needs of others and their own responsibility to help to keep others safe. You are very brave to share your story. Thank you.

I am so grateful for health care professionals who listen, pay attention, and have my back. Thanks for sharing.

Leslie, you’re an outstanding human being! I’m a nurse, too & I’m amazed that your immunodeficiency wasn’t discovered sooner. I hope you feel a sense of relief knowing what’s wrong & knowing you can get care for it. I wish you all the best. 💖

Just wanted you to know I will certainly pray for you. Also, for someone who is chronically I’ll, you look great! And I’m not saying that in the vein of - “ how can you be sick? You look to good! “ I’m saying it, “ wow, in spite of being so ill, you look great!” Your hair is so, so pretty, I would kill for that beautiful head of thick, non frizzy, curled hair! Anyway, I’m just so sorry you are and have gone through so much. Hoping you can finally get it resolved. Thankfully, the great Healer is your good friend. He brought me through a debilitating autoimmune disease, He will do it for you!

Dear Leslie- my husband has Lewy Body Dementia too. I love watching the videos of you two together. His mother had LBD too, so we know what our future holds. I have chronic immune problems and constant pain, so I understand how you just have to carry on. You just power through because you have no other choice. For the last few years I’ve been having memory problems and finally last year I got a new doctor that actually listened to me. After much testing and an MRI I got diagnosed with Mild Cognitive Impairment. No one wants to label me yet with young onset Alzheimer’s, so I go along doing the best I can. My husband and I are quite the pair now! I believe this is your time to slow down and take care of yourself. Learn to say no and learn that things don’t have to be perfect. Take time to enjoy the little things in life and cherish family more than ever. I feel strongly that you will begin to feel better and it will be life changing. We all support you and we’ll be here for you if and when you make another video. ❤

I am a TRUE ZEBRA!!! It took me about 25 years to get a diagnosis. I have Primary Immunodeficiency. I’m a Nurse. Very sick frequently. I am here for YOU!!!

This whole video my heart was embracing you, Leslie. I am thanking the Heavenly Father that you have found out why you’ve been suffering all your life and praying that you will be able to receive the medical help you need. You have indeed been a master at hiding your health issues behind the joy and passion you bring to us your KZread family. I always look forward to your Sunday videos and will be here every time the notification bell rings!

I hear you, Leslie. Currently still advocating for myself and my husband. Spent years advocating for my parents. I was a shy, quiet child. However, events in my life from 22 years of age until now (67) have made me learn how to advocate for others and myself. It makes us stronger. I could relate to everything you said today deep in my heart. You and Jason are a blessing to all of us. Thank you for sharing. 🙏

You have such strength of character and you’re an inspiration. I’m sure it was such a relief to finally have some answers to your health concerns… that is half the battle! May you have good health, love and joy in the days to come.

Thank you for speaking up and out about this very real topic of being dismissed. I am so glad you finally have a diagnosis so you can have a plan moving forward. I had a gastroenterologist put his hand on my knee and say "you know, sometimes when we're afraid to be sick, we make ourselves sick." implying it was all in my head, just because after months of testing, they couldn't figure out what was wrong. The only reason they kept searching was because I said "I understand you don't care if I die, but my family does!" (people who saw me literally thought I was dying of cancer because I had lost so much weight and was so week I couldn't walk). Turns out I have gastroparesis. It was worse than they've ever seen. My stomach was totally paralyzed, not just slow functioning. And this dude had told me it was in my head!!! So, thank you, form the bottom of my heart, for telling people to keep pushing. It truly could save a life.

@Tindaree

9 ай бұрын

My name's Kim. I just wanted to let you know that what you've written here has helped me, just like Leslie's video has helped. You too are an inspiration for me to keep seeking answers to my personal health issues!! So thank you🥰💜

@doglvr5

9 ай бұрын

Advocating for ourselves while feeling bad can be extremely challenging, but don’t give up! Sending prays for answers for you and complete healing ❤️

Just wanted to thank you for sharing your experiences, caring advice, and beautiful spirit with us. Whether we need this gentle push now or sometime in the future, it’s a good reminder to have courage to speak up even to medical professionals. Watching this video made me think of the quote “Just because someone carries it well, doesn’t mean it isn’t heavy” Jesus in you is so evident, thanks for pointing to Him. I appreciate your content- real joy even amidst hard circumstances is rare. Praying for you and your husband!

