I have this condition. It is very depressing. Im an older lady. I pray for everyone who has this.

@KimberlyElese

Жыл бұрын

Thanks!

@771blahblah

Жыл бұрын

thanks, me too

@naomif6774

Жыл бұрын

Me too. Very depressing!

@benitalterry872

Жыл бұрын

You are not alone. I'm praying all of us with this condition recieve a breakthrough treatment without medical Rx and negative side effects!!! Natural hair, natural scalp, Natural path!!!

@tthomas

9 ай бұрын

Same here!

Truth. I caught it in time thank God. You r speaking the truth. My doctor was beyond kind and empathetic. Put me on minoxidil and antibiotics. Worked 💯. Plush diet change to correct inflammation my diet was pretty good to begin with I also do D3 and essential vitamins. Hair has grown bck thick and lush no fall out. Beyond grateful. 🙏🏾 I am 64 and very happy with the progress.

@dontbmadjusbcareful

3 ай бұрын

What's your diet

@SDC1949

2 ай бұрын

I don’t trust doctors. After 74, I know my own body. Stress and poor diet were the culprits for my cccca. Shaved my head, took supplements (including msm, d3, b-complex, magnesium citrate) reduced sugar (1tsp per day), caffeine, no breads; no fast or fried foods, while adding fresh veggies. Most of the crown has grown back. The rest of my hair is dense and thick. No doctor needed.

@christinarandle6440

2 ай бұрын

going through same thing and am 63 soooooooooo depressing....just starting process

I’m so glad to see someone who looks like me talking about this in detail. Thank you. ❤

Your curls are gorgeous, thanks for information

Agreed! My dermatologist did a biopsy and sent it to Mayo Clinic, so I got the right diagnosis right away!

Very helpful video! This condition is so frustrating but as you stated, consistency is key! ❤️

I’m so thankful for you! I tried a Dermatologist and she was so basic. She was white and I feel like she didn’t understand our texture. I’m going to find another doctor, thank you! 💜

@Samiam173

Жыл бұрын

Hi KW, I went to a white female doctor also. It's not the "texture" that is the issue, it's the culture of Afro American Women and hair. It's hair growth or lack thereof. Texture is not what we're trying to fix, unfortunately it's the alopecia. Anyway, they are textbook, its' braids, chemicals, relaxers. Well, I can say that but what is she saying about the biology of our hair/culture? Not much. All they can do is prescribe medication or invasive procedures to get the hair back. We need to know the real root of the problem. I hope you find someone who can help you. What does work, or did for me was the Rogaine and Viviscal and for some reason, it makes the hair curl up really tightly just like in her video which is so odd. If you stop taking Rogaine if falls out so it's not fixing the problem, it's putting a bandaid on it. We need to know why this is happening. Good luck.

@gwadkarukera

Жыл бұрын

She didn't have a clue the black woman raised the white woman taught her everything.

@TS-ns6zm

5 ай бұрын

My experience, too!!

@knwashington

5 ай бұрын

@@TS-ns6zm I found a black doctor and my hair is growing back. I’m getting the steroid shots, using cream and shampoo. (Not trying to butcher the spelling I’m in the bed) I’m also taking Nutrafol and everything is working. I’m seeing more progress in this 6 months than I did after a year plus at the other doctor.

@dontbmadjusbcareful

3 ай бұрын

Im so over ppl blaming black peoples issues and incidents in black culture, victim blaming. It's highly likely it's environmental, pollution, radiation, cigarette smoke, pesticides, benzene, mold, lead, metals, herbicides.

Very good 👍🏻 The science behind conditions is so helpful.

@KimberlyElese

2 жыл бұрын

Thanks!

I am so glad that you shared this story and emphasizing the importance of finding another doctor when others tell you there's nothing that can be done. I have had this issue for over 10 years and it has progressed over the years. Every dermatologist told me there's nothing that can be done- I've even had primary care physicians deny me a recommendation to specialist because I was told there's not use. That being said, I appreciate all of the information you are providing and the importance of diet and nutrient supplements.

@KimberlyElese

10 ай бұрын

Thanks so much! ❤️

Thank you for sharing. You are providing a lot of ladies with helpful information. I too had to have a biopsy on my scalp. I am thankful for my Dermatologist, she has told me not to give up.

I am so glad that I found your videos. So many days I feel like I am alone in this journey. Just recently chopped my hair because my hair started back acting up and it really hurt because my hair had been really thriving for more than 5 years. Definitely going to add the other vitamins that you take to my line up as well. Recently started with a different dermatologist that encourages more vitamin d3 and K2, less sugars and less carbs so I can control my inflammation. Thank you!

