Welp, this answers some huge questions about my body and pain and gives me info to discuss at my next appointment. Thank you!

@bendybodiespodcast

4 ай бұрын

I am so glad you found the episode helpful. Have you watched any others?

@I_Call_You_Moonchild

4 ай бұрын

@@bendybodiespodcast tidbits here and there, and I follow on IG as well. I was diagnosed with EDS over a year ago, with POTS last month, and now that I have been in PT for a while and have a better idea what is going on with my shoulder and ankle, I can move on to discussing the ribs with my care team. All while helping support my hypermobile, twice exceptional kids. It's a matter of juggling so many balls. I appreciate having you as a resource when I need to dig a little deeper into the mysteries of my body.

Amazing video! So informative! Thank you for sharing. I will be seeing Dr. Hansen for my slipped rib syndrome. Waiting as patiently as I can 🙏 After I gave birth to my last child 7 years ago, I came home from the hospital and my first night home, I woke in severe, debilitating pain. At that time, it was localized in my right posterior rib area, just right off of the spine. My PCP ordered an MRI, but sadly I had to complete 6 weeks of gruesome physical therapy before insurance would allow me to get it done and find out why I was in so much pain. They found I had syringomyelia and had a syrinx in my t-spine. I was told for 5 years thereafter by every doctor I seen, that I would never find anyone to operate or help me, & that I could potentially go paralyzed. 5 years after diagnosis, I found an amazing neurosurgeon at the Cleveland Clinic who placed an ss shunt in my t-spine. At my post op follow up, I asked why I was still having severe pain in my right posterior rib because I thought my rib pain had been associated with the syringomyelia. It was explained to me that it was psychosomatic, but I insisted there was something wrong. I can feel the clicking and popping rib in and out every time I bend over or move a certain way. Needless to say, I've been living in crippling severe pain for 7 years. I finally found out what this was a couple of months ago after reaching out on my syringomyelia support group page. A group member told me it was called slipped rib syndrome, and I quickly found Dr. Hansen online after that. His office initially directed me to one of Dr. Hansen's students, another doctor who was closer to me that could do the surgery. He verified that I had slipped ribs on each side and we made an appointment to have surgery. But I backed out. My chronic illnesses with diverticulitis and my intestines always hurting had me questioning things a little more. What caused me to have 2 rare diseases/syndromes that exacerbated/occured during the delivery of my last son? Which begged the question of EDS. Then I got to collaborating with friends and family, and we all agreed that my case is a tougher one and we wanted someone who could think last second to fix an unexpected issue if it were to arise (and oddly enough, I ran across this video today). The pain slipped rib syndrome causes is downright unbearable. I've learned to live with shortness of breath and nausea. My intestines are always hurting in one way or another. Dr. Hansen, I'm coming for you! I hope you're ready because I sure am! 7 years of pure torture is enough 🙏

@bendybodiespodcast

4 ай бұрын

I am so sorry to hear of your struggles. Did the thoracic spine surgery help?

@user-dl9jb6tc4o

4 ай бұрын

The shunt helped by reducing the size of my syrinx to half of what it was. As far as the pain goes, it didn't help with that. It only created a new type of pain when they cut into my spine. It was pretty much the only place on my body that Didn't hurt before. But it's hard to say what pain is from the syringomyelia and what is from the SRS. So it's another reason I can't wait to get the surgery done. To see what pains are alleviated and know what the SRS was causing.

@bendybodiespodcast

4 ай бұрын

I am sorry you did not get more relief @user-dl9jb6tc4o . Unfortunately, people with Ehlers-Danlos Syndromes and related conditions are more likely to have suboptimal outcomes after surgery. I discussed this today in an interview with Dr Heather Tick which should come out in a couple of weeks.

Great discussion! I have been following Dr. Hansen and accidentally came across your podcast today while I was looking up Dr. Hansen to tell a physical therapist which video on you tube to watch. I will have to add this one to my list. I have my 1st appointment with Dr. Hansen in a few months. I cant wait to get in to confirm what I known is SRS. As I am writing this, I am in a lot of pain. Just being able to prepare my meals is very difficult. It can take several hours, because the pain becomes so excruciating and unbearable I have to stop. Wait for pain to ease a little, then go back to meal prep for a few more minutes and keep up with that whole process until I get done. Sometimes it could be midnight. So as a result sometimes I dont even care if I eat or not, because its not worth going through the pain. Other times, when I am having rib pain it makes it hard to eat. I just want this surgery done and over with so I can finally get my life back. It has really affected my ability to do things and quality of life. I have had symptoms for over 20 years, maybe longer. That last 9 years it has gotten progressively worse. I am afraid if I dont get this surgery, I am eventually going to end up being bed ridden. Of course I want to avoid that. Thanks for spreading the word about SRS. Hopefully the more this gets out there more doctors will come to know this is a very real condition, it needs to be addressed, take their patients seriously and get them the help they need as soon as possible.

@bendybodiespodcast

3 ай бұрын

That is precisely why I wanted to do this episode. Far too few doctors understand SRS or even believe that it is real. Best of luck for your evaluation!

Thank you so much for this! Love the detail shared of each possible injury. Super helpful!

@bendybodiespodcast

2 ай бұрын

You are most welcome. Is this something you struggle with?