Leslie, our daughter has Dysautonomia. It took 2 years for her to get a diagnosis. So many doctors, and the majority of them dismissed her. It’s a common practice amongst doctors and women patients. Praying for you to get IVIG quickly. It has helped her tremendously. Thank you for sharing your experience. No one knows how bad it can be until there’s an illness that’s out of the ordinary. Sending lots of love and hugs your way sweetie.

Thank you for making this video! The invisible diseases are hard to battle. I was diagnosed with SLE at 19. At the age of 56, I pushed back and stood my ground. I was diagnosed with Polymyositis in Feb. 2020. Within 12 months, I had over 12 inches of bowel removed due to acute diverticulitis, basal cell carcinoma, and breast cancer. Each day is a struggle, but I’m grateful to have life each day!

Prayers. I am retired RN. New eyes open the door. God bless you❤️🙏

This is going to help alot of people. Our family will appreciate your transparency. You are right On track doing what you love as you can and are able. It’s your “ministry” to us and you are not done!

I can imagine how hard it was for you to film this video, know that we are always here for you. So many prayers being sent your way, for both you and Jason…

It’s amazing …when we find out that we are HUMAN . YOU are AMAZING. YOUNG LADY .

I have been taking IVIG I fusionsfor 15 years...every 5 weeks for 2 consecutive days...about 7 hrs. Per day...keeps me going for a chronic illness and allows me to lead a semi-normal life. To look at me, you would never know that i have a bad debilitating disease. Hang in there! We just play the hand we are dealt. In my prayers! Ronda from Alabama

Omg. I can't believe I saw this right now. My daughter is going through the same thing but no answers yet. I shared your video with her. Thank you so much for putting this video out. I enjoy all your videos and you are such a a special soul. I am glad you got answers and I hope you feel better. We love you! ❤️

Wow, I am so sorry you have had to deal with your immuno deficiency for a lifetime. I can't imagine how exhausting that is. It took courage and energy to make this video for us, and I thank you. I really hope something curative or at least helpful will come of all the testing you've endured.

I can so relate to your story. I've had several years of misdiagnosis and no diagnosis. I finally got a diagnosis after years of suffering and pain. I got to the point where I couldn't even walk. Finally, someone convinced me to see the right specialist because I gave up trying to figure out what was wrong with me, and it was determined that I have MS. It was a relief to get a diagnosis and get on the proper treatment. Finally the pain is under control, I was able to walk again, and I'm doing very well. Diagnosis is the first step in controlling your health.

Leslie, such a good message. Standing up and pushing back when feeling dismissed is important. So glad you saw a medical professional who set you on your current path. Praying for better health for you.

We WILL be here! We love and support you and Jason. Praying for your recovery from 3x C!

Thanks for the good advice, Lesly. I’ve been in the “I’ll just live with the pain boat” as Drs. haven’t diagnosed me. One even told me I needed a psychiatrist! I hope your diagnosis brings you better health! Take time off and don’t worry about the algorithm. ❤We’ll be here waiting for you to return ❤️.

@kathyjones4869

Жыл бұрын

Isn’t it awful we women are always put in a box of needing a psych doc because we have health issues or any other problems needing a man to intervene! A human male! My help comes from the Lord He doesn’t box us in!!