@KimberlyElese

2 жыл бұрын

Thanks! I completely understand. Stay positive because we are beautiful no matter what, and there are styling and regrowth options for us.

@NYCCHOCOLATE7777

2 жыл бұрын

Trust Me Sis You Are Not Alone. I’m On This Journey As Well. WE Can Do This🙏🏾

@MsLignumvitae

Жыл бұрын

U r not alone I got dx in 2007 after noticing the thinning in my crown for over 10 yrs prior. My hairdressers had no idea . I wasn't doing weaves, tight hairstyle habitual braider maybe once or 2x / yr. When I got dx at Colombia presb NYC I was told it was Rare but mostly affected AA women. Over the years I've noticed quite an increase in number of women stop suffering in silence. Many were still able to cover up.

I just came from the dermatologist and received the diagnosis. My locs of 7 yrs started to thin and break off on the top. In my case, 90% of the women in my family suffer with some form of hair loss. I am hopeful that I can break the cycle. Thanks for sharing and your hair looks great!😊

@KimberlyElese

10 ай бұрын

My pleasure! You are so welcome!

It's ironic that I did the Viviscal and OTC Rogaine and that worked! No oils, no other vitamins. However, I don't "think" that if you stopped some of the vitamins that your hair would stop growing. One, you specifically mentioned that stopping the Rogaine would make it stop and guess what...you're right. The other vitamins are good in themself but I don't think it attributes as much as the Rogaine. When I stopped the Rogaine, my hair went south. And, my hair looked EXACTLY like yours, the tight curls all over. If I could send you a picture I would. I stopped the Rogaine because of the expense and it left my scalp dry and itchy. I wanted to get off medication and take a more natural approach. Now, I use oil combinations as you mentioned, and viviscal. I did a big chop and am seeing some results although it's only been 2 months. I may (reluctantly) try the rogaine again and add drops to the oils to see if that helps but don't want to use it alone. If I choose to use this medication I want it diluted but we'll see,,,I'm going to give it 6 months and see if I can avoid using it. Thanks good video and can you show an update?

Thank u for being brave and sharing. BTW, love the hair and cat eyes 😍.

@KimberlyElese

Жыл бұрын

Thank you! 😊

very good advises. specially washing every week.

Thank you sooooooooo much for sharing. I am currently going through this after thinking it was postpartum hair loss for the last 3 years. I am sooooooo happy your hair grew back which gives me hope. I’m currently doing steroids injection every 6 weeks, hoping that my hair grows back too. 🙏🏼❤️

Thank you So Much for Sharing your experiences🤗

@KimberlyElese

10 ай бұрын

You are so welcome!

I've been crying for days over my diagnosis...to the point of hyperventilating and having a migraine headaches. I have CCCA, female pattern alopecia, and traction alopecia. I did my big chop and went natural over 12 years ago. Now the front, sides, and top are thin or gone. The regimen the dermatologist ordered is rather expensive on my fixed income. Looking for affordable natural 4c toupees is also difficult. I'd decided to cut down my beautiful shoulder length kinky coils to make the damage less obvious. Now I feel encouraged by your story. Thank you.

@Shavier777

2 ай бұрын

Praying for you. I understand your pain. I was diagnosed with CCCA back in 2015 and it’s an every day challenge. Our symptoms are also brought on by stress. So please manage your stress levels.

Soooo helpful ❤

I think that searching for doctors willing and knowledgeable to help you causes stress that will cause more hair fall, so I would rather not go that route and just rely on destressing, vitamins, good nutrition, yoga, and other potent types of exercise, such as rebounding on a mini trampoline for one. Jumping on a trampoline gives me a lot of energy, makes me feel good, and improves my weight and sleep. So, I don't want to worry about my hair and just take my mind off it. I try to avoid bad news, fear, complaining, anger, hurtred, and all negative things as much as I can. 🧡 After taking pumpkin seed oil and saw palmetto caps, Geritol, Blood Builder vitamin, and turmeric caps for 1 month so far, and also shampooing twice a week with a folliculitis shampoo, moisturizing my scalp with Jamaican Black Castor Oil hair grease, and eating sardines every day, I'm seeing much less hair fall. Almost none and my thinning area appears to be getting thicker. Fortunately, I have some hair in the front to cover the wide alopecia line on top and hope that it will grow eventually.

Thank you for sharing your experience and providing help to us my sister. Like you, I had some terrible doctors in the past. Can you, or anyone in the comments recommend a good derm in the LA area?

