Harlow is brilliant!! Love that she brought 2 blankets--one for you and one for her. So so sweet!

This was my favorite video from you! You are in a better place. I hope in heaven you are healed. I feel for Judd and Harlow. As you say... keep going forward

Sending love from Oregon ❤️ I’m bedridden today and feel a little less alone watching this. We might feel absolutely awful, but even on the bad days we’re all doing our best 💪

Sorry your health has gone backwards hope you feel better soon Jacquie love you so much

I love how you said I dont feel like being positive! I really hate it when people keep saying oh just stay positive itll all get better. It's like no. I'm miserable let me feel this feeling. Dont make me hide the fact that I'm hurting.

Hope you are feeling better today. I love how Harlow takes such good care of you and snuggles when you don’t feel well.

i really appreciated the part of the video where you show your process for your care, its really important for people (including myself) to just be exposed to medical stuff & understand how much there is to do

We don't want you to be positive all the time; it's just not realistic and WE UNDERSTAND! We just want you to feel as well as you can. It's totally okay not to be positive; especially when it feels like there's nothing to be positive about. Keep on fighting, you've got a whole army behind you ❤❤

Hey I just wanted to say that you are definitely not alone. I'm having a bad day too. Your video just made me smile a bit because I know I'm not the only one fighting and really helped me. Today I'm actually trying out something you too help my muscles and not type but actually speak because I get very tired from typing (on bad days very much) and so you're getting my first ever try of that. thank you for being that honest and your videos and I hope you're feeling better soon. Much love from the other side of the sea!

Seems like a bad to worse day. Hang in there trooper. From a disabled veteran whom is a fellow chronic pain warrior

We really appreciate you filming. I personally want to say that I will be praying for you that you will soon be back to your normal self as you can be. Remember also that God is with you as well. Sending a big hug and love to you .

I'm right there with you! Thankfully I'm out of my flare now, but all last week after I pushed myself to travel to see my parents my POTS, GI issues, and chronic pain were off the charts. It's nice to know we're not alone

its not pathetic, its comforting to me that you are brave enough to admit, you sat and cried. Because I have too, so it makes me feel less alone. I love you, I hope for better days to come for you. saw on your new vid youre feeling better :)

What a pain about the water. I bet you'll be glad to move into your new house. I'm so sorry you haven't been feeling well. I hope you get better soon.

Sorry you are having a flair. At least you had fun with Izzy. I hope you feel better soon. It stinks having a chronic illness. Take care of yourself. It is ok to vent or complain. I hate having flair ups. This morning I am still in bed in pain. Hugs. In your new home you will have everything on one floor and your special room with all your treatment supplies.

So sorry you are having a bad flare. Take it easy and take care of yourself. Harlow is such a great help to you. Prayers that you feel better soon.

I hope you feel better soon. Sending healing vibes and love to both you and Harlow.

So very sorry you’re having a flare, praying for you to get well soon and I’m so thankful Harlow is taking good care of you and your Mom. Take care and be well soon.

Sorry you haven't been feeling well and I'm keeping you in my prayers 💗

It is so difficult to see you struggle when you are unwell, Jaquie. Praying that the flare will pass soon and that you will begin to feel better. 🤗❤️🙏🏻🙏🏻

girl i feel that so much. you do all the right things and still end up hurting or sick. i'm glad you made a complainey video.. sometimes just getting that out is cathartic! and we don't expect you to be cheery all the time, tho i do like your positivity. sending good juju.

Hey maybe you should fill some jugs of water so you can use it when the water’s off in case something happens again! My family always keeps old juice jugs full of water in case something happens to our water.

@SeeFair23

5 жыл бұрын

Leigh B YES! When floods hit upstream from us we were warned to get other sources of water saved up until the water was treated n safe. I’m surprised Jaquie didn’t have some on hand because she’s very diligent about such things.

