Breathtaking

This digital story was created by Kate McCarthy about her Mom, Maureen McCarthy, who has a fatal lung disease called Lymphangioleiomyomatosis (LAM) and sees the world in a completely different way. Maureen can be reached at maureen@maureenandzelle.com.

Пікірлер: 5

  • @paul1342
    @paul134216 жыл бұрын

    This is one of the most beautiful and informative videos I have ever seen. I not only know about LAM, but I have a new appreciation of what illness is. It does not define a person. It just is something different about a person. We are as different as snowflakes.The author, Kate McCarthy, is a gift to us all through her willingness to share this with all of the world. Thanks to all who had a hand in this production. Joan Hinsdale

  • @04Serena
    @04Serena7 жыл бұрын

    Whew! It was so good to hear your story about the group of families who had lost a child. My first son died from SIDS and I lost my second to drugs--but my life has had to move on. Sometimes I feel a bit of shame around not having a heavier heart long term. I did suffer terribly for some years, but had to heal and move forward! Subsequent to this, I worked as a hospice nurse where I encountered (and felt on a deep gut level) the immediate grief expressed by a number of parents who had just watched their child die. It always brought me back to that same moment in my life, but I had to quickly let that go and support the newly bereaved parent--hoping more than anything that they would also learn to move on, carrying the child in their heart, but not letting the loss consume their heads and lives. That said, I don't yet live life as fully as I wish to--there's more work to be done, growth to achieve... Thank you for this video!

  • @maureenkmccarthy
    @maureenkmccarthy14 жыл бұрын

    Hi I'm Maureen's husband Zelle. Sounds like you had an amazing daughter. I'm sure you'll beautifully tell your grandchildren her story.

  • @morningview612
    @morningview61216 жыл бұрын

    Hello. My name is Laurie and I too have LAM. I was diagnosed in 2000 when I was 19 years old, due to a collapsed lung. Since then I've had many more collapses(7 in total) and a number of surgeries. I am now 27 and I'm completely oxygen dependent. Over the years, my pulmonary doc told me that my lung function was slowly deteriorating. At my last appointment, last month, I was told that I'm down to 30% lung function. Thanks for posting this video! My thoughts and prayers are with you!

  • @CorrinaMcFarlane
    @CorrinaMcFarlane10 жыл бұрын

    Just popped in as I do from time to time to share this beauteous footage with yet other friends in my sphere. This time I am wondering, could Kate upload her utterly dear 'Breathtaking' song to soundcloud... or has she already?! Or can I find it in its entirety somewhere? Lovelove love evolving Always xoxox