@KimberlyElese

Жыл бұрын

You are so welcome. I don't know of any in the LA area. I live in GA.

This has been a bit difficult for me to deal with over the years, but I’m glad to come across this info, as the dermatologist I saw told me that it’ll never fully fill in. It’s disheartening when doctors are discouraging like that, but seeing this gives me hope to keep at it until I see success. 🤍🙏🏻 Thank you 🙏🏻 (Watching from Argentina 🇦🇷)

@KimberlyElese

Жыл бұрын

Glad it was helpful!

Thank you so much I believe I have the same condition I’m gonna try the stuff you said and be consistent

@KimberlyElese

Жыл бұрын

You are so welcome

I have this and have quite a few spots where my hair will never grow back. My Dr gave me Clobetasol propagate? Thank you for your great video !

Thanks for all the good information. I just order some of the supplements you mentioned via your links. About how long did it take for you to notice the effects of the vitamins?

@KimberlyElese

Жыл бұрын

Thanks! I saw results within 3 months.

i was diagnosed this week. My dermatologist gave me the cortisone shot in my scalp, topical steroids and oral antibiotics, She didn't mention biopsy at all.

Great info

Off subject your skin is beautiful ❤

@KimberlyElese

Жыл бұрын

Thanks ❤️

Thank You Sis For These Tips. I Was On The Fence About The Minoxidil But l Think Now l’m Gonna Give lt A Chance. Along With The Visical l Currently Do Use All The Other Vitamins You Recommended👌🏾Also You Look Fantastic

@KimberlyElese

2 жыл бұрын

Thanks!

Thank you 😊

Thank you ❤

Thanks for the information. I'm taking some of the vitamins you mentioned and will include the pumpkin seed oil and tumeric.

Thank you so much for this video. I was recently diagnosed and am doing everything I can to block DHT and take care of existing follicles. I haven’t yet taken the oral rogaine my doctor prescribed because I heard it causes more hair loss at first. Did you find this was true in your case?

@KimberlyElese

Жыл бұрын

I wasn't prescribed oral rogaine, however, I did experience shedding from using the compounded rogaine. It was temporary and I used products that were made for helping with shedding and hair loss that seemed to help.

My second doctor diagnoses me with CCCA. My doctor put me on metformin and told me to use red light therapy everday. Also, she put me on oral minoxidil. She wants me to take Nutrafol daily, but it is costly, so I don't. My hair is growing back. Thank you for the tips.

@brittanygary1406

Жыл бұрын

Did u notice any shedding with the oral minoxidil?

@anonymousvon5159

Жыл бұрын

@@brittanygary1406 No, I have not noticed any shedding.

@brittanygary1406

Жыл бұрын

Did you have any scarring on your biopsy? Have you noticed any regrowth with the red light and oral minoxidil? If so, how long before you noticed? Thanks for responding.

@anonymousvon5159

Жыл бұрын

​@@brittanygary1406 I am on my third doctor! My first doctor told me I did not need a biopsy because she treated all alopecia the same way with steroid shots and topical Mindoxil. After six months, the doctor dropped me because she did not see any improvement. My second doctor gave me a biopsy which did not show any signs of scarring, but I had been on steroids for six months.

@anonymousvon5159

Жыл бұрын

​@@brittanygary1406 After one month of daily red light therapy and the topical metformin 2x a day, I have seen hair growth. The red light is expensive! Why don't you check back with me in a month?

I have this condition, but I waited to long so it spread from the middle to the top or front of my head. I tried a few steroid injections but it was painful and not guaranteed to last. I’m not giving up hope. Thanks for this detailed video. God bless you and you look fabulous!🌺

@KimberlyElese

Жыл бұрын

Thanks! Don't give up.

Thank you for all this helpful information Kimberly. May I please ask what was your timeline to seeing your hair regrow? did a take just few months, a year, 2? thanks so much:-)

@KimberlyElese

2 жыл бұрын

I started seeing a difference 3 months after my first time getting the injections in my scalp from the dermatologist. I saw a big difference about 6 months after I started taking the vitamins.

Well done👍👍💝💝

@KimberlyElese

Жыл бұрын

Thanks! ❤️

Thanks for the good info. I just got diagnosed with CCCA after having a scalp biopsy. I was put on doxycycline and an topical steroid oil. I will definitely consider taking vitamin supplements

@katerireynolds7032

3 ай бұрын

Have you noticed any positive changes since making this post? I was put on this exact regimen by my dermatologist as well. @vettejakes

@vettejakes

3 ай бұрын

@@katerireynolds7032 yes. It’s a slow process but I see some growth near my temples and the center of my scalp. I had to stop the doxy because of nausea so I was given griseofulvin what also acts as an anti inflammatory.