I’m so sorry you’re in a rough place. I pray your body will respond to treatment quickly. You are brave not only in sharing your journey with CI but being as candid as you are your sweet spirit genuinely shines. Love God…love people🙌🙏🤗💖💐

When you were setting up your infusion the balloon in the background scared the heck out of me 😂 Sending love and strength, can’t wait to see you on the other side of this flare soon ❤️

So sorry Jaquie. I hope you start to feel better soon. Love you guys

Sorry that your health is so challenging right now. However I'm glad you made this video to show us what you go through and how difficult it actually is. I have chronic illnesses so I can relate. You're right you don't always have to look for the silver lining in the cloud. Sometimes you're just in the cloud. I hope you feel better soon and start gaining some of your balance in your body back. Thanks for making this video while you were so sick.

So sorry you're not feeling well and flaring, but you're right in that is the life of a chronic illness warrior. Has been a bad week for me as well, but I know it will get better. My prayers are with you, Jaquie. 💙💚❤💛🧡💜 🐱🐾🐾

Sometimes being chronically ill and feeling like you have to always be positive is exhausting. You do not need to apologize for being human and needing to vent. You have been an amazing encouragement to me without you ever knowing. Thanks

I hope you feel better soon! sending love and prayers your way! 🙏🙏🙏🙏

Jackie, you are awesome and sometimes we just need to "get it out" , just to say it when we aren't feeling our best. You are a positive person and an Inspiration for me. Thank you for EVERYTHING you share. You help all of us, those with chronic illness and those without. You are sunshine even when you are feeling low,

Sorry to hear you’re not feeling well send love and hugs your way xx

I am so happy you have your Hippo there to snuggle! Feel better soon Jaquie!

You r not alone. We care and understand. Maybe not fully but in bits. I know what it is like to miss out on something due to unimproved health. It is ok to vent. Sending you a big hug.

Totally feeling for you Jaq I hope the going gets easier soon for you!!

Sending good vibes and gentle hugs for you to get better.

Harlow, you are SUCH the gift from God! you beautiful soul, you. Fell better, dear, J. :*( I've been sick for 47 years (JRA/RA/OA) and I am tired.

I'm sorry you're struggling but you & your videos like this are really inspiring for me as not as severe bur I have a lot of similar problems you have & am trying to be diagnosed with EDS, fibro, & maybe POTS so to see your videos about going out & doing things or ones like this where you talk about listening to your body & staying home really help me. Because often I fell bad if I have to cancel plans due to my health but you know what my health is more important & so is yours good job taking care of yourself as crappy as the situation was

Hope you feel better soon Jacquie. Don't push yourself, rest and take care. Besos y abrazos

Thank you for sharing the bad days. It must be so hard to pick up the camera. But it’s helpful to see someone else complain too. Flares are hard.

Sorry your feeling bad and praying you get better but girl....your hair looks amazing! Rest and get well. I think about you often. Sending love!!!

Sending you my love and praying for you!

Just got my j tube a few days ago ; fingers crossed 🤞 it helps my GP flares . So happy to have so one to watch and help me through this crazy time . ❤️

Wow you are so strong. I have minor medical problems with mass cell as well, but it can’t compare to what you have to go through. I hope you get through this tough patch. Also your dog is really great. I wish I had an animal to help me through some of my flairs. You are so strong and resilient.

I can definitely say your not the only one in a flare Jaquie I have chronic fatigue (which makes me tired a lot of the time) so, right now because I have been doing a lot this past week and past few days its been hard getting up and staying awake. Which affects my chronic pain and stomach issues so, I'll have to agree with you that these past few days have been crappy.

You should be proud of yourself for making the smart decision rather than the fun decision, your health is the most important. I understand it's hard, but as always, you'll get through this. i always watch your vids when i want to feel better. you got this.

*I really hope you feel better soon!*

I hope you feel better soon, sweetpea!

Feel better soon! 💖

Hey, I just wanted to say that I’m so sorry you haven’t been well and couldn’t enjoy yourself, but I’m happy that you have the strength to really make the right choices, even if it means you don’t get to go somewhere you’d like. I can’t say I completely relate, as I don’t have such extensive chronic issues, but I do have severe anxiety, ADHD, and leg pain due to an old injury. I do know how it goes being unable to eat, however, as my anxiety causes really bad GI issues. But all in all, I’m really proud of you that you are making choices to feel better rather than always the fun choice. It’s really hard sometimes. I hope you feel better soon, Jaquie.

So cute and funny when Harlow brought two blankets. She knew what she was doing- one for you and one for me so I can lay on the couch next to you.