I went my while life feeling sick. I got dismissed and actually called a hypochondriac and dramatic and overly sensitive. Every dr told me I had ringworm and gave me steroid creams which took away the ring patches but I still felt so bloated, had diarrhea, brain fog, social anxiety, major depression and so much more. Anyway years later a woman from my church told me she thought I have celiac disease and encouraged me to get tested and sure enough I texted positive for celiac disease! I felt amazing within 2 weeks of only eating whole foods and gluten free. It all makes sense and I have gained my confidence back. I always felt suppressed by family members and Dr's. It was a horrible and lonely feeling. I STRUGGLED allgrowing up. I am so thankful for that woman who told me about celiac disease. What a true gift she gave me.❤

May GOD BLESS YOU!!! ✝️🙏🕊️💜✝️

Hi Leslie! I love decorating shows but interestingly enough I've been drawn to your vlogs about the journey you and Jason are taking through this world of dementia. I'm a recreation therapist who works in senior care and I feel a burden and passion on my heart to understand as much as I can about dementia and to help others understand. I want to be able to relate to the people in my care the best way I possibly can. I've been so inspired by your journey but none quite so much as to see this video of you here. Thank you for being so real with us. I believe in Jesus and he is my rock and I will be praying for you and Jason, particularly as you are navigating yourself through this new diagnosis.

❤ 🙏🏼 You are showing us perseverance with grace. Hope you’re feeling better soon and get the coverage you need and deserve for IVIG

Leslie, my prayers are with you. I took care of my husband and mother for many years and one of my biggest fears was that I would become sick and unable to care for them. They passed within three months of each other and that pressure is gone, but I’m exhausted. My prayer for you is that your health be totally renewed and you have the strength to live your life well.

An RN here also. So glad you finally got a diagnosis and a treatment plan! I became immunocompromised following a flu shot. Had GBS. It took years to get fully recovered. I have autoimmune issues now. But, having had that experience and immune issues, am now able to forgo all shots in the future. It took a bit, but finding a doctor that listened made all the difference. The stress of caring for someone with Dementia is an immune buster in and of itself. You are blessed to have a great support network. Ptaying for you!

Oh, Lesley. You are such a special person. I’m sorry you’re dealing with all this. I’m keeping you and your family in my prayers! Hang in there, friend!

Sending you prayers and strength as you navigate this diagnosis…. Wishing you all the best and yes I will still be watching your content no matter how much or few! 🙏❤️

He's got you. He's holding you in his hands. Bless you!

Much LOVE & SUPPORT TO YOU!!!! You PUSH EVERY BOUNDARY!!!!💪💪💪❤️🥰💕

When You know something isn't right you have to become your own advocate. I was in urgent care the ER Doctor told me it was probably skeletal I disagreed and after 6 hours he came back to me to tell me I had cancer all through my abdomen!! I was diagnosed later with Lymphoma so your message is very relatable and important! Thank you for sharing! You are not alone!❤

Yes, I too have been dismissed during my life. I am hoping that things start looking up for both you and Jason!🙏

Your story sounds so familiar. Two years of syncope episodes, chest pain, lightheaded, and on and on. A visit to ER and them keeping me overnight was a blessing. A cardiologist ran bloodwork. He found I had zero B12, homocysteine levels way off etc. I have Hashimoto Thyroiditis along with pernicious anemia. Fibromyalgia also. Aura migraines. Like you there isn’t a day that goes by that I don’t feel ill in some way. On days I do feel good I’m almost euphoric! Right now having extreme pain at night in legs. Also nerve damage from cervical spine. Was just put on gabapentin, taking synthroid, lisinipril for HB, and get B12 injections regularly. So my dear I understand. You are also struggling with what is happening to Jason. Stress triggers many things with compromised immune system. Love you and Jason. Prayers to you both. At least you have an answer which is half the battle.

MS LESLIE I WILL CERTAINLY PRAY FOR YOU .G.BLESS.

Lifting you up in prayer! So proud to hear you kept searching for answers and got them!

I really needed this video today, so thank you for being so open and honest. I've been struggling for years with health issues and feel I haven't been taken seriously by doctors or family. It's hard enough going through the painful health issues but the mental stress on top of that is too much at times. I'm now learning to be a advocate for myself and if others don't believe me or want to support me that's their problem not mine and I must move forward in a better direction for my physical and mental well being. God bless everyone struggling with a chronic health condition!

