I have EDS type 3. From all the symptoms, I think brain fog is the one I hate the most (it can sound strange but the constant pain bothers me less, I'm able to deal with it most of the time.). It maker me feel like I'm not myself. Anyhow, you're not alone. We're not that many out there, but we are here for one another when needed. :)

@erikaleonard78

6 жыл бұрын

Jane Roberge I have to agree with you. This is the worst I have type three as well.

Brain fog is the bane of my existence omg for some reason it's one of my most severe symptoms. I love this series, it's such a cute/cool idea!

Annie, I want you to know how much I have appreciated these videos. I hope you are doing okay. The weather's been changing and I know I have had it a little rough. I have EDS, MCAS and POTS.

I have arthritis and sometimes I have horrible brain fog. It's one of my least favorite symptoms/side effects. I'm in high school so even when my joints are hurting I want my brain to be sharp. Thank you for this video series.

Very inspiring video.. i suffer from brain fog too with both cfs and hypermobolity syndrome...

This series is amazing! Thank you for educating me a lot on EDS!

I'm enjoying this little series! I think it was a clever way to educate others on EDS. :)

I love this series, it's so creative and I'm very impressed with how great of a job you've done. The more symptoms you explain, the more I realize that I experience a lot of them... I've always had such worse mental health problems that my physical ones have kind of been swept under the rug, and I still haven't figured out what's going on mentally with me, but it makes me wonder... If I focused on my bodily symptoms, could I find a diagnosis? Anyway, great video, amazing series, I love you and I hope you're having a great day with many spoons. ❤️

woah i love this costume! i'm glad that there is a youtuber like me that i can watch and look up to

my depression causes my brain fog ! definitely sympathize with you xx

This is/was such a great series. 💖

I'm loving this series, and than you very much for educating us

I have IIH and I feel like I'm always in brain fog I hate it sooo much

I know exactly what you're describing with brain fog. I definitely experience this, but I don't have EDS. I think I don't get enough oxygen to my brain at least some of the time, and I have a history of breathing trouble that's undiagnosed. I've been tested for asthma at least three times, but after that comes back negative the doctors just give up. I have difficulty focusing, and remembering who people are (faces, names, memories of meeting them), though I think it's not as extreme in my case. I have no interest in keeping up with celebrities because I can't remember who is who. I'll start talking about something send completely lose my train of thought or completely blank on terms or phrases or names. I'll try to google them, and halfway through that I'll forget what I was going to google, or I won't even have enough info for Google to find what I'm looking for. Like I'll forget a celebrity's name, and then I'll blank on what movies they're in, and then I'll forget why I wanted to talk about them in the first place.

@jedg4746

9 ай бұрын

Mast Cell Activation Syndrome (MCAS). Now known to be very common but not yet taught at med schools. Currently known as heart sink patients by doctors. Usually accompanies by allergy/intolerance issues. Mast cells run the whole immune system when they go wrong then there are a set of thousands of symptoms which can occur.

For a long time i was called a space cadet, lazy ect. I recently had a long conversation with some of my family members after i was accused of being inconsiderate for forgetting something at the store. I tried to explain what brain fog is and that its part of my eds and probably has been for a long time. Some of them were receptive to my suggestions like please write me a list and feel free to remind or send me texts me if you think I might have forgotten something important. Others responded by saying I am getting too "into" my diagnosis. In some ways i guess they could be right, but I'm glad i have an explanation for some of the things have been struggling with off and on for so long. I think the hardest part for me is that the brain fog comes and goes. I feel unreliable even to myself. Sometimes Im fine other times i might lose whole days to the fog and its hard to predict when it will come on or how ling it will be with me.

I love this!!!

This is the worst. Trying to think of the word for an everyday object is the worst. Its just like- I KNOW what this is- what is it called again??? 5 mins later- oh yeah- its a speaker. Not so fun. I now know why it was so hard for me in school (I'm 33, and just last year was diagnosed with EDS).