Take care and hope you feel better soon.

Jacquie you are amazing! God bless you!

Having lived in a place where my water was shut off often because of old plumbing having problems, I know that all too well. I hope they're done and you can have water consistently again. And obviously I hope you start feeling better.

Sorry Jaquie. Wishing you all the best for a speedy end to this flare.💗

You go through so much... hope things get better soon.

Hope you feel better soon ❤️

Thanks for posting. I'm currently on my last few days in Italy, and have spent the majority in bed sleeping due to a fibro flare. It suck, but I cant do much about it.

So happy you have Harlow ❤️ I wonder if the Benadryl would’ve helped even though you didn’t decide to try?

Aww Jaquie i is so hard to see you like this I wish I could give a hug and keep you company because not feeling well is one thing but being sick and alone is just really sad I’m glad Harlow is there for you stay strong Jaquie you’re not alone feel better soon. 😭💔 I miss Jaquie smiles I’m not done watching the video but I swear if I see Harlow sad I’m gonna lose it 😭

Hey I hope you feel beter soon love you girl stay strong

Keep on fighting miss Jaquie 💪🤙

Hate seeing you this low. Good job listening to your body and taking care of yourself. Positive thoughts for you warrior friend. ❤️

Praying for you. Your in my thoughts and prayers 😇🙏💞

Feel better soon. You got this. Stay strong rest and move on slowly god bless

Oh sweetie, I am so sorry you're feeling bad. Hugs

stay strong and fight the good fight

Thats the way it works, some days are good and some days are rough. It helps me to concentrate on other things as much as possible. Its so hard to be chronically ill.

Indeed we do not need to be positive all the time. Hope you are already better 💞💞💞

You are an inspiration ❤️

In my thoughts and prayers hon🙏🏼❤️

This day is my birthday!! I wish u were feeling fabulous!

Totally understand how you feel but at least you have a Dr that cares

“complex” reminded me of your “aminals” sounded like you said clompex for complex 😄👍🏻

I do hope you'll feel better again soon.

I hope you feel better soon.

Hope you are felling better.

Being alone when your're sick makes you feel worse, too.

Hope you feel better soon

I hope today is a better day.

I saw Hippo on a funniest service dogs when she brought you salad dressing lol...I hope you feel better

Sending gentle hugs! From a spoonie To another

I hope you feel better soon! Flares are the worst!

I’m in a flare right now too so I totally feel ya.

Oh Harlow

😢 i just wish i could make you better you are such an amazing person! Makes me feel like a jerk complaining about my chronic back pain/issues/injury... you have to go through so much and you are so strong ❤️ wish you the best love your videos and your doggo!

Hope you are feeling better.

So sorry your feeling bad today 🙂 Hang in there! 🙏 Relaxzzzzzzzz oummmmmmmmmmmmmm🙏❤️ Feel better

Its not pathetic, you are so strong. 💖 if our chronic illness were suddenly taken away we would be the strongest people around. Also that is ridiculous hours for the water to be off, some people work till 11pm 😵

Hi Jaquie, i'm so sorry your mast cells are flaring again... It's 5 in the morning here and laying in bed, wide awake with horrible bone pain and flushing. Mast Cell disease sucks ;( Hope your flare doesn't progress and you'll be feeling better soon! Hugs

My cat understood that he wasn't allowed on the couch unless a specific blanket was on it. (He would stand by the couch and meow, wait on the floor while someone put the blanket on, then jump up onto it before we were even done smoothing it out.) Harlow probably gets it too.

If those are curos caps that you’re using for your tubing, you don’t have to clean the port after taking them off as long as they’ve been on for at least 3 minutes.

Do you also get tierd from the Atarax? I only take it at night. I take it beacuse I have big open wounds all over my body. So they are constantly itching and the Atarax really helps. But I get quite drowsy from it. You are not alone! And you give me so much inspiration. Finding your channel has really helped me. Hope you read this and that it makes you feel a little bit happier! 🦋

I just wanted to thank you for sharing your chronic illnesses with us. I have struggled with chronic pain for about 10 years (I am 20) and the doctors refuse to believe that i am in pain. I have been told that its all in my head, that my pain isnt real, that i am faking it, i am attetion seeking, ect... You have been an inspiration for me to keep looking for answers, and to stay strong. I hope your day gets at least a little better. Thank you.

