FINALLY, after years of being told "there is nothing wrong with you" and being gaslit for years on end, I was diagnosed in September of 2022. I wept, I actually couldn't believe I was actually not crazy and diagnosed, but also questioned if this was real or just a label. All the pieces fell into place. I'm 58 years old, every day is different, but so thankful I have an answer. Sadly, having to explain it to doctors now, is sad. Not one has any idea what I'm talking about nor do they seem to care to look into it.

@lindasmith8771

11 күн бұрын

It is because medics still see fnd as a psychological/psychiatric illness and so are sadly rather disregarding. The old name of Conversion Disorder still led one to believe there was a real illness- the real symptoms were really caused by the mind. Good luck.

I presented in ER's and at GP's to be told for years it's in my mind. Only since having an episode at work witnessed by an ER clinic when I was misdiagnosed with Hemiplegic migraine with Aura and prescribed NSAIDs meds which I only took once and stopped coz it made me sick. Recently seen a neurologist who diagnosed FND after asking the right questions. When he showed me a pamphlet with the symptoms, I couldn't believe it and burst into tears. I'm not crazy or acting or seeking attention. I am scheduled for EEG next Monday and other tests. I am relieved and curious now and live each day as it comes. Strangely enough at times it makes me giggle a lot.

@loribethartist6353

Жыл бұрын

I was just diagnosed today after being in and out of the hospital since December 30th… I sometimes can’t walk without using a walker or even lift a cup to my mouth without spilling it. I have severe double vision, dizziness, and ticks. I’m just so happy to have a diagnosis after being passed from ER to ER. I had to fight my way to get an appointment before 2024! I love my doctor and I’m so relieved to know what’s going on 😊

@johnmcbride1773

Жыл бұрын

@@loribethartist6353 it's coming up to 12 months now since being diagnosed with fnd. I'm struggling so much with trying to understand this. I was taking 27 tablets a day, and the reason for this is because my gp deals with my condition on pain structures. I got to see my fnd specialist last week , and it made so much sense about my condition. She told me to wiend off the pain tablets, and the reason for this was quite simply, it's not helping whatsoever, it's neurological condition and not physical or muscular condition. I struggle so much with mobility and pain ,but excepting this condition for the root cause will make things easier and manageable. For example I asked if a foot brace would help with my deformed right foot, and the response was simply no , because it's neurological and not physical problem. It made so much sense to me, because understanding this condition, and what it is all about will get me better.

@stuartburns8657

Жыл бұрын

​@@johnmcbride1773 My Daughter in the UK (16) was diagnosed with FND in October 22. We ended up paying for private rehab via Motionrehab. They specialise in neurological rehabilitation. Got her back on her feet again and walking

@francoisrobillard3164

7 ай бұрын

its so frustrating to be told "its in your head" .. my answer was "yea, thats where my brain is.! " even with a diagnosis they still tell us its in our head, we have trauma,need a psy etc. i jest left the dr office telling they were wasting my time. today i manage it on my own and when ask by the dr there is ony one answer "its all under control" 🙂

I notice that on certain videos Medscape turns off its comment section. As a rule of thumb if a channel practices censorship I question their credibility.

@VeronixaIami

8 ай бұрын

Literally, same. It’s like a natural reaction.

So many connections made to covid vaccines alongside enforced isolation, stresseful living environments caused an increase in abnormalities. All of this and the change of name from conversion disorder to Fnd has caused what appears to be a mass hysteria and lack of appropriate treatment.

Physiotherapy does not work for myself as i freeze when i walk over a period of time then my whole body locks down . Unable to speak or move my limbs.wich could last from 20 minutes to hours or days. No meds help.

My name is John McBride, and I have been living with fnd since February 2022. I was in hospital for 4 1/2 months and struggling so much with trying to understand this disorder. Iam so isolated, and feel trapped inside my body. I still have involuntary movements, and have balance problems along with joint pain. I lost the ability to speak, also when I stood up I would have double vision, to the point I would go blind. Those issues are now gone, but I have the fear of them returning. I struggle so much, trying to understand this. Can anyone please help me?

@tamb7587

Жыл бұрын

John did u have dry heaves or facial numbness by any chance?

@johnmcbride1773

Жыл бұрын

@@tamb7587 I have numbness in both hands. The little finger and the one next to it, I struggle to hold a knife and fork properly. It's nerve damage due to fnd. Also the tips of my fingers and thumb are numb!

@tamb7587

Жыл бұрын

@@johnmcbride1773 thank u for your response, thinking my daughter may have this.. We r having a hard time finding a neurologist who even takes us seriously.. All I can offer you John is prayer , I can totally empathize with your situation..

@stuartburns8657

Жыл бұрын

​@@johnmcbride1773 My daughter used to experience similar with her legs, feet and toes whilst she spent nearly 3 weeks in hospital. All nerve conducting tests can back fine, but once we understood it was FND it made sense, and also why ever other test came back normal. She was discharged as medically fit, despite being able to barely walk. Once we paid for a private diagnosis and was told in the 1st consultation it was FND, it seemed to help, just the fact of knowing what it was.

@johnmcbride1773

Жыл бұрын

@@stuartburns8657 iam pleased that you have a good knowledge and it seems things are working. I was in hospital for 41/2 months and made good progress. Unfortunately when I came out of hospital, it seemed to go backwards. The chronic pain and limb weakness is destroying me. It gives me great delight, that your daughter is beating this horrible condition! Kind regards John McBride

SO, ACTUALLY THERE IS NO SUCCESSFUL TREATMENTS.