Thank you so much for doing this interview!

@bendybodiespodcast

Ай бұрын

you are most welcome. What did you find most helpful?

Great interview! Dr. Hansen is great!

@bendybodiespodcast

5 ай бұрын

Thank you so much! What did you find most helpful?

Loved this video - so educational!! Dr. Hansen's out here doing Gods work ❤

@bendybodiespodcast

5 ай бұрын

I am so glad you found this helpful! Do you have any suggestions for other topics or guests?

Great interview, thanks for Highlighting SRS 😊

@bendybodiespodcast

5 ай бұрын

Of course! What are a few things you wish everyone knew about SRS?

@slippingribsyndrome

5 ай бұрын

Simply that it exists and is physically possible would be a great start. It'd be wonderful for it to be taught in medical school. It was first discovered in 1919!

@bendybodiespodcast

5 ай бұрын

Great point@@slippingribsyndrome ! I honestly did not know about it until a few years ago and I completed an anesthesiology and pain management residency.

What a good video, thank you! This was very informative!

@bendybodiespodcast

5 ай бұрын

I am so glad you liked it! Have you watched any others?

@valkeryie__1617

5 ай бұрын

@bendybodiespodcast I have not but I will make sure to check out more of your videos!

@bendybodiespodcast

5 ай бұрын

Awesome@@valkeryie__1617 ! Please come back and let us know what you think! 🤔

I live in Flowery Branch, Georgia, a little northeast of Atlanta. Are there any doctors anywhere near me who can help me with this? I have hypermobile ehlers-danlos syndrome (diagnosed) and have been nearly bed (couch, actually) bound for years from severe pain and breathing problems that have only progressed in severity as I age. I am 34 years old. The worst of my pain is from my abdomen area up to around the base of my skull. My bottom ribs pop in and out all day every day, mostly on the left side. Even as a young child, I was always trying to tell doctors that every breathe I take, I have to think about it and do it manually and it's really difficult and hurts. Not a single one took me seriously. I was eventually prescribed an inhaler at one point but that didn't help at all. I've dreamed of feeling a satisfying inhale my whole life, and the thought that I might experience that for the first time is overwhelming me. I still haven't found a doctor who believes me. No one will even look at or feel my ribs. No investigation at all. I am unsure if I can be helped though, honestly, because i am also unstable in other important areas also related to breathing. My throat being an example. I just had my disability hearing on the 4th of December. My attorney told the judge in his opening statement that EDS/hypermobility aren't associated with pain and that he wants the judge to consider that I am suffering from "functional neurological disorder". I am not diagnosed with that. I found out 3 days ago that I've been denied. I need help

@bendybodiespodcast

4 ай бұрын

I apologize but I am not aware of any. Make sure to subscribe and follow the podcast though as I am working on a project that is likely to be helpful.

@levifarr8211

4 ай бұрын

@@bendybodiespodcast Thank you for doing what you're doing. I am subscribed and will keep watching

@bendybodiespodcast

4 ай бұрын

Thanks so much@@levifarr8211 . Please write a review as that really helps spread the reach of the podcast so others can learn about these conditions.

Click or pop? Mine feels like it clunks when i cough lol. Its a hard thump.

@bendybodiespodcast

3 ай бұрын

People sense things differently so one person's click is another person's pop. Being evaluated by a physical therapist is often helpful.

News of the Hansen Technique has not spread as fast among orthopedists. Mount Sinai in NYC website still speaks of removing the cartilage as a cure on the website. The Hospital for Special Surgery in NYC doesn't mention the condition at all on their website. I just cannot go to the doctor in West Virginia. Meanwhile, OUCH!

@bendybodiespodcast

3 ай бұрын

Orthopedic surgeons don't usually operate on the ribcage as that is normally the domain of thoracic surgeons.

Finally an answer after 62 years 😂

@bendybodiespodcast

5 ай бұрын

Wow! Can you relate to a lot of the symptoms and problems Dr. Hansen mentioned during the episode?

@kerenturner6244

5 ай бұрын

Yes I can all of them. I have scoliosis and sternoclavicular subluxation, anterior cruciate ligament snapped, subluxation in neck, thumbs. Feels like kidney stones, 2 inch gap between ribs and pelvis on left.....no gap on right. Twisted pelvis is due to ligaments too (Iliosacral joint) oesteo arthritis, torn rotator cuffs, elbows flop about and het stuck. Lol. Is that enough symptoms ????? I have just had a year of tests.....colonoscopy, gastro camera, 3 ct scans full body with shiney stuff. Liver, kidney tests, gall bladder duct scans, pancreas scan. Surgeon said go back to gp to check for EDS, which I have been telling them for years. 3 ruptured discs lower spine.

@kerenturner6244

5 ай бұрын

Wish I was in USA to get help. Live in UK. Great interview. Bless that surgeon he must be helping so many people

@kerenturner6244

5 ай бұрын

You can top it off with M.E. and fibromyalgia. Forgot to mention POTS and dislocating right hip. Been telling doctors these things are all connected

@bendybodiespodcast

5 ай бұрын

I'm so sorry that you've struggled to find care. I hope you're able to find the support you deserve. Thank you for your support!@@kerenturner6244