Allergic to the Sun (Xeroderma Pigmentosum)

Fatima Perez is allergic to the sun and supposed to remain inside at all times. She is diagnosed with Xeroderma Pigmentosum, a rare disorder resulting in the body's inability to repair cells damaged by the sun's rays.
This condition has taken Fatima's eyesight, but not her zest for life. She continues to celebrate each day while "shaking her bum bum."

Пікірлер: 77

  • @leahevehumphries
    @leahevehumphries3 жыл бұрын

    She may be allergic to the sun but she is a ray of sunshine!! I love her so much! This is one of my favourite videos on the channel! ❤️

  • @amper-sand

    @amper-sand

    2 жыл бұрын

    Wonderfully put!

  • @bookworm4404

    @bookworm4404

    Жыл бұрын

    For sure! 🇧🇷

  • @cbreezy

    @cbreezy

    10 ай бұрын

    “She’s the same thing that’s killing her!!” 🤨

  • @anneriekotze2357
    @anneriekotze23573 жыл бұрын

    I love her. I do not smile much . But she let me smile and I could not stop smiling.

  • @Kai-eb1fv
    @Kai-eb1fv3 жыл бұрын

    I adore her dynamic personality and way of talking, she reminds me of my grandma!

  • @Metalbabilicious
    @Metalbabilicious3 жыл бұрын

    This woman is so incredibly inspiring! I love her so much.🥰

  • @jusme9400
    @jusme94003 жыл бұрын

    Omg her confidence is everything she is awesome

  • @SolarCrush48
    @SolarCrush483 жыл бұрын

    Aw man! I wish this interview was longer. Her happiness really is contagious, and I would watch for hours!

  • @ginx33
    @ginx333 жыл бұрын

    She is absolutely amazing.

  • @wjsnactivist6141
    @wjsnactivist61412 жыл бұрын

    This video is a great motivator! I love revisiting it. Fatima is a joy! So much personality!

  • @angelomunoz3791
    @angelomunoz37912 жыл бұрын

    what a powerful powerful powerful women....Shes traveled through realms we can only dream of visiting one day

  • @carlos66965
    @carlos669652 жыл бұрын

    Dont know how i missed this one. This lady is great.

  • @josesegura7001
    @josesegura70013 жыл бұрын

    She speaks very good english

  • @SpiciestBee
    @SpiciestBee3 жыл бұрын

    Fatima Perez is awesome!!

  • @robinhendricks1750
    @robinhendricks17502 жыл бұрын

    Fatima is WONDERFUL!! She is happier than anyone I know, she is a INSPIRATION and deserves all the happiness in the world. Love you, Fatima.

  • @helenwhite1748
    @helenwhite17483 жыл бұрын

    your smile and laughter is heart warming may father god always bless you

  • @bedp
    @bedp Жыл бұрын

    I've watched about a dozen of your videos in the past couple weeks. I find it so inspiring to see that these people that live with such debilitating conditions and experience agony I can't imagine, have nothing but positivity for life. If you ask me what I think of the world, I'll tell you it sucks and it's only going to get worse. These people with so much more to complain about will only tell you about the beauty and excitement of life. Shows you that strength and happiness can only come from within, no matter your circumstance.

  • @marleenninaka1303
    @marleenninaka13033 жыл бұрын

    Hi everyone: It's so nice to see you all again on KZread. I want to meet you all one day. Take care and stay safe.

  • @ChrisTRex59
    @ChrisTRex59 Жыл бұрын

    She is incredible !

  • @justicewillprevail1106
    @justicewillprevail11063 жыл бұрын

    Thank you for this video. I really need to watch this at this particular point in my life. She’s such an beautiful inspiration.wow… thank you and God bless.

  • @scottcunningham378
    @scottcunningham3782 жыл бұрын

    God Bless Fatima.