@vayavos5271

5 жыл бұрын

I'm sorry to hear that. Keep fighting. I'm in pretty much the same situation (with some other issues) and it's really exhausting to constantly be turned away. You will find answers, I'm sure of that. Don't give up your search just because doctors think you're just seeking attention. Go to different ones. Be persistent. I know it's hard but I wish you the best of luck. Much love and support from over here! Keep going.

@seattlegirl2077

5 жыл бұрын

Stay strong Harley. I've been there too.

@LymeDiseaseRadio

5 жыл бұрын

Sorry to hear you're feeling that way Harley.....have you ever had a tick bite that you can remember? Or remember when this first started? Many of us Lyme Warriors have gone to 5 to 25 doctors before not only getting the proper diagnosis, but also the correct test! Which test your doctor uses is THE MOST important (aside from which lab they use too!), so hang in there. Sometimes it just takes time to find out.....and the patience of a saint too! Oh, not only Lyme, but the co-infections that they can give you also can create massive problems so just testing for Lyme and no co infections can defeat the purpose. Good luck!

@SeeFair23

5 жыл бұрын

Hi Harley! I used to have severe chronic back pain, after back surgery 2007. I was on Hydrocodone, a horrible drug that gets you addicted. In 2014 I had an anxiety and panic attack in public. A great Dr diagnosed me with depression. I started seeing a Therapist. I 💜 her! She helped me understand that the “pain” was indeed “in my head”. Not that it’s imaginary. Not that the Pain did not start somewhere. Look up pain receptors in the brain. It’s fascinating, informative and will help you get to the point where you feel great. Not joking or lying to you. 🙏🏼

Have you ever tried sea-bands? I use them to help when I get nauseous. They work to an extent but not 100%, but help enough to ease some of the symptoms. I also found out I have Mast Cell Activation Syndrome. Getting the diagnoses was a big ah ha answers moment. I also have the official asthma diagnoses too. We are running blood test to see if I need to start doing IVIG to help my immune systome to fight infections even with taking immno suppressing medication.

I had sich a bad day as well. My GI doctor is telling me to drain less but won't give me meds for nausea. I need to run 150ml/h of feeds and fluids through mt NJ which isn't even possible for a normal person. I have been stuck in bed for 3 months and noone is doing anything major to get me out of bed. And i can't continue training my own SD. My dad has to take over. A lot of crying today. I'm pretty done with being sick

I’m with Anna & you - ya’ll are not alone. Now & when you recorded this video. I actually had to take an ER visit on Monday for a flare up &, apparently, have walking pneumonia as well. *rolls eyes* And while I do not have a Harlow, I do have my Mau cat who is, without any airplane jokes, my emotional support animal. Even though she’s an indoor/outdoor cat, she’s been staying with me all day in bed, always having to sleep with her body along mine & no where else. I truly wish I could treat my flare ups & symptoms at home, as you do. But the other side of the state isn’t big on helping people the way they need to if you don’t have insurance. Honestly though? I saw this coming. You’ve been on the go go go for more than a few weeks. A lot of travel, a lot of Disney days & fun with friends & fam. If you didn’t see this crash coming, you’re being silly. Don’t get me wrong, I’ve been amazed & so happy at how much you’ve been out & about lately!! I’m so happy that you’ve found a treatment plan that helps you a lot! Keep strong dearheart! And we’re all here for you so don’t worry about not being positive all the time. We’re more than allowed a couple of break downs. 💜

Are you safe to be by yourself when you are in this condition? Although I don't know you personally, I do feel a connection with you. I am in a wheelchair and understand safety. Just want to make sure you are safe. Good bless you Jaquie.

Could Harlow bring you your backpack if you really needed it?

Being positive all the time or faking positivity is unrealistic. Our experiences are difficult and there seems to be the expectation for us to always push forward and be positive. Sometimes I don’t feel like it. Sometimes it really sucks and I need to say it sucks.

I thought you had 2 of either the bags or the pole. If don't you should. That way you can have 1 upstairs and 1 downstairs. Just a thought to help you keep moving forward. 😀👍 Also, I hope you get back to feeling like your Jaquie self.