I totally understand being dismissed by healthcare professionals. I was constantly dismissed for 11 weeks after I gave birth to our son in August. I had to advocate for myself for them to take me seriously. Come to find out I had retained placenta! Had I waited like they told me to do, I could have gotten severally sick. I completely agree that when you know something isn’t right, you fight and make sure you aren’t dismissed and they take you seriously. Because you know your body and you know when something isn’t right. Praying for you and your treatments!

I take my hat off to you! I was a caregiver for my mother who had dementia and Alzheimer’s until she went home to be with Jesus. To be ill and a caregiver is unbelievable. You pushed through and found answers and good for you sweet lady. I pray God’s healing power over you. That He gives you strength and wisdom to continue to do what He has for you to do. Heal her Lord…in Jesus name.

Praying for you while you're on the journey of healing. ❤️

We have your back, girl. I thank you for all that you continue to do for this community. I am a 3 yr long Covid sufferer, neurological impact, as well as experiencing compassion fatigue from care giving. We have to take care of ourselves. We’re going to be right here for you. Blessings to you and Jason

@suzettepittman1030

Жыл бұрын

Well said

Sooo wonderful to hear you have Jesus in your life ❤️🩸🙏🙏🙏

Thank you for this video. I’m in pain most of the time sometimes the pain is so great I can not walk and use my hands or arms . Finally diagnosed with fibromyalgia. They wouldn’t believe me so I just stop saying anything. I feel the same way you do. I just smile and I know God’s in control. I have 25 years working with disable children walking and pushing wheels and lifting children. When I got home I slept for a long nap and still went to bed at 8:00pm to start over the next day. I don’t know where I would be if it weren’t for my faith in Jesus. He kept me going and still does. I’m 76 years old retire, make my cards and having a good life. We all have our crosses to bear, and I try to do mine with a smile like you and not let anyone know. I never liked complaining.

Girl! Look at all the love after you just posted. I have soooo much admiration for you. I can’t even imagine what you’re all capable of if you felt good on a regular basis and didn’t have to be a caretaker full time and and a mom and grandma. OMG. This is a beautiful vlog. Inspiring at the very least. God be with you and your family and your journey.

@inzamoore6981

Жыл бұрын

Q1

There is something tragically liberating to finally have answers. :( I appreciate the tears (my body reacts negatively to my tears... no break for the empathetic!) so I get the reality of the exhaustion, dry eyes, and maybe headache, on top of the "vulnerability paranoia" putting yourself out like that. You articulate this journey so beautifully.

Retired nurse here too- feel so bad for you!!! You are dealing with so much with Jason’s diagnosis and always seem so upbeat. It’s ok to be real and I’m sure you will help someone in doing this video!!!!! I hope you get the help you need and feel better for the first time in your life. I have some chronic issues and you just learn to put up with them but it would be wonderful to be rid of them!

Praying for you, sweet, precious lady for God to heal you completely.

I feel like you are speaking my story! I rarely feel good. I’ve been to the doctor so many times. The rheumatologist said fibromyalgia. Yes, I hurt all over most days and have major fatigue, but that never explained why I’m sick all the time. I stopped trying to get to the bottom of things. I’ve definitely been dismissed many times. Thank you for sharing this, Leslie! I hope I can get the courage to fight back! Jesus is my Savior too! ❤

Bless your heart for being vulnerable and sharing this and I pray you are winning the battle with your current round of “you know what”. I have felt this dismissal by the traditional medical community since I was a teenager. I was in my late 30s before I learned to push back and advocate for myself. I am now blessed to have a functional medicine provider who really listens and treats me as a whole person, not just a list of symptoms. I am adding you and your family to my prayer list and look forward to continuing to enjoy your lovely videos. ❤

My husband was I’ll, diagnosed with MS 3 months after we were married. I was his main caregiver for 22 years. I wish I had known this when it all started, you have to have a consistent relief person. You have to remove yourself and just concentrate on self care. Please do this for yourself. I will pray for you.

Jesus. Yes! ♥️ I believe and I’m believing for you.

You have a platform and thank you for using it!! I am sure it has empowered more than one person!! Prayers in abundance for you and Jason❤