Thanks for keeping it short and to the point! I have some autoantibodies related to myositis.

@rheumatologistoncall

Жыл бұрын

Glad it was helpful!

My early symptoms of DM were heat intolerance and fatigue. Then I developed rashes in my body with the worst behind my neck. Last symptoms was the muscle weakness. The final symptom was difficulty swallowing and tripping. It took a decade to diagnose.

@rheumatologistoncall

9 ай бұрын

Thank you for watching my video, dont forget to subscribe to my channel for other videos!

@yalna3140

4 ай бұрын

I suspect I have it but only milder rashes on cheeks with a ragged shape, a bit of redness on chest in a V form and upper arms like a blotchy red band where a blood pressure cuff would be, palm of hands have lightly blotchy red... complete heat intolerance though...

Thank you Dok for enlightening us We are from the Philipppines God bless you

@rheumatologistoncall

9 ай бұрын

You are very welcome!thank you for watching my video and sharing your insight!

I just tested pos on ANA and high on RNP only. I keep reading this means one thing: MCTD. I do have many symptoms-most of them mild- but my "come and go" breathing problems which require Breo are a concern, because of the worry of MCTD damaging lungs. Currently jumping through the hoops to get a "a new patient appoint longer than 15 mins. with a rheumy. Phew! The breakdown on tests for Dx o the video was especially helpful.

@rheumatologistoncall

3 күн бұрын

It's great that you found the breakdown on tests helpful! Keep advocating for yourself and seeking the right medical care.

Very nice and informative vlog 🌹

@rheumatologistoncall

Жыл бұрын

So nice of you

I've been searching for help for months. I've been in and out of doctors, hospitals, I was misdiagnosed as helitrope rash as orbital dermatitis ( it did not look at all like that) I have also been mis diagnosed as dermatitis on my hands tried a medication called "protopic" still no luck. So many tests they realized after 10 grueling months of endocrinology that even including having a PET SCAN yet still sick with no answers. No cancers, I had intestional parasites then cleared them and bam I stayed sick now I have every single symptom on this list including trouble swallowing I don't see a dermatologist until the 26th. Pray for me everyday I feel like I am running out of time. 😢

@rheumatologistoncall

9 ай бұрын

Your support means the world to me! To help more people and get this information spread faster please: 👍 Like and Subscribe 🔔 Turn on Notifications 👥 Invite friends to join Together, let's keep our community growing strong! 🌱🚀

@ccog6450

4 ай бұрын

I hope you are doing better. I’m trying to help a close friend figure out what’s going on with her. From what I’ve read this disease affects women more often and typically presents between the ages of 50-70.

@jessicaholloway646

4 ай бұрын

Thank you so much, I wish I were. My myositis panel came back negative. I am pregnant now diagnosed with a pulmonary embolism yay me *note the sarcasm. They have me on two injections a day at home until the baby is born. The dermatologist diagnosed me with erythromelalgia, the Endocrinologist diagnosed me Raynaud’s! So still kind of wondering what is really going on. Today is my special day I finally have a Rheumatologist after waiting all this time. I am praying for some real answers it seems to never end. I will let you know what goes on today! I hope you're friend finds some answers too I know it's not easy.

@ccog6450

4 ай бұрын

@@jessicaholloway646 congratulations on your pregnancy and I hope your appointment goes well. I have raymauds it’s more of a nuisance than anything. Spring is near so I’ll have some relief from it soon. I’ll keep you in my prayers and please let me/us know what happens, it may help others figure out what’s going on with them as well

thanks dr i m going for exam and ur vid r very helpfull make some on overlap syndr

@rheumatologistoncall

2 ай бұрын

Will upload soon

Vry informative

@rheumatologistoncall

Жыл бұрын

Thank you

Hi, I'm a 48 mother of 3, ages 8, 16 and 24. I have all you described but all denied by rhuma. till now skin hives with benadryl and syrtec for almost 9 weeks after 3 or more positive myositis with my rhuma in Upland ca dismissing. Last night I got the labs of now confirming myositis progression to dermatomyositis that my rhuma piggy backed from er labs. Meanwhile I'm with no treatment just left for continued progression while I wait for muscle and skin biopsy till end of June. Please help. Hives in chest legs arms neck scalp face, muscle joint pain in knees right elbow hip are bad as long as I get out of bed. I tell rhuma amd primary neither ate helping they are both in Upland CA. I'm in Fontana ca

This is very helpful. I’m wondering, I’m currently waiting to be assessed for fibromyalgia by a rheumatologist, my mother was diagnosed with polymyositis 40+ years ago and she had numerous rashes all over her body. She suffered extreme muscle fatigue and became unable to walk and intense muscle pain. I have autoimmune disease, psoriatic arthritis, ankylosing spondylitis etc. my query is this condition hereditary. Rheumatoid arthritis, MS and lupus has been ruled out. When I’m flaring my body shuts down. It’s almost as though it ceases to function and I experience tremors/spasms. I’d been prescribed Duloxetine for my neuropathy pain, but it really doesn’t give me huge benefit and I become chronically fatigued. Your thoughts would be appreciated.

