If you have CES symptoms the NHS will print out some pilates and that's about it, if you're lucky it won't be group therapy and you will be shoved out the door...100% my experience over three decades..i am frightened to do pilates as it makes things worse...

Yes Kelly the shooting nerve pains to the pelvis are so confusing! i feel like someone is trying to bang a nail into the bottom of my spine...but you must go get it checked out! HA! Like just click your fingers and its checked out...by who exactly ? The physio who just doesn't seem interested or the specialist who just shrugs their shoulders...1st you have to contact your GP and argue with them about it, then you have to hope they will send you to the right specialist...thats if they dont send you for more scans...that will take a year on the NHS...takes eight months wait for my neurology appointments and they won't be interested as they think its for Ortho and not a neurological disease...

The waiting list for the NHNN Queens Square is currently eight months...

My 1st MRI scans showed herniated discs and the NHS said absolutely nothing about CES...after so many trips to various specialists via the NHS i was still clueless...it wasn't until i saw the same NHS specialist privately that i was informed i have CES symptoms and then and only then did the NHS take it "more" seriously...i was accused of trying to jump the NHS queue for treatment...twenty years later im still waiting for help...

I'd like to know what I can and can't do with regard to exercise, I've had no rehab or physio advice in this and no one seems to know.

I am also suffering cauda equine syndromes my surgery done at 09/02/22 but my urine and stool sensation not coming

To get a discount for the gym you need a letter from your DR to say it's ok for you to use the gym otherwise the gym will not take you...

The most horrible thing about CES is not being able to work...not getting any help with ATOS fit for work and being constantly turned down and spending years trying to appeal the decision and get it overturned...this is more hellish than trying to get treatment vis the NHS...you will not be awarded PIP and you will only get ESA with means you will be in the group that is labelled fit for work at some point, you will have to go to job clubs etc etc etc...humiliating and dehumanising to the point you dont want to carry on...