@prettyfultee89

2 ай бұрын

@@katerireynolds7032how often are you taking the doxycycline?

Hello, I was diagnosed with Frontal Fibrosing Alopecia. It is causing inflammation and scarring. I take Doxycycline Hyclate capsules twice a day. I also use Clobetasol Propionate Ointment 0.05 twice a day. I am hopeful for great results. My dermatologist said the scarring spots may not grow back. She said she just wanted to stop it from spreading and keep the hair I do have.

@lumaspham

Ай бұрын

Hi! Do you put the ointment on your entire scalp?

@loisevora2717

Ай бұрын

@lumaspham Hello, yes, I spread the ointment thinly all over my scalp.

Thank you!

@KimberlyElese

Жыл бұрын

You're welcome!

Thank You ❤

@KimberlyElese

Жыл бұрын

You're welcome 😊

Thank you for your info. What can i use for thin fine hair? I don't have alopecia

@KimberlyElese

Жыл бұрын

Hair vitamins helped me a lot with thinning and shedding.

Thank you for offering free advice. I was using Rogaine and it irritates my scalp by itching. I've seen a couple of doctor, some have offered advice that you mentioned. May I ask who is your doctor? I live on the east coast. should I email you?

@KimberlyElese

2 жыл бұрын

I see Dr. Clay. I usually go to the Buckhead location, however, she goes between 2 locations. Since my last appointment, she has stopped seeing hair loss patients and referred me to Dr. Hill in Atlanta. I now have a upcoming appointment with her. I live 3 hours South of Atlanta and travel to get to my appointments, but it is well worth it. Thanks for commenting!

@felishathomas2549

2 жыл бұрын

@@KimberlyElese, thank you so much for your advice and information! I look forward to watching your upcoming videos.

@cheliaj691

2 жыл бұрын

@@KimberlyElese I'm in Atl also, I see Dr. Ashley Curtis, and she to is no longer interested in hair loss patients, I can see her bout once a year. I went to see Dr. Amy McMichael at Wake Forest Health, in Winston Salem, NC. She is the #1 Black hair expert in the world. I have an appointment to see her next year. I'm constantly researching new treatments for ccca. I'm now trying to get topical metformin. Hopefully i find derm to prescribe this. I have huge inflammation problem, and I'm trying to treat it with diet, and exercise. She told me hair transplant wouldn't work with ccca. I was disappointed , but appreciate the truth.

@KimberlyElese

2 жыл бұрын

Thanks! I have read about topical metformin. I am asking my dermatologist about it at my next appointment as well.

Thx for info. I’ve tried some of the things you hav mentioned. I hav an appt with a derm. I fig I prob need med to heal and hopefully jumpstart hair growth. I do hair mask and all will grown, except the crown area. I appreciate ur info thx ❤

@KimberlyElese

Жыл бұрын

Thanks!

I am going to go to a doctor and see if I can do anything because I went years ago and that doctor was so rude that I was just discouraged !

Has anyone tried topical metformin? Im old so my hair loss is pretty far along but wanted to pass that along for all my beautiful young ladies suffering with this. I still pray for us too!!

Great video! I also take iron, biotin, b12, vitamin D, C and protein power in my morning smoothies n tea. I also get steroid injections that definitely stop the itchiness.

What type of dr should I see a medical dr or dermatologist, rheumatologist? This is very helpful information

@KimberlyElese

2 жыл бұрын

I see a dermatologist.

@curiousandlooking

2 жыл бұрын

Thank you!!!

@JustMe-dn9fh

2 жыл бұрын

See a dermatologist. And a rheumatologist. Slot of the underlying problems with alopecia is dealing with autoimmune disorders. Do a biopsy by a dermatologist and blood work. If you have a high ANA antibodies, then check with a rheumatologist.

@leciek4404

Жыл бұрын

@@JustMe-dn9fh I have RA and am certain it triggered CCCA. 😢

How can I get in touch with you

What was the last product? Sounded like rowgain?? 👍🏽

@KimberlyElese

Жыл бұрын

Rogaine

Where do you live? And what’s the name of the dr you went to?

Nice

@KimberlyElese

Жыл бұрын

Thanks!

My hair is bald but I would not take injection in my head I don't want so much thing s in my head i am trying castor oil rose merry and alovera in my head

So did u have two forms of Alopecia because when the body produce DHT that’s androgenic Alopecia and that’s when saw palmetto is a DHT blocker

@KimberlyElese

Жыл бұрын

Probably do, however, after the biopsy I was only diagnosed with CCCA.