@rheumatologistoncall

9 ай бұрын

you need a complete reevaluation.... thanks for watching!

Excellent

@rheumatologistoncall

2 ай бұрын

Thanks!

Had it since 14 and added about 10 more diseases since then.. 40 now

My Rheumatologist sent me to a Dermatologist because the face rash I have. The Rheumatologist mentioned that he didn't think the rash I have on my face was from my Lupus. The Dermatologist took a biopsy on my face, now I'm going to be asking if I have this. Washing my hair is very difficult and I'm weak and fatigue.

@Suthrnbelle515

Жыл бұрын

It took me 2 years to get diagnosed back in early 2000. It was a dermatologist looking at my rash and diagnosed Mr in 3 sec

I have Dermathrisis - gottron's papule and I DO NOT feel any muscle weeknesses. I got gottron's papule when I was 18, i'm now 29. It started with painful lumps and sore, swollen fingers, then the pain went to my knees, toes, elbows, shoulders and then my hips. The pain was the worse when I was standing for a long time e.g working, but after I quit working I felt 99 % better since I didn't have to stand for so many hours. I live in Norway and so when it's cold the pain gets worse. I have been in and out of the doctors and specialists for many years, but after they took a biopsi they found out I had Dermathrisis

@rheumatologistoncall

8 ай бұрын

Thank you for watching my videos!

thanks dr do some on sle mctd etc

@rheumatologistoncall

2 ай бұрын

Will do soon

@drkpk384

2 ай бұрын

@@rheumatologistoncall thanks dr very helpfull and best vid i have seen thanks for rspnd

Hi I need help with this disease I believe all my maternal side of my family all suffered and passed away from the disease I'm showing signs bad I also believe I had juvenile dermatomyositis from age 5-15 now having symptoms again but more aggressive I have mechanic hands other lessons on hands arms face starting the shaw and v muscle weakness in my shoulders arms shaky the pulse thing on your finger makes my finger bounce guts rumbling diarrhea no appetite heart and lungs issues other words I need to be officially diagnosed with this disease and start trying to enjoy my life and not suffer with side affects

@rheumatologistoncall

3 ай бұрын

I'm sorry to hear about your struggles. It's important to seek medical advice for a proper diagnosis and treatment plan.

What's the medicine , my mother is a dermatomyosistis patient

@rheumatologistoncall

Жыл бұрын

Dermatomyositis is a rare autoimmune disease that affects the muscles and skin, and treatment typically involves a combination of medications, physical therapy, and other supportive measures. The specific medication(s) prescribed for your mother will depend on several factors, including the severity of her symptoms, her overall health, and any other underlying medical conditions she may have.

@sincerelyJayD

Жыл бұрын

Steroids (prednisone) initially but mostly diet. Check out my video on my channel about living with dermatomyositis

Have any cure dermatomyositis desease

@rheumatologistoncall

Жыл бұрын

Cure, no! Treatment yes

@mutahirhussainshah

Жыл бұрын

@@rheumatologistoncall i done all treatments plan but now i am on wheelchair since 2017 Doctor advice me ivig itsss toooo much

@sincerelyJayD

Жыл бұрын

@@mutahirhussainshah Yes!! Dietary changes. I reversed my disease in 6 months (no longer on meds). Check out my video on my channel about living with dermatomyositis

If you have dermatomyositis u r free to contact me sisters and brothers

@rheumatologistoncall

Жыл бұрын

Thank you for watching my videos!

@lilianapadilla8658

Жыл бұрын

I have it

@adolfinezemburuka3342

7 ай бұрын

Good afternoon I'm suffering from DM for 12 years but my muscles are very weak the treatments are medrol and azapress no helping, please be kind Dr I need more information to take care of myself

@Connie-nt5nm

5 ай бұрын

Can you please tell me why this happens ? What causes it and is it life threatening ? I’m pretty sure this is what I have . I also just discovered a lump on my breast .. and I’m worried I have cancer because I’m so short breath and always have pains and pressure in the middle of my chest . Is there any relation to cancer ? Would cancer cause this ? Please someone help me . I have no doctor right now and I am totally freaking out I’m so scared .