  • @MagdalenaKatarzyna
    @MagdalenaKatarzyna2 жыл бұрын

    I love her so much! This personality is absolutely golden!!!! She’s awesome❤️

  • @maleahlock
    @maleahlock2 жыл бұрын

    I thought my photosensitivity from SLE was bad, I feel like a whinger now. Thank you for your story. 💐💐 Also, it's like people forget you can go out at night. The night is beautiful!!

  • @martina5296

    @martina5296

    Жыл бұрын

    Especially in spring/summer and listening to the crickets and other nature sounds.

  • @tracy4591
    @tracy45912 жыл бұрын

    You are so inspiring and amazing Fatima ❤ I love your positive thoughts and attitude ♥ People could learn so much from you 😊

  • @inestorres6789
    @inestorres6789 Жыл бұрын

    Felicitaciones Fátima !!!!! Sigue así de positiva !!!! Es es resiliencia pura !!! Saludos desde Uruguay 🇺🇾.

  • @dollsNcats
    @dollsNcats2 жыл бұрын

    She’s amazing ! I want her positivity. Anyone know how this amazing women is

  • @sickboy703
    @sickboy7032 жыл бұрын

    I absolutely love Fatima Perez. You're joy is definitely contagious!

  • @rogo8133
    @rogo81332 жыл бұрын

    Got me a smile, amazing story

  • @carlasuannelockett1694
    @carlasuannelockett16943 жыл бұрын

    She's awesome!

  • @prettypumpkin6891
    @prettypumpkin68912 жыл бұрын

    She is just like everyone else, we can't live a day without our electronics (computers, tablets or phones). I'd rather be in her situation with her struggles than be depressed and miserable. Fact!

  • @mollyprysunka7741
    @mollyprysunka7741 Жыл бұрын

    She’s exudes class and charm. I’d like to be her friend ❤

  • @martina5296

    @martina5296

    Жыл бұрын

    She exudes what everyone wants. She sees only the positives in her life and works around the not so positives. We all have that choice.

  • @cambriainouye595
    @cambriainouye5953 жыл бұрын

    Beautiful lady inside and out!

  • @giulugo5413
    @giulugo54133 жыл бұрын

    She's amazing

  • @nindikaur2095
    @nindikaur2095 Жыл бұрын

    Wonderful Fatima, she is an amazing happy person.

  • @lucash1297
    @lucash1297 Жыл бұрын

    I love Fatima’s outlook on life!!! She seems like an absolute joy to be around and I would love to be her friend

  • @KarolinaKwiecinska-zl6od
    @KarolinaKwiecinska-zl6od3 жыл бұрын

    Super positive :)

  • @toomuchtotype6079
    @toomuchtotype60792 жыл бұрын

    Fatima is a warrior! 💪🏼🙏🏼🙌🏼 Day at a time madam! Much love and respect to you! You are beautiful inside and out. ✨✨✨

  • @claire_eve8531
    @claire_eve85312 жыл бұрын

    Wow. What an inspirational lady. Hello Fatima 👋🏻🙏🏻

  • @martina5296
    @martina5296 Жыл бұрын

    Fatima's contagious happiness and joy is brighter than the sunlight. She is sunlight. Can we have an update of Fatima Perez? PLEEEEEEEEEEEEEEEEEEEEASE!!!!! Make it a long video. Maybe in 2, 3 4 parts. She's just such full of incredibly and contagious happiness. She would be a fantastic inspiration for kids. Also to fate people are. Especially the brothers and sisters of young kids with special needs. They are just so proud of their brothers/sisters and fiercely protective and incredibly articulate, well spoken and wiser than really any kids should be. But in a very good way.

  • @tzazella751
    @tzazella7512 жыл бұрын

    i caught her happiness. I'm going to dance now.

  • @lyssabiss2317
    @lyssabiss23172 жыл бұрын

    she is so COOL

  • @trevorblade6241
    @trevorblade6241 Жыл бұрын

    I find you to be very beautiful & inspiring Fatima👍. Thank you for sharing your story, you are awesome

  • @JonathanHernandez-mm3nd
    @JonathanHernandez-mm3nd Жыл бұрын

    May god be with Fatima and I’m sorry for what she went through.