@NicoleBeckfordfitness

Жыл бұрын

@@KimberlyElese ok sis

Have you ever considered or tried laser therapy?

@KimberlyElese

Жыл бұрын

I have heard about laser therapy, but have not tried it yet.

this surfaced at 23 and I lost hair all over my body ,

I feel like there’s a reason. More than known that many bw are having this.

How do you get diagnosed with this ? I think I have this 😢😢😢😢but I’m not sure

@KimberlyElese

2 ай бұрын

I went to the dermatologist.

What's the name of the vitamins that u use

@KimberlyElese

2 жыл бұрын

I use Viviscal Pro. My doctor recommended Viviscal Pro or Nutrafol.

@MuchBetter2Day

2 жыл бұрын

@@KimberlyElese Nutrafol is good. I’ve been taking it for about 3+ years and I love it.

Do you take all of these at once before meal or after meal?

@KimberlyElese

2 жыл бұрын

I take my vitamins with a meal.

@pamsunshine9233

Жыл бұрын

@@KimberlyElese How long will you take those vitamins?

What are your thoughts on PRP?

@KimberlyElese

11 ай бұрын

I am willing to try it. I heard that it works.

@KimberlyElese

11 ай бұрын

I am willing to try it. I heard that it works.

I just found out, I dont have scarring I know this hair better grow back

How much pumpkin seed oil you took daily

@KimberlyElese

Жыл бұрын

2 capsules.

I think the injection are working even after 7 years of ccca

@KimberlyElese

Жыл бұрын

That's good to hear! ❤️❤️

What I was told that my dermatologist told me the scarring would not come back kept talking about it since it was the size of a quarter it’s on the web is hair transplants don’t work I believe it was done to black women on purpose do you know anything yet women that have this, I also believe some of the damage is caused from wearing these wigs from where I don’t know and the regain and monoxidel work until you stop using it.

Does anyone have issues with scarring alopecia and when using oils your skin gets irritated?

@KimberlyElese

10 ай бұрын

I use to experience the burning and itching of the scalp. I found that using oils with a cooling sensation like rosemary or peppermint helps.

@daviddaniel2198

10 ай бұрын

@@KimberlyElese thank you I’ll have to give that a try

@justthefactsmam9

2 сағат бұрын

I used a good quality castor oil on my scalp and it got rid if the redness and itching. Worked great.

My whole crown is completely gone and my sides. I take pumpkin seed oil, zinc, saw palmetto, and minoxidil. I think it's too late.

@jehanm8493

2 жыл бұрын

You may feel it’s too late but still try to be consistent with natural remedies and vitamins.

@Lilbear0

2 жыл бұрын

@@jehanm8493 ok I will

@JG-tr9py

2 жыл бұрын

@Lola bear Don't give up yet! Continue with your natural remedies and try to find a black dermatologist, preferably one who specializes in hair loss. If the first doctor cannot help you, then try to find another one. I also recommend that you should only use products in your hair that are created by black-owned companies. There're quite a few products that are marketed for black people that are no longer black-owned. God only knows what are in those products, it might sound crazy, but I don't believe that I'm imagining things. So do your research before putting anything into your hair, other than using natural remedies. I wish you the best.

@Lilbear0

2 жыл бұрын

@@JG-tr9py thank you. I'm using all natural products. I'm looking for another dermatologist in Memphis TN the last doctor I went to just isn't working I know it's other things she can give me. Minoxidil isn't working.

@JustMe-dn9fh

2 жыл бұрын

Try to visit a black dermatologist. Culturally sensitive doctors really make a difference . Get a blood work up . A complete panel. Don't give up.

I thought I read that Saw Palmetto should just be taken by men. Not sure.

@KimberlyElese

2 жыл бұрын

I take it with no issues.

@NYCCHOCOLATE7777

2 жыл бұрын

No Women Can Take lt Also

@cheliaj691

2 жыл бұрын

I was taking it based on youtuber recommendation, my primary doctor and derm told me not take it. Its not good for women. I take spiradactolone instead. The expert I saw recommended this medication. I've been fighting this since 1994. I'm very angry that black women has go threw this and no one really looking at prevention. I don't let anyone do my hair.

@annthompson7354

2 жыл бұрын

Thanks ladies for the replies and feedback. Much appreciated.

🚮🚮🚮🚮🚮🚮

I changed my diet, and I've tried all kinds of vitamins nothing worked. My sides and crown is bald my whole head is bald. I'm using myofascial oil. I doubt if it works.