Patient orientation is at the heart of ERN RARE-LIVER. We are very pleased to be able to bring to you, a first-hand account of the patient experience before, during and after diagnosis. Many thanks to the patients and their families for taking part.
For more information for patients, visit:
rare-liver.eu/patients/unders...
rare-liver.eu/news/detail/lay...
More information for healthcare professionals:
rare-liver.eu/healthcare-prof...
Patient organisations play an active role in our network and are located throughout Europe:
rare-liver.eu/patients/patien...