  • @samucaandrade8344
    @samucaandrade83442 жыл бұрын

    Que Deus abençoe esta senhora

  • @chiarapiola
    @chiarapiola10 ай бұрын

    tu riesci a rimanere felice nonostante la malattia congratulazioni

  • @notmarkeza7937
    @notmarkeza7937 Жыл бұрын

    Support!

  • @ms2507
    @ms25072 жыл бұрын

    God bless you Mam. Surely will pray for your fit health & fitness.✨💜💜💜💜💜💜💜💜💜💜💜💜💜💜✨

  • @jade-wr9pn
    @jade-wr9pn2 жыл бұрын

    I want to know Fatima Perez!!!

  • @nicholaslehouillier6880
    @nicholaslehouillier68802 жыл бұрын

    True boss lady

  • @postal4936
    @postal49362 жыл бұрын

    I’m inspired by her

  • @casadare32
    @casadare32 Жыл бұрын

    Wow shes is wonderful

  • @mikecampos5123
    @mikecampos5123 Жыл бұрын

    God bless her ❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏

  • @happybergner9832
    @happybergner98322 жыл бұрын

    Farina IS the sunshine❤️😎

  • @gemmalouiserowledge545
    @gemmalouiserowledge545 Жыл бұрын

    Yes you're the gift you're amazing 🤩

  • @dawngibson1157
    @dawngibson11572 жыл бұрын

    Poor happy go lucky woman

  • @tromick
    @tromick4 ай бұрын

    Out of sudden I remember her today. Wondering how she is doing...

  • @godisacritter8571
    @godisacritter85712 жыл бұрын

    My younger brother whenever he went out in the sunlight when he was younger sunblock or not he would get hives all over the back of his neck and head when he went out in the sun.

  • @tyrellwilliams2914
    @tyrellwilliams29142 жыл бұрын

    In Prayers 🙏 Bless you all and In Prayers daily and Love And Care and Concern always ❤️❤️❤️❤️❤️❤️❤️ Best wishes for Good health and Prosperity and Happiness 😊 ❤️ ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

  • @1324TN
    @1324TN22 күн бұрын

    Amen!!!

  • @willielee2376
    @willielee23763 жыл бұрын

    ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

  • @LionGoddess1
    @LionGoddess1 Жыл бұрын

    can't go outside at night?

  • @baroonono
    @baroonono8 ай бұрын

    wow.

  • @GlowingGirl37
    @GlowingGirl372 жыл бұрын

    she is so cool her accent is just like my doctor and she is so funny im not allergic to the sun very much but i have photosensitivity so i have some times burns by accident opps haha

  • @aronlelenora9572
    @aronlelenora95722 жыл бұрын

    ❤❤❤❤

  • @ethansons7085
    @ethansons70852 жыл бұрын

    Jesús 🙏 Amén

  • @johnjobin7694
    @johnjobin769411 ай бұрын

    ❤❤❤❤❤❤

  • @arsalanabolfathi552
    @arsalanabolfathi552 Жыл бұрын

    ❤❤❤❤❤❤❤❤❤❤❤❤❤👏👏👏👏❤

  • @kellyfernandx
    @kellyfernandx Жыл бұрын

    No way Jose 😂❤

  • @GodlessFiend
    @GodlessFiend10 ай бұрын

    I think we found Dracula’s wife(saying this respectfully)

  • @Cetrifuga1945
    @Cetrifuga194510 ай бұрын

    Ciaooo come va nn ci conosciamo io sono gabbriele ti mando un 🐞ti piace ok ti piace ballare ok sei troppo forte ciaoooo ti saluto

  • @valentinagonzalez9519
    @valentinagonzalez95193 жыл бұрын

    Poor thing she has to live in the darkness a lot like a vampire 🧛‍♂️ the sun is way to beautiful the sun for humans is good for you Atleast a little if we lived in darkness always we can get chemical imbalances in our body and get depressed

  • @bakerlegendas945
    @bakerlegendas945 Жыл бұрын

    She's so happy that made me cry.