The most informative, scientific, yet in simple words webinar I have found. I'm diagnosed with AL and had my first chemo using Dara yesterday, so very eager to know what's going on! Thanks so much.

This presentation demonstrated how passionate Dr. Sasha Tuchman is with treating AL Amyloidosis. I wish I can bring my 73 year old mom to his care but we live in California. She has lost all her weight in the last two years. Her family doctor completely mis-diagnosed her symptoms the last 20 years - unbelievable. It took an ischemic stroke for a smart hospital doctor to suspect that she might have Amyloid and took a biopsy to reveal this fact.

Informative, understandable and positive tutorial on the current treatment landscape for AL Amyloidosis! Thanks to Isabelle Lousada for leading this and making it available. Great thanks to Dr. Tuchman for his work in this field. About to complete my second round of Chemo-Dara/Velcade/Cytoxan/Dexamethasone. Excited for the opportunities on the horizon!

Fantastic and informative talk. I received a preliminary diagnosis of Amyloidosis 6 weeks ago. I am trying to get a verification on this diagnosis so I know for sure what I might have.

Excellent presentation. Thanks, Dr. Tuchman

Stage 3A, started treatment 1/24/23 Cybord+Dara. Numbers are normal now. Trop40, bnp 3200..wasn't a candidate for Cael101 trial because of hypotension..probably not a candidate for sct because of hypotension. Ef 50% no wall thickening. 4 failed.cardioversion. ablation scheduled for 8/4/23 after 6 months weekly chemo then once a month for 18 months. Very informative video. Just scared became i read life after diagnosis is usually 14months

@Amyloidosis_ARC

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Thank you for sharing your feelings fighting this terrible disease Diane! Please feel free to call us at +1 (617) 467-5170 or email arc@arci.org if you have any questions or are looking to connect. We're here to help.

Renal Amyloidosis with glomerular and vascular deposition of Amyloid. Please help me with this treatment.

Hello I have a family member that has Al amyloidosis with multiple myeloma. She has significant amount of CHF and has had a mitralcilp done at Brigham and Women’s so two clips was placed in one procedure. One year later she starting to progressively get worse, with shortness of breath and progressive weakness. Transplant was being considered and yesterday we were told that’s not an option anymore. She’s in remission for the multiple myeloma. Could and lvad help if she worsened?

Hello sir ...I need help here ..my father is suffering from amyloidosis..enlarge tongue and anxiety problem ..unable to walk ..severe weight reduce... severe weekness in the body ..please help I am from India and I am not able to find any treatment here ....please help

@manyabhavya

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Did you find anything